30 ms·

Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

783 points by m348e912 2y ago

aucisson_masque 2y ago
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- davidt84 2y ago
  No, not everyone is as lacking in empathy as you.
- lupusreal 2y ago
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  - kvdveer 2y ago
    "Ignore your illness, and just keep working" is not a viable course of action, especially not with long-covid, speaking from experience here. In third-world countries without a socialized healthcare, this simply means these people work themselves to death, starve themselves to death, or need to rely on others for their survival. It is an absurd illusion that one can just ignore a serious health issue this way. Or, in language a non-empath like you you would comprehend: the world is better off without your opinion.
    - trompetenaccoun 2y ago
      I live in Kenya and have not heard of a single person who got "long covid", or knows someone who does. It has nothing to do with working oneself to death as you imagine, this is a phenomenon that does not exist outside a certain social bubble. You say you speak from experience. What exactly is your third world experience based on?
      - lupusreal 2y ago
        Post-viral fatigue definitely happens in Africa, but only very privileged people with the means to lay around doing nothing will allow it to knock them down so hard they literally don't stand up once in two years. Post-viral fatigue to this degree is a phenomenon of the idle upper class. It doesn't paralyze you, it just makes you tired and miserable. Normal people push through and carry on, because they must.
        davidt84 2y ago
        Or they die.
        lupusreal 2y ago
        From long covid? And because they didn't go two years without standing? You can't really believe this. Going outside would not kill her. Choosing to stay in bed for two years has done her far more damage. Staying in bed is worse for you than hard drugs.
        aucisson_masque 2y ago
        Unless you got cold fever and you're literally too frozen to get outside, or you got your leg broken, there is absolutely no way you wouldn't get out at the very least once a day. I believe it's a mix of depression and lack of will, being hungry and having nothing to eat is the best way to make someone get back on his feet. It happens everyday with the lower class, but people in the top of society don't feel that very often, or even at all.
pogue 2y ago
What was wrong with her? Some type of long Covid or something?
- nickhodge 2y ago
  Severe ME/CFS. I am a carer for my wife who has this forgotten & hidden disease. I am so glad Physics Girl is getting better with rest!
  - tednoob 2y ago
    It seems it is not just rest but that she had some procedure done as well. https://youtube.com/shorts/ndhu7uo3PrI?si=pPzpDk4lLw3eRf0j https://youtube.com/shorts/ndhu7uo3PrI?si=pPzpDk4lLw3eRf0j
    - FlyingAvatar 2y ago
      Indeed she was not apparently getting much better until she got the nerve block procedure a few months ago.
  - omnibrain 2y ago
    The state of all things Me/CFS is so bad. I remember reading about cases as a child in some boulevard or women’s magazine at my grandmas house, so it must have been about 25 years ago. Seemingly nothing happened since then. Even the explosion of cases after Covid hit somehow doesn’t lead to change. In Germany many doctors still don’t know it, a lot of them think it’s psychological. There is some research, but it looks like the study of the promising compound „BC007“ got botched by bad study design, so even after some very promising results in some participants it is likely to get scrapped. „Hidden disease“ fits it so well, because the people affected „just disappear“, too weak advocating for themselves and with potentially every activity leading to a crash.
    - Vampiero 2y ago
      > a lot of them think it’s psychological. no worse feeling in the world than hearing a doctor confidently tell you that it's all in your head and that you're wasting their time. Ask me how I know..
tednoob 2y ago
My sister had ME/CFS after she had a burnout after her second kid. She was never permanently bed ridden but sometimes had to spend days resting or recovering after strain. She's not well today, but much better than at her worst. There wasn't really an accepted diagnose for it when my sister got it, and she had to fight to be recognised as sick. I do wish Dianna the best recovery and future progress.
triyambakam 2y ago
I would say we don't really know if it's so called Long COVID. I mean that I have taken care of an ME/CFS sufferer long before COVID was around. So it's a set of diseases grouped by their similar symptoms. Autism and ADHD seem similar in that regard
- proto-n 2y ago
  The "so called Long COVID" really just means "I got covid and I remain unwell in some way, long term". I'm not sure it needs to be questioned if those two qualifying things are given. Very well might be the same thing as ME/CFS, or might not, I don't think we have a conclusive answer yet about what causes either.
  - jdietrich 2y ago
    "Long COVID" encompasses several very distinct nosological categories, which makes it a difficult term to talk about. There are at least four distinct subtypes - people who had severe acute illness and suffered respiratory injury, people who had severe acute illness and suffered cardiovascular or renal injury, people who had a relatively mild acute illness but developed long-term neurological or musculoskeletal sequelae, and people who developed those latter symptoms during the COVID pandemic without actually being infected with COVID. All of those types of suffering are very real, but may have very different causes and require different treatments.
    - davidt84 2y ago
      Without knowingly being infected with COVID is probably a better way to phrase that.
      - jdietrich 2y ago
        https://journals.asm.org/doi/10.1128/spectrum.02537-22 https://journals.asm.org/doi/10.1128/spectrum.02537-22
        2y ago
_gnad_ 2y ago
Love her content, hope she recovers fully soon!
rpmisms 2y ago
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- miningape 2y ago
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- cl3misch 2y ago
  What is the connection between Long Covid and Terry Davis?
  - CGamesPlay 2y ago
    If I'm not mistaken, he was (among other things) an online stalker of the woman in the video.
  - rpmisms 2y ago
    Terry Davis adored physicsgirl. He would have been sad that she was sick, and happy she got better.
csours 2y ago
Anecdote: Back in October '24 I got Covid. My only symptom that stuck around was lack of taste on my tongue (NOT Anosmia, it's lack of salty/sweet/sour/bitter response on the tongue itself), but only on the right half of my tongue. It slowly got better, but last week I lost taste on that side of my tongue again. The taste is coming back again now. Anyway, I have no idea what's going on with me; it's not really severe enough to investigate further right now, and my case is only the tiniest part related to Dianna's.
- TomK32 2y ago
  Fungi infections can also mess with your taste.
- jesprenj 2y ago
  In circa 2022 I got covid and lost smell. First I couldn't smell the spices in the kitchen, but I thought nothing of it. But some days later, I couldn't smell WD-40. That's when I noticed I can't smell anything at all. My sense of smell never really recovered. After about a year, I could faintly smell menthol. Now I have to really try hard if I want to get some faint sense of smell, but a lot of time I just don't smell anything.
  - mavamaarten 2y ago
    I completely lost taste and smell around 2022 too. It wasn't like a clogged nose, I could absolutely not sense anything with my tongue and nose (except for touch). I read stories about it not coming back for some people and it absolutely shook me. At that moment I realized how much I love delicious food and that smell is a great indicator for things you might not expect (e.g. heat). It luckily fully came back in my case, but it took many months. But it was properly scary! So weird that a viral infection (that didn't even make me very sick) could have such long-lasting and potentially life-altering effects.
    - drooopy 2y ago
      I got covid once back in the summer of '22. I had high fever (40C) for two days but my taste and smell were gone for an entire month. Losing two of my five senses for so long was something I never want to experience again.
ivxvm 2y ago
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- alwa 2y ago
  Anyone who suffers from what? Why is St John’s Wort good for it? I will never watch this type of video, but it sure does sounds like whatever affected @physicsgirl was awfully serious if it left her non-ambulatory for multiple years. It sounds like maybe you’ve had a positive experience that you might be willing to elaborate on?
  - Vampiero 2y ago
    [flagged]
    - bilekas 2y ago
      > And what's with this HN pattern of acting all innocuous and going "uh... care to elaborate a little further? hmm?? hm???" The 'pattern' is that comments are supposed to provide some value and not just generic statements. The HN community overall doesn't want the comment section to turn into a Facebook comment style section. So if you're going to comment, at least have something to back it up or give something that contributes to the quality of the discussion.
      - _joel 2y ago
        Ironically they posted, 2 days ago.. "Cool story but at least try to give some argumentation when you say stuff like: >The design of the language in Dockerfile is ad hoc in a bad way. It’s difficult to understand, for me, and easy to make mistakes. Because that reads like a skill issue to me"
        Vampiero 2y ago
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    - ralfd 2y ago
MeruMeru 2y ago
Happy for her, hopefully her recovery will keep progressing
jjallen 2y ago
So great to see and hear. I honestly did not think this was going to improve and expected the worst. Very glad to see otherwise. Unfortunately I experienced a similar thing though much milder and shorter last summer. Hope we can figure out viruses better soon!
- y-curious 2y ago
  For the sake of society, let's hope it's "let's figure out how to defend against viruses soon" and not "let's figure out how to make more fun gain-of-function viruses!"
bschne 2y ago
:')
user568439 2y ago
Long Covid (probably a form of ME/CFS triggered by Covid) is one of the worse diseases one can get. It invalidates you as a person physically and mentally and there are no solutions around. At the same time you are gaslighted by doctors and people because there is no clear diagnosis. My wife is already on her 3rd year and I just could witness first hand how shallow is the knowledge of most doctors, how they have zero curiosity or enthusiasm to help and especially in Europe, how are they extremely averse to try anything with the "do not harm" in mind. They think that doing nothing is better than trying a non-approved treatment and I'll put an example. My wife had a respiratory tract infection back in October which probably got while going to the GP by the way. With Long Covid her immune system seems very compromised, she never leaves home if it's not imperative because even with a wheelchair is too much effort. I don't attend almost any social event and I take a lot of precautions. Anyway, with the infection she was coughing blood for 3 days and then she was unable to breath properly, having drops of oxygen saturation down to 86% and waking up breathless in the middle of the night. She documented her symptoms very well including her saturation measurements. The GP just told her to wait for a few weeks for full recovery and everything will be back to normal and he literally said he had no time to read her notes. She asked please to get an oxygen concentrator or at least be sent to a pulmonologist. This request was denied and of course the only option she had was to buy the concentrator on her own which helped a ton. Probably if she got it the 1st year she would be much better by now. She is taking like 10 supplements and medications, she is using infrared light, oxygen concentrator, wheelchair, special pillows, asthma inhaler, etc... All this helps her to have a bearable existence but guess what, not a single thing was proposed and prescribed by the doctors. Almost everything she takes is based on small studies from internet and experiences from patients. Mostly from the USA where doctors are much more open minded and willing to take risks which is necessary when your default baseline is almost like being a tetraplegic with dementia and chronic pain. She has to get pretty harmless drugs like Sulodexide (a blood thinner) from other countries in a shady way because the Doctors in the Netherlands won't even prescribe this. There is some progress in diagnosis or biomarkers detection and some promising studies for cures like monoclonal antibodies, antivirals and others. But meanwhile it's a pure nightmare to live with Long Covid.
- the-dude 2y ago
dpz 2y ago
One of my dearest friends suffers from ME/CFS - she's been bed ridden for 3 years now. Any stimulation is just so painful her. Seeing Dianna actually able to get out of bed has brought a bit of hope back into my life
- 123nameuser 2y ago
  Check out Midwestern Doctor blog posts. Seems to turn every possible stone to get healthy results. Changed my thinking a lot https://www.midwesterndoctor.com/ https://www.midwesterndoctor.com/
sneedle 2y ago
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- cung 2y ago
  What does this even mean
  - mateus1 2y ago
    Some kind of trolling, I assume. Diana is not trans.
    - deleted 2y ago
      [deleted]
pvhk 2y ago
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tunn3l 2y ago
I'm 22 years old and suffer from Long COVID for 3 years now. I've written a bout my experience on my blog: https://tunn3l.pro https://tunn3l.pro. although not bedridden, my life got totally flipped upside down. I just want to live a normal live again. To all ME/CFS and LC sufferers: Don't give up!
- jddj 2y ago
  You write very well, and there are some nice insights in there. I clicked through out of curiosity but ended up reading a lot.
- krageon 2y ago
  I have had the same issue for about as long and it's been a bear of a time to get anything done with it. Kudo's to you for taking a trip to have a treatment that might work done! It is very hard to take a lot of initiative and keep pushing (at least for me) with long covid.
- penjelly 2y ago
  Hi, I couldn't glean from the articles. But it sounds like you have breathing issues from long covid? it may sound ridiculous, but I developed gluten/lactose sensitivity during covid times. If I avoid gluten, lactose, canola oil I get far fewer symptoms. I know this likely isn't your issue but I do experience positive airway pressure, coughing, burping, chronic fatigue, exessive yawning. If that sounds like you maybe a dietary intolerance could be worth checking. For what it's worth, no doctors could diagnose me, they thought I had heartburn or "its in your head". It wasn't, cutting those things out did actually help enormously.
  - qiine 2y ago
    > "its in your head" insane that it's still so common...
    - dylan604 2y ago
      Seems to me like that would be the number one offered advice when you get less than five minutes of time with a doctor under typical US doctor visits. Seems like a very convenient way to cycle patients through faster. The only downside is there's not really any scripts you can write which lowers your quota for which ever bigPharma the doctor has sold their soul
BargirPezza 2y ago
I have been burnt out for almost three years now, was mostly bedridden at first but I can do much more now. I can do moderate training 1-2 times a week, go out to get socialization 1-2 times a week and do much more at home. So it have gotten better, just a very slow pace and it's really hard. You have to learn to know when you have to rest and when to push yourself and that line can be super thin. Not good to do too much and not too little, very hard to read signals imo. Hopefully we will see more breakthrough in understanding and reading the signals of the body in the future
aaron695 2y ago
[dead]
aquir 2y ago
I’m following her progress on Patreon and the fact that she’s getting better is great! Can’t wait her comeback video!
- dataengineer56 2y ago
  I find it interesting that she's both kept her Patreon up during this time and has also become far more successful https://graphtreon.com/creator/physicsgirl https://graphtreon.com/creator/physicsgirl, in spite of posting no content.
  - TreetopPlace 2y ago
    This is honestly shocking and I don't know how to process this information.
    - viraptor 2y ago
      Why is that shocking? Her existing subscribers continued to support her, but also multiple other famous youtubers talked about her which got her new attention/subscribers. I've seen at least 3 other channels giving her a dedicated video and YouTube is still serving me her shorts.
      - lupire 2y ago
        Subscriber is the technical term but really it's donor, because they aren't paying for access to new work product. Most people who suffer a GoFundMe-type catastrophe don't attract new long-term financial backers over time.
    - xyst 2y ago
      What’s more “shocking” is how these services (patreon,gofundme) essentially acts as long term disability and health insurance plans. American healthcare is a massive price fixing scam and a complete joke.
    - gadders 2y ago
Tade0 2y ago
That's great to hear. I remember Simone Giertz breaking out the bad news to her followers and sounding no less serious than when she was talking about her own brain surgery. My former co-worker got COVID twice, as preventive measures didn't fit into his moral framework, and the second time resulted in a mild case of long COVID. I'm saying "mild" as he was not bedridden, but the cognitive decline was noticeable. Long COVID is no joke and seriously affect one's work as well private life.
- deleted 2y ago
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- bigolkevin 2y ago
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  - looofooo0 2y ago
    Cannot speak for the person before, but I gave up on any protection. With 3 children from 3-10 it will catch me anyhow.
    - techcode 2y ago
      And while kids often end up with just headache and slight fever that goes away after a day - adults end with at least proper flu (e.g. higher fever, joints/muscle pain ...) for a week or two.
    - 2muchcoffeeman 2y ago
      The tragedy isn’t that we don’t wear masks routinely, it’s that people think they have a right to infect anyone because of their own sense of personal freedom. Immediately when restrictions ended here, you could be in a large department store or supermarket and hear people coughing badly, or sneezing. If you know you feel under the weather, pop on a mask. But no, “freedom”, “it’s a conspiracy”. I swear “freedom” is just short hand for “I’m an asshole”.
      - 2y ago
afh1 2y ago
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- lsaferite 2y ago
  Do we know the exact origins of every virus? Does it matter in the grand scheme? Perhaps it helps in developing treatments, but I would question what specific advantages you get knowing the exact origin of a mutating virus with multiple strains. I guess my point is that it seems like our time would be better spent developing treatments and protections against this and future pandemics instead.
  - afh1 2y ago
    Understanding the origin is the most critical piece of information to avoid future pandemics. Current data is inconclusive even for the most basic questions, such as the origin being natural or not, which very much matters, but investigation efforts are actively suppressed. Or at least I would think it matters, you and everyone else do not seem to care.
mywrathacademia 2y ago
I have neurological abd muscular issues after covid
2-3-7-43-1807 2y ago
I'm also experiencing mild but annoying symptoms resembling arthritis and chronic fatigue since my corona vaccinations (biontech/pfizer).
- thro1 2y ago
  Fully armed spikes (or it's pieces) which are multifunction weapon with unknown mechanisms and side effects.. as a remedy ? - it's like fighting a fire with a fire - but there _was_ some advise to avoid physical activity after vaccination as it could keep that fire only in the muscle - ignoring that more or less of the vaccine will be moved with the blood and do random unknown damage anyway.. to be studied later what maybe could be avoided, "saving" on costs of that half baked experiment needed to make a way to use of "newer, better" vaccines :/
anshumankmr 2y ago
my heart skipped a beat reading her name, thought something untoward happened but good to see she is back on her feet, literally. I donated a couple of bucks when that video of her illness came out. Very happy to see she is better now.
teebSQAD9 2y ago
I’ve had long covid for a couple of years now. It’s a really difficult disease, in part because different people react very differently, and there may even be multiple mechanisms so it’s not exactly a single disease. What has really helped me has been wearing a nicotine patch occasionally. I was never a smoker, but I came across this very small study [1] and thought it was worth a go because a) I was getting desperate and b) nicotine in such low doses is not that risky (7mg patch, worn for 2 weeks). I know there’s counter-studies suggesting nicotine doesn’t help with resistance. My experience is anecdotal, but I saw rapid improvement in cognition and fatigue level (particularly post-exercise). My guess is that for some people the particular mechanism behind their long covid is one that this can help with, but not for everyone. [1] https://pubmed.ncbi.nlm.nih.gov/36650574/ https://pubmed.ncbi.nlm.nih.gov/36650574/
- armchairdweller 2y ago
  That nicotine patches help with focus is no surprise if you have been naive to nicotine before. I have been using patches on and off (like years of no usage in-between) for focus, and 7mg is actually a lot. Is there anything indicating that it is not just the effect of nicotine, and truly helps against whatever lingers inside your body (the spike protein)? Given other people around me talking about treating their long covid with nicotine since it went through social media last year, I suppose you don't know about / didn't try the Natto (nattokinase) [1] / NAC route [2] (for which there were early studies showing they can dissolve the SARS-Cov2 spike protein)..? Or does the community consider that a dead end by now? That there is a political echo chamber-driven division between those routes is a bit strange and dangerous, isn't it. With nicotine you will need to be careful about its effects on blood pressure, and it would be better to not even think about vaping (some of the flavoured products could be equally/more addictive to/than cigarettes [3]). [1] https://pmc.ncbi.nlm.nih.gov/articles/PMC9458005/ https://pmc.ncbi.nlm.nih.gov/articles/PMC9458005/ [2] https://pmc.ncbi.nlm.nih.gov/articles/PMC9663386/ https://pmc.ncbi.nlm.nih.gov/articles/PMC9663386/ [3] https://pubmed.ncbi.nlm.nih.gov/31536738/ https://pubmed.ncbi.nlm.nih.gov/31536738/
  - teebSQAD9 2y ago
    Good questions, and I don’t have great answers. 7mg was the weakest patch I could get at a pharmacy (in the UK), and as I understand it that’s the release over 24 hours; I wore them only during the day so it’s a lower dose. If it’s proportional it’s ~5mg, which is 2-3 cigarettes, but cigarettes deliver it much faster, I believe. I have since spoken to a doctor who suggested that if I relapse I should cut them in half to lower the dose. Did you do something like that? The main reasons I think it had more than just a concentration-enhancing effect are a) the effect after 2 weeks of patches seems to be long-lasting (months, at least) and b) my post-exertional fatigue, which was fairly severe (going for a light jog would leave me partially bedridden for a couple of days) has also gone. But to be fair, if the fatigue is caused by nervous system dysregulation then perhaps that somehow accounts for it, and it’s equally possible both these effects will wear off in time. I have not seen nattokinase mentioned before, thanks. Interesting that, aside from the effect on the spike protein, it’s also supposed to help prevent blood clots. A friend with long covid was enrolled in a study which treated micro blood clots and she saw significant improvement from that. But I was tested a couple of times for micro blood clots and it came back negative, so again I think the long covid mechanism is not consistent.
tbriudmepn 2y ago
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nsheodk8372 2y ago
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smallerfish 2y ago
Since it hasn't been mentioned yet, I had two debilitating flare ups of EBV (Epstein Barr Virus) post covid. It's commonly latent (apparently 90% of humans carry it) and will opportunistically flare up when the immune system is compromised. It commonly causes mono in teenagers, but more generally will cause crushing fatigue and related symptoms. There are no known cures, but plenty of things you can do to support the immune system. It can be detected with a blood test. If you think you have long covid, get an EBV test - might help.
deleted 2y ago
[deleted]
jwr 2y ago
This is such great news! The best news of my day. She is standing in a brightly lit room and smiling! This is so much better than her condition before. Keeping my fingers crossed for a quick recovery!
declan_roberts 2y ago
I was expecting some paralyzed person walking but it's just a video of someone with chronic fatigue syndrome standing up.
perching_aix 2y ago
Really happy for her. Any details about what resulted in this breakthrough? Checked the video comments / description but didn't see anything.
garganzol 2y ago
We already had deeply insightful discussions on this topic here, but I will repeat for new HN people. Covid-19 tends to cause post-viral complications, which manifest themselves as chronic fatigue, body temperature dysregulation, air hunger / shortness of breath with SpO2 of 99%, various neurological symptoms: pain/tingling/numbing sensations in the extremities, parosmia (a distorted sense of smell), parageusia (a distorted sense of taste), difficulties swallowing, cognitive decline. According to numerous trials and errors by different people, it was collectively concluded that the condition is caused by some kind of metabolic impairment that presumably affects the ability of mitochondria to produce the adequate levels of ATP. As a direct consequence of that insufficiency, the immune system gets activated and starts to attack body's own tissues. When this happens, the blood vessels start to develop micro-clotting, causing blood flow problems that exacerbate metabolic issues even further. Additional tell signs are increased HOMA-IR and/or triglycerides in the blood work, suggesting that cells of the body cannot utilize the nutrient substrates in full. This represents a vicious cycle of a typical post-Covid pathology. The good news is that it can be treated and healed. The bad news is that it may take some time (months, years) and will power, while medical workers around the corner have no clue. The core of therapy consists of a light immunosuppression in conjunction with therapeutical doses of specific vitamins and vitamin-like substances, all being supported with minerals, vitamin-rich diet, good rest, good sleep, mild physical and mental activities every day. For those people who still suffering from it, I am putting a link to a site [0] that aggregates some first-hand evidences and research information. A usual note of caution is that every situation is different and you should consult your doctor. [0] https://hormonesmatter.com/?s=covid https://hormonesmatter.com/?s=covid Edit: "collectively concluded" is used in the sense that post-covid suffers were able to gain observable improvements in their condition being "a collective of people" suffering from post-covid.
- throw38489595 2y ago
  Some people have high levels of COVID-19 spike protein, long after main infection is gone. There is very easy way to test for it. Some retroviruses like HIV are able to modify DNA, and embed themselves into cells permanently. Perhaps COVID-19 is doing something similar! It would be nice to do DNA scan, for sequences that produce spike proteins, on people with long COVID symptoms!
nelblu 2y ago
Big fan here, just came to say Happy Physicsing :) and get well soon Diana :). Also happy to see her being discussed on HN.
_zagj 2y ago
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- garganzol 2y ago
  One hallmark sign of a post-covid malaise is that your body stays capable way longer than your neurological and cognitive functions. While you have expressed healthy grains of doubt, the case of Dianna goes in line with a post-covid progression. Not being able to get out of the bed means that she physically could do it from time to time for sure, but her brain could not reliably cope with navigational tasks, so she was risking sudden falls and further traumatization. Add the extreme fatigue every such exercise had caused. It is not exactly a bedridden condition, you are right, but it is bed-attached for sure. It is not a "psycho" part of the illness as you view it. It is an organic condition caused by metabolic and immunological derangements occurring in the body of a post-covid patient. You are not alone in your views, many medical doctors make the same judgements when they see post-covid patients for the first time. In their world, it is always an organic/psycho separation, but when the underlying metabolic mechanisms are impaired, you get the full spectrum of manifestations. You provided good points though, something I did not think about.
  - _zagj 2y ago
    I appreciate you at least responding, but it's clear that you were offended by me expressing skepticism about a specific person claiming to be a COVID long hauler, who directly profits from doing so, and who presents a purported symptomology that contradicts human physiology and exercise science, despite me bending over backwards to be tactful regarding the subject of long COVID. Do you really want this person being your poster child?
    - garganzol 2y ago
      I am not offended at all, mind you. In reverse, I applaud to your criticism because it gives a fresh perspective, so I upvoted your post :) The only mistake you make is believing that there is a significant psy component in it, and that a human body and its biochemistry is a mechanical Newtonian-like macro-world apparatus. Peace, take care.
hypochondriact 2y ago
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ginkgotree 2y ago
I've been following her and rooting for her along with thousands of others, and reading this just now made me smile and tear up a little. I'm so happy for her!
cpncrunch 2y ago
Here is a site with a lot of long covid recovery stories: https://www.longcovidcured.com/ https://www.longcovidcured.com/
clove 2y ago
Terry Davis would be pleased.
drannex 2y ago
I've mentioned it before on here, but I will do it again, after a COVID infection in '22 (25yo), I was left with complete lung collapse, an infection of the heart, and pneumonia. The doctors were adamant that if I were five years older, I would have been dead before reaching the hospital. After numerous emergency surgeries, a month in the hospital while in the most pain I have ever been in, unable to eat or drink the entire time, and losing the ability to breath on my own for that entire duration - I can't stand the people who suggest to me that covid wasn't real, or didn't cause any problems. It took me six months to relearn _how to walk_ because of it. I was skateboarding just weeks prior to all this. I still can't run, skateboard, or go up a flight of stairs without really feeling it. Some days are better than others. My fatigue levels are astronomical. As /u/tunn3l said at the end of their comment: To all ME/CFS and LC sufferers: Don't give up!
stuckindoors 2y ago
I had taken care of patients with acute disseminated encephalomyelitis (ADEM) post influenza infection. His neuro symptoms included sz, confusion. On routine testing by the dietitian he was noted to have a very low vitamin d level. Although very anecdotal- I have always believed that autoimmune conditions post viral syndromes are exacerbated by low vitamin D levels. Have any you with long covid been tested for vitamin D levels? For any of you did vitamin d supplements help?
Avlin67 2y ago
she do not look the same

783 points by m348e912 2y ago

aucisson_masque 2y ago

[flagged]

davidt84 2y ago
No, not everyone is as lacking in empathy as you.
lupusreal 2y ago
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- kvdveer 2y ago
  "Ignore your illness, and just keep working" is not a viable course of action, especially not with long-covid, speaking from experience here. In third-world countries without a socialized healthcare, this simply means these people work themselves to death, starve themselves to death, or need to rely on others for their survival. It is an absurd illusion that one can just ignore a serious health issue this way. Or, in language a non-empath like you you would comprehend: the world is better off without your opinion.
  - trompetenaccoun 2y ago
    I live in Kenya and have not heard of a single person who got "long covid", or knows someone who does. It has nothing to do with working oneself to death as you imagine, this is a phenomenon that does not exist outside a certain social bubble. You say you speak from experience. What exactly is your third world experience based on?
    - lupusreal 2y ago
      Post-viral fatigue definitely happens in Africa, but only very privileged people with the means to lay around doing nothing will allow it to knock them down so hard they literally don't stand up once in two years. Post-viral fatigue to this degree is a phenomenon of the idle upper class. It doesn't paralyze you, it just makes you tired and miserable. Normal people push through and carry on, because they must.
      - davidt84 2y ago
        Or they die.
        lupusreal 2y ago
        From long covid? And because they didn't go two years without standing? You can't really believe this. Going outside would not kill her. Choosing to stay in bed for two years has done her far more damage. Staying in bed is worse for you than hard drugs.
        aucisson_masque 2y ago
        Unless you got cold fever and you're literally too frozen to get outside, or you got your leg broken, there is absolutely no way you wouldn't get out at the very least once a day. I believe it's a mix of depression and lack of will, being hungry and having nothing to eat is the best way to make someone get back on his feet. It happens everyday with the lower class, but people in the top of society don't feel that very often, or even at all.

pogue 2y ago

What was wrong with her? Some type of long Covid or something?

nickhodge 2y ago
Severe ME/CFS. I am a carer for my wife who has this forgotten & hidden disease. I am so glad Physics Girl is getting better with rest!
- tednoob 2y ago
  It seems it is not just rest but that she had some procedure done as well. https://youtube.com/shorts/ndhu7uo3PrI?si=pPzpDk4lLw3eRf0j https://youtube.com/shorts/ndhu7uo3PrI?si=pPzpDk4lLw3eRf0j
  - FlyingAvatar 2y ago
    Indeed she was not apparently getting much better until she got the nerve block procedure a few months ago.
- omnibrain 2y ago
  The state of all things Me/CFS is so bad. I remember reading about cases as a child in some boulevard or women’s magazine at my grandmas house, so it must have been about 25 years ago. Seemingly nothing happened since then. Even the explosion of cases after Covid hit somehow doesn’t lead to change. In Germany many doctors still don’t know it, a lot of them think it’s psychological. There is some research, but it looks like the study of the promising compound „BC007“ got botched by bad study design, so even after some very promising results in some participants it is likely to get scrapped. „Hidden disease“ fits it so well, because the people affected „just disappear“, too weak advocating for themselves and with potentially every activity leading to a crash.
  - Vampiero 2y ago
    > a lot of them think it’s psychological. no worse feeling in the world than hearing a doctor confidently tell you that it's all in your head and that you're wasting their time. Ask me how I know..

tednoob 2y ago

My sister had ME/CFS after she had a burnout after her second kid. She was never permanently bed ridden but sometimes had to spend days resting or recovering after strain. She's not well today, but much better than at her worst. There wasn't really an accepted diagnose for it when my sister got it, and she had to fight to be recognised as sick. I do wish Dianna the best recovery and future progress.

triyambakam 2y ago

I would say we don't really know if it's so called Long COVID. I mean that I have taken care of an ME/CFS sufferer long before COVID was around. So it's a set of diseases grouped by their similar symptoms. Autism and ADHD seem similar in that regard

proto-n 2y ago
The "so called Long COVID" really just means "I got covid and I remain unwell in some way, long term". I'm not sure it needs to be questioned if those two qualifying things are given. Very well might be the same thing as ME/CFS, or might not, I don't think we have a conclusive answer yet about what causes either.
- jdietrich 2y ago
  "Long COVID" encompasses several very distinct nosological categories, which makes it a difficult term to talk about. There are at least four distinct subtypes - people who had severe acute illness and suffered respiratory injury, people who had severe acute illness and suffered cardiovascular or renal injury, people who had a relatively mild acute illness but developed long-term neurological or musculoskeletal sequelae, and people who developed those latter symptoms during the COVID pandemic without actually being infected with COVID. All of those types of suffering are very real, but may have very different causes and require different treatments.
  - davidt84 2y ago
    Without knowingly being infected with COVID is probably a better way to phrase that.
    - jdietrich 2y ago
      https://journals.asm.org/doi/10.1128/spectrum.02537-22 https://journals.asm.org/doi/10.1128/spectrum.02537-22
      - 2y ago

_gnad_ 2y ago

Love her content, hope she recovers fully soon!

rpmisms 2y ago

[flagged]

miningape 2y ago
[flagged]
cl3misch 2y ago
What is the connection between Long Covid and Terry Davis?
- CGamesPlay 2y ago
  If I'm not mistaken, he was (among other things) an online stalker of the woman in the video.
- rpmisms 2y ago
  Terry Davis adored physicsgirl. He would have been sad that she was sick, and happy she got better.

csours 2y ago

Anecdote: Back in October '24 I got Covid. My only symptom that stuck around was lack of taste on my tongue (NOT Anosmia, it's lack of salty/sweet/sour/bitter response on the tongue itself), but only on the right half of my tongue. It slowly got better, but last week I lost taste on that side of my tongue again. The taste is coming back again now. Anyway, I have no idea what's going on with me; it's not really severe enough to investigate further right now, and my case is only the tiniest part related to Dianna's.

TomK32 2y ago
Fungi infections can also mess with your taste.
jesprenj 2y ago
In circa 2022 I got covid and lost smell. First I couldn't smell the spices in the kitchen, but I thought nothing of it. But some days later, I couldn't smell WD-40. That's when I noticed I can't smell anything at all. My sense of smell never really recovered. After about a year, I could faintly smell menthol. Now I have to really try hard if I want to get some faint sense of smell, but a lot of time I just don't smell anything.
- mavamaarten 2y ago
  I completely lost taste and smell around 2022 too. It wasn't like a clogged nose, I could absolutely not sense anything with my tongue and nose (except for touch). I read stories about it not coming back for some people and it absolutely shook me. At that moment I realized how much I love delicious food and that smell is a great indicator for things you might not expect (e.g. heat). It luckily fully came back in my case, but it took many months. But it was properly scary! So weird that a viral infection (that didn't even make me very sick) could have such long-lasting and potentially life-altering effects.
  - drooopy 2y ago
    I got covid once back in the summer of '22. I had high fever (40C) for two days but my taste and smell were gone for an entire month. Losing two of my five senses for so long was something I never want to experience again.

ivxvm 2y ago

[flagged]

alwa 2y ago
Anyone who suffers from what? Why is St John’s Wort good for it? I will never watch this type of video, but it sure does sounds like whatever affected @physicsgirl was awfully serious if it left her non-ambulatory for multiple years. It sounds like maybe you’ve had a positive experience that you might be willing to elaborate on?
- Vampiero 2y ago
  [flagged]
  - bilekas 2y ago
    > And what's with this HN pattern of acting all innocuous and going "uh... care to elaborate a little further? hmm?? hm???" The 'pattern' is that comments are supposed to provide some value and not just generic statements. The HN community overall doesn't want the comment section to turn into a Facebook comment style section. So if you're going to comment, at least have something to back it up or give something that contributes to the quality of the discussion.
    - _joel 2y ago
      Ironically they posted, 2 days ago.. "Cool story but at least try to give some argumentation when you say stuff like: >The design of the language in Dockerfile is ad hoc in a bad way. It’s difficult to understand, for me, and easy to make mistakes. Because that reads like a skill issue to me"
      - Vampiero 2y ago
        [flagged]
  - ralfd 2y ago

MeruMeru 2y ago

Happy for her, hopefully her recovery will keep progressing

jjallen 2y ago

So great to see and hear. I honestly did not think this was going to improve and expected the worst. Very glad to see otherwise. Unfortunately I experienced a similar thing though much milder and shorter last summer. Hope we can figure out viruses better soon!

y-curious 2y ago
For the sake of society, let's hope it's "let's figure out how to defend against viruses soon" and not "let's figure out how to make more fun gain-of-function viruses!"

bschne 2y ago

:')

user568439 2y ago

Long Covid (probably a form of ME/CFS triggered by Covid) is one of the worse diseases one can get. It invalidates you as a person physically and mentally and there are no solutions around. At the same time you are gaslighted by doctors and people because there is no clear diagnosis. My wife is already on her 3rd year and I just could witness first hand how shallow is the knowledge of most doctors, how they have zero curiosity or enthusiasm to help and especially in Europe, how are they extremely averse to try anything with the "do not harm" in mind. They think that doing nothing is better than trying a non-approved treatment and I'll put an example. My wife had a respiratory tract infection back in October which probably got while going to the GP by the way. With Long Covid her immune system seems very compromised, she never leaves home if it's not imperative because even with a wheelchair is too much effort. I don't attend almost any social event and I take a lot of precautions. Anyway, with the infection she was coughing blood for 3 days and then she was unable to breath properly, having drops of oxygen saturation down to 86% and waking up breathless in the middle of the night. She documented her symptoms very well including her saturation measurements. The GP just told her to wait for a few weeks for full recovery and everything will be back to normal and he literally said he had no time to read her notes. She asked please to get an oxygen concentrator or at least be sent to a pulmonologist. This request was denied and of course the only option she had was to buy the concentrator on her own which helped a ton. Probably if she got it the 1st year she would be much better by now. She is taking like 10 supplements and medications, she is using infrared light, oxygen concentrator, wheelchair, special pillows, asthma inhaler, etc... All this helps her to have a bearable existence but guess what, not a single thing was proposed and prescribed by the doctors. Almost everything she takes is based on small studies from internet and experiences from patients. Mostly from the USA where doctors are much more open minded and willing to take risks which is necessary when your default baseline is almost like being a tetraplegic with dementia and chronic pain. She has to get pretty harmless drugs like Sulodexide (a blood thinner) from other countries in a shady way because the Doctors in the Netherlands won't even prescribe this. There is some progress in diagnosis or biomarkers detection and some promising studies for cures like monoclonal antibodies, antivirals and others. But meanwhile it's a pure nightmare to live with Long Covid.

the-dude 2y ago

dpz 2y ago

One of my dearest friends suffers from ME/CFS - she's been bed ridden for 3 years now. Any stimulation is just so painful her. Seeing Dianna actually able to get out of bed has brought a bit of hope back into my life

123nameuser 2y ago
Check out Midwestern Doctor blog posts. Seems to turn every possible stone to get healthy results. Changed my thinking a lot https://www.midwesterndoctor.com/ https://www.midwesterndoctor.com/

sneedle 2y ago

[flagged]

cung 2y ago
What does this even mean
- mateus1 2y ago
  Some kind of trolling, I assume. Diana is not trans.
  - deleted 2y ago
    [deleted]

pvhk 2y ago

[flagged]

tunn3l 2y ago

I'm 22 years old and suffer from Long COVID for 3 years now. I've written a bout my experience on my blog: https://tunn3l.pro https://tunn3l.pro. although not bedridden, my life got totally flipped upside down. I just want to live a normal live again. To all ME/CFS and LC sufferers: Don't give up!

jddj 2y ago
You write very well, and there are some nice insights in there. I clicked through out of curiosity but ended up reading a lot.
krageon 2y ago
I have had the same issue for about as long and it's been a bear of a time to get anything done with it. Kudo's to you for taking a trip to have a treatment that might work done! It is very hard to take a lot of initiative and keep pushing (at least for me) with long covid.
penjelly 2y ago
Hi, I couldn't glean from the articles. But it sounds like you have breathing issues from long covid? it may sound ridiculous, but I developed gluten/lactose sensitivity during covid times. If I avoid gluten, lactose, canola oil I get far fewer symptoms. I know this likely isn't your issue but I do experience positive airway pressure, coughing, burping, chronic fatigue, exessive yawning. If that sounds like you maybe a dietary intolerance could be worth checking. For what it's worth, no doctors could diagnose me, they thought I had heartburn or "its in your head". It wasn't, cutting those things out did actually help enormously.
- qiine 2y ago
  > "its in your head" insane that it's still so common...
  - dylan604 2y ago
    Seems to me like that would be the number one offered advice when you get less than five minutes of time with a doctor under typical US doctor visits. Seems like a very convenient way to cycle patients through faster. The only downside is there's not really any scripts you can write which lowers your quota for which ever bigPharma the doctor has sold their soul

BargirPezza 2y ago

I have been burnt out for almost three years now, was mostly bedridden at first but I can do much more now. I can do moderate training 1-2 times a week, go out to get socialization 1-2 times a week and do much more at home. So it have gotten better, just a very slow pace and it's really hard. You have to learn to know when you have to rest and when to push yourself and that line can be super thin. Not good to do too much and not too little, very hard to read signals imo. Hopefully we will see more breakthrough in understanding and reading the signals of the body in the future

aaron695 2y ago

[dead]

aquir 2y ago

I’m following her progress on Patreon and the fact that she’s getting better is great! Can’t wait her comeback video!

dataengineer56 2y ago
I find it interesting that she's both kept her Patreon up during this time and has also become far more successful https://graphtreon.com/creator/physicsgirl https://graphtreon.com/creator/physicsgirl, in spite of posting no content.
- TreetopPlace 2y ago
  This is honestly shocking and I don't know how to process this information.
  - viraptor 2y ago
    Why is that shocking? Her existing subscribers continued to support her, but also multiple other famous youtubers talked about her which got her new attention/subscribers. I've seen at least 3 other channels giving her a dedicated video and YouTube is still serving me her shorts.
    - lupire 2y ago
      Subscriber is the technical term but really it's donor, because they aren't paying for access to new work product. Most people who suffer a GoFundMe-type catastrophe don't attract new long-term financial backers over time.
  - xyst 2y ago
    What’s more “shocking” is how these services (patreon,gofundme) essentially acts as long term disability and health insurance plans. American healthcare is a massive price fixing scam and a complete joke.
  - gadders 2y ago

Tade0 2y ago

That's great to hear. I remember Simone Giertz breaking out the bad news to her followers and sounding no less serious than when she was talking about her own brain surgery. My former co-worker got COVID twice, as preventive measures didn't fit into his moral framework, and the second time resulted in a mild case of long COVID. I'm saying "mild" as he was not bedridden, but the cognitive decline was noticeable. Long COVID is no joke and seriously affect one's work as well private life.

deleted 2y ago
[deleted]
bigolkevin 2y ago
[flagged]
- looofooo0 2y ago
  Cannot speak for the person before, but I gave up on any protection. With 3 children from 3-10 it will catch me anyhow.
  - techcode 2y ago
    And while kids often end up with just headache and slight fever that goes away after a day - adults end with at least proper flu (e.g. higher fever, joints/muscle pain ...) for a week or two.
  - 2muchcoffeeman 2y ago
    The tragedy isn’t that we don’t wear masks routinely, it’s that people think they have a right to infect anyone because of their own sense of personal freedom. Immediately when restrictions ended here, you could be in a large department store or supermarket and hear people coughing badly, or sneezing. If you know you feel under the weather, pop on a mask. But no, “freedom”, “it’s a conspiracy”. I swear “freedom” is just short hand for “I’m an asshole”.
    - 2y ago

afh1 2y ago

[flagged]

lsaferite 2y ago
Do we know the exact origins of every virus? Does it matter in the grand scheme? Perhaps it helps in developing treatments, but I would question what specific advantages you get knowing the exact origin of a mutating virus with multiple strains. I guess my point is that it seems like our time would be better spent developing treatments and protections against this and future pandemics instead.
- afh1 2y ago
  Understanding the origin is the most critical piece of information to avoid future pandemics. Current data is inconclusive even for the most basic questions, such as the origin being natural or not, which very much matters, but investigation efforts are actively suppressed. Or at least I would think it matters, you and everyone else do not seem to care.

mywrathacademia 2y ago

I have neurological abd muscular issues after covid

2-3-7-43-1807 2y ago

I'm also experiencing mild but annoying symptoms resembling arthritis and chronic fatigue since my corona vaccinations (biontech/pfizer).

thro1 2y ago
Fully armed spikes (or it's pieces) which are multifunction weapon with unknown mechanisms and side effects.. as a remedy ? - it's like fighting a fire with a fire - but there _was_ some advise to avoid physical activity after vaccination as it could keep that fire only in the muscle - ignoring that more or less of the vaccine will be moved with the blood and do random unknown damage anyway.. to be studied later what maybe could be avoided, "saving" on costs of that half baked experiment needed to make a way to use of "newer, better" vaccines :/

anshumankmr 2y ago

my heart skipped a beat reading her name, thought something untoward happened but good to see she is back on her feet, literally. I donated a couple of bucks when that video of her illness came out. Very happy to see she is better now.

teebSQAD9 2y ago

I’ve had long covid for a couple of years now. It’s a really difficult disease, in part because different people react very differently, and there may even be multiple mechanisms so it’s not exactly a single disease. What has really helped me has been wearing a nicotine patch occasionally. I was never a smoker, but I came across this very small study [1] and thought it was worth a go because a) I was getting desperate and b) nicotine in such low doses is not that risky (7mg patch, worn for 2 weeks). I know there’s counter-studies suggesting nicotine doesn’t help with resistance. My experience is anecdotal, but I saw rapid improvement in cognition and fatigue level (particularly post-exercise). My guess is that for some people the particular mechanism behind their long covid is one that this can help with, but not for everyone. [1] https://pubmed.ncbi.nlm.nih.gov/36650574/ https://pubmed.ncbi.nlm.nih.gov/36650574/

armchairdweller 2y ago
That nicotine patches help with focus is no surprise if you have been naive to nicotine before. I have been using patches on and off (like years of no usage in-between) for focus, and 7mg is actually a lot. Is there anything indicating that it is not just the effect of nicotine, and truly helps against whatever lingers inside your body (the spike protein)? Given other people around me talking about treating their long covid with nicotine since it went through social media last year, I suppose you don't know about / didn't try the Natto (nattokinase) [1] / NAC route [2] (for which there were early studies showing they can dissolve the SARS-Cov2 spike protein)..? Or does the community consider that a dead end by now? That there is a political echo chamber-driven division between those routes is a bit strange and dangerous, isn't it. With nicotine you will need to be careful about its effects on blood pressure, and it would be better to not even think about vaping (some of the flavoured products could be equally/more addictive to/than cigarettes [3]). [1] https://pmc.ncbi.nlm.nih.gov/articles/PMC9458005/ https://pmc.ncbi.nlm.nih.gov/articles/PMC9458005/ [2] https://pmc.ncbi.nlm.nih.gov/articles/PMC9663386/ https://pmc.ncbi.nlm.nih.gov/articles/PMC9663386/ [3] https://pubmed.ncbi.nlm.nih.gov/31536738/ https://pubmed.ncbi.nlm.nih.gov/31536738/
- teebSQAD9 2y ago
  Good questions, and I don’t have great answers. 7mg was the weakest patch I could get at a pharmacy (in the UK), and as I understand it that’s the release over 24 hours; I wore them only during the day so it’s a lower dose. If it’s proportional it’s ~5mg, which is 2-3 cigarettes, but cigarettes deliver it much faster, I believe. I have since spoken to a doctor who suggested that if I relapse I should cut them in half to lower the dose. Did you do something like that? The main reasons I think it had more than just a concentration-enhancing effect are a) the effect after 2 weeks of patches seems to be long-lasting (months, at least) and b) my post-exertional fatigue, which was fairly severe (going for a light jog would leave me partially bedridden for a couple of days) has also gone. But to be fair, if the fatigue is caused by nervous system dysregulation then perhaps that somehow accounts for it, and it’s equally possible both these effects will wear off in time. I have not seen nattokinase mentioned before, thanks. Interesting that, aside from the effect on the spike protein, it’s also supposed to help prevent blood clots. A friend with long covid was enrolled in a study which treated micro blood clots and she saw significant improvement from that. But I was tested a couple of times for micro blood clots and it came back negative, so again I think the long covid mechanism is not consistent.

tbriudmepn 2y ago

[flagged]

nsheodk8372 2y ago

[flagged]

smallerfish 2y ago

Since it hasn't been mentioned yet, I had two debilitating flare ups of EBV (Epstein Barr Virus) post covid. It's commonly latent (apparently 90% of humans carry it) and will opportunistically flare up when the immune system is compromised. It commonly causes mono in teenagers, but more generally will cause crushing fatigue and related symptoms. There are no known cures, but plenty of things you can do to support the immune system. It can be detected with a blood test. If you think you have long covid, get an EBV test - might help.

deleted 2y ago

[deleted]

jwr 2y ago

This is such great news! The best news of my day. She is standing in a brightly lit room and smiling! This is so much better than her condition before. Keeping my fingers crossed for a quick recovery!

declan_roberts 2y ago

I was expecting some paralyzed person walking but it's just a video of someone with chronic fatigue syndrome standing up.

perching_aix 2y ago

Really happy for her. Any details about what resulted in this breakthrough? Checked the video comments / description but didn't see anything.

garganzol 2y ago

We already had deeply insightful discussions on this topic here, but I will repeat for new HN people. Covid-19 tends to cause post-viral complications, which manifest themselves as chronic fatigue, body temperature dysregulation, air hunger / shortness of breath with SpO2 of 99%, various neurological symptoms: pain/tingling/numbing sensations in the extremities, parosmia (a distorted sense of smell), parageusia (a distorted sense of taste), difficulties swallowing, cognitive decline. According to numerous trials and errors by different people, it was collectively concluded that the condition is caused by some kind of metabolic impairment that presumably affects the ability of mitochondria to produce the adequate levels of ATP. As a direct consequence of that insufficiency, the immune system gets activated and starts to attack body's own tissues. When this happens, the blood vessels start to develop micro-clotting, causing blood flow problems that exacerbate metabolic issues even further. Additional tell signs are increased HOMA-IR and/or triglycerides in the blood work, suggesting that cells of the body cannot utilize the nutrient substrates in full. This represents a vicious cycle of a typical post-Covid pathology. The good news is that it can be treated and healed. The bad news is that it may take some time (months, years) and will power, while medical workers around the corner have no clue. The core of therapy consists of a light immunosuppression in conjunction with therapeutical doses of specific vitamins and vitamin-like substances, all being supported with minerals, vitamin-rich diet, good rest, good sleep, mild physical and mental activities every day. For those people who still suffering from it, I am putting a link to a site [0] that aggregates some first-hand evidences and research information. A usual note of caution is that every situation is different and you should consult your doctor. [0] https://hormonesmatter.com/?s=covid https://hormonesmatter.com/?s=covid Edit: "collectively concluded" is used in the sense that post-covid suffers were able to gain observable improvements in their condition being "a collective of people" suffering from post-covid.

throw38489595 2y ago
Some people have high levels of COVID-19 spike protein, long after main infection is gone. There is very easy way to test for it. Some retroviruses like HIV are able to modify DNA, and embed themselves into cells permanently. Perhaps COVID-19 is doing something similar! It would be nice to do DNA scan, for sequences that produce spike proteins, on people with long COVID symptoms!

nelblu 2y ago

Big fan here, just came to say Happy Physicsing :) and get well soon Diana :). Also happy to see her being discussed on HN.

_zagj 2y ago

[flagged]

garganzol 2y ago
One hallmark sign of a post-covid malaise is that your body stays capable way longer than your neurological and cognitive functions. While you have expressed healthy grains of doubt, the case of Dianna goes in line with a post-covid progression. Not being able to get out of the bed means that she physically could do it from time to time for sure, but her brain could not reliably cope with navigational tasks, so she was risking sudden falls and further traumatization. Add the extreme fatigue every such exercise had caused. It is not exactly a bedridden condition, you are right, but it is bed-attached for sure. It is not a "psycho" part of the illness as you view it. It is an organic condition caused by metabolic and immunological derangements occurring in the body of a post-covid patient. You are not alone in your views, many medical doctors make the same judgements when they see post-covid patients for the first time. In their world, it is always an organic/psycho separation, but when the underlying metabolic mechanisms are impaired, you get the full spectrum of manifestations. You provided good points though, something I did not think about.
- _zagj 2y ago
  I appreciate you at least responding, but it's clear that you were offended by me expressing skepticism about a specific person claiming to be a COVID long hauler, who directly profits from doing so, and who presents a purported symptomology that contradicts human physiology and exercise science, despite me bending over backwards to be tactful regarding the subject of long COVID. Do you really want this person being your poster child?
  - garganzol 2y ago
    I am not offended at all, mind you. In reverse, I applaud to your criticism because it gives a fresh perspective, so I upvoted your post :) The only mistake you make is believing that there is a significant psy component in it, and that a human body and its biochemistry is a mechanical Newtonian-like macro-world apparatus. Peace, take care.

hypochondriact 2y ago

[flagged]

ginkgotree 2y ago

I've been following her and rooting for her along with thousands of others, and reading this just now made me smile and tear up a little. I'm so happy for her!

cpncrunch 2y ago

Here is a site with a lot of long covid recovery stories: https://www.longcovidcured.com/ https://www.longcovidcured.com/

clove 2y ago

Terry Davis would be pleased.

drannex 2y ago

I've mentioned it before on here, but I will do it again, after a COVID infection in '22 (25yo), I was left with complete lung collapse, an infection of the heart, and pneumonia. The doctors were adamant that if I were five years older, I would have been dead before reaching the hospital. After numerous emergency surgeries, a month in the hospital while in the most pain I have ever been in, unable to eat or drink the entire time, and losing the ability to breath on my own for that entire duration - I can't stand the people who suggest to me that covid wasn't real, or didn't cause any problems. It took me six months to relearn _how to walk_ because of it. I was skateboarding just weeks prior to all this. I still can't run, skateboard, or go up a flight of stairs without really feeling it. Some days are better than others. My fatigue levels are astronomical. As /u/tunn3l said at the end of their comment: To all ME/CFS and LC sufferers: Don't give up!

stuckindoors 2y ago

I had taken care of patients with acute disseminated encephalomyelitis (ADEM) post influenza infection. His neuro symptoms included sz, confusion. On routine testing by the dietitian he was noted to have a very low vitamin d level. Although very anecdotal- I have always believed that autoimmune conditions post viral syndromes are exacerbated by low vitamin D levels. Have any you with long covid been tested for vitamin D levels? For any of you did vitamin d supplements help?

Avlin67 2y ago

she do not look the same