Shooter

16 ms·

91.
by Shooter 17y ago
That all said, here is how I found "the doctor": 1. I was persistent. I saw lots of doctors. The 22 number I mention in my post is mostly just the specialists I saw - not even all the general practitioners I visited. 2. If I were to r
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by Shooter 17y ago
I feel some people are focusing on the wrong thing, most likely because of my poor presentation. I'll try to answer your question, but I also want to elaborate a bit: In relaying my story, I kind of 'cast' the diagnosing physician(1) as th
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by Shooter 17y ago
That's actually a really good question, although the answer is controversial. There is great debate about whether any/all of these diseases are communicable, especially Lyme (because of its prevalence.) Anecdotally, there are many doctor
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by Shooter 17y ago
No, I understood. And I really appreciate your intentions. I just addressed the things that were most relevant to me in more detail. I do have congressman fight insurance companies on my behalf. But, I'm very lucky because of my wife
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by Shooter 17y ago
Thank you for your kindness, but I'm not brave. Guys like Hal Finney - in the original HN post that I'm ashamed to have drawn attention away from - are brave. I was just persistent...and then very lucky.
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by Shooter 17y ago
I tend to think some of the interesting bits are in the details, but - tptacek's very kind comment aside - I will try to summarize it all for you... A tragi-comedy in three acts. Starring 'Shooter', a nobody: Act I. Extreme Pain (many sym
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by Shooter 17y ago
As an example of how frustrating it is: to get treatment covered by a US insurer for some infections (like, say, Lyme) you usually have to have two different tests that both have positive results, in a specific order. You have to test p
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by Shooter 17y ago
There are literally thousands of people with similar stories that are more articulate - and less bitter and angry - than I am. And the media is slowly picking up on these issues. http://underourskin.com/blog/ recently mentioned, for exa
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by Shooter 17y ago
I've never written a book under my own name. I've started several successful companies in boring industries and I now mostly manage a private equity fund. Again, I'm nobody.
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by Shooter 17y ago
Yes. Several. (And I, of course, shouted, "It's not lupus. It's never lupus!") Seriously though, lupus and rheumatoid arthritis were some of the early diagnoses. Autoimmune stuff often fits the bill in these complex, mult-symptom ca
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by Shooter 17y ago
No. I had to stop working for some time, including resigning from all advisory and board roles. I was basically an invalid for a couple of years, and operated in a very diminished capacity for several years beyond that. Fortunately, I ha
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by Shooter 17y ago
Thanks. Sorry, but all of the doctors - both good and bad - must remain nameless. Some specifically requested privacy for obvious reasons (targeting by insurance companies, etc.) The final diagnosing physician isn't nationally prominent,
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by Shooter 17y ago
I'm nobody, dude. I put my username in the title because I was asked a question in another thread and couldn't think of a good title for my long answer. Sorry for the confusion.
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by Shooter 17y ago
Thanks for that. We're nervous about the baby, but I've improved enough I think I'll be fine if I'm very careful. And I've asked the biggest 'doubter' to buy us a helmet for the baby ;-) Congratulations to you and your husband.
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by Shooter 17y ago
Thanks. I did have a severe Vitamin D (hormone) deficiency and a B12 deficiency, etc. Both are apparently very common with many diseases...more often as a result rather than a cause (immune modulation, etc.) The Vitamin D supplementation
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by Shooter 17y ago
Thanks. I had to Google "CAM" because I wasn't familiar with the acronym off the top of my head. The diagnosing physician was definitely a member of IFM...I distinctly remember a certificate on his wall from them for something. In retrosp
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by Shooter 17y ago
It's a long, complicated story...so even my abbreviated answer will be very long. I'm going to make a new post about it, because I don't want to hijack this thread. http://news.ycombinator.com/item?id=868325
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So...what the hell's wrong with you, Shooter?
324 points by Shooter 17y ago|126 comments
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by Shooter 17y ago
ALS is terrifying and brutal. The three letters still give me the shivers. This guy has a very positive and brave outlook. I wish him the very best. I was misdiagnosed with ALS by four different doctors. I had essentially all of the s
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by Shooter 17y ago
"But usually once you've outlined (legally) how you're going to approach something there isn't a monthly cost associated to that legal work." Oh how I wish that were true for everything :( Ph0rque is right, though. Unfortunately, if you're
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by Shooter 17y ago
I really wish I knew this information about 16 years ago when I was still unbelievably naive. I was raised to answer police officers honestly, and to assume that they were also honest. And I still thought our criminal justice system worked
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by Shooter 17y ago
It used to mostly be playing, trading, collecting, teaching, and admiring guitar. And audio production. I owned a boutique guitar store (high-end, appointment only) on the side, and I still own a recording studio and mobile unit. I find th
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by Shooter 17y ago
I understood what you meant, Thomas. As I said, I wasn't making an argument either way in regard to SF vs. Chicago corruption. I've only visited SF a few times, so I have no basis for comparison. I just tend to marvel at how brazen and
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by Shooter 17y ago
(Not an argument. Just an anecdote. I've never lived in SF.) My Dad got three parking tickets from Chicago this year. For a truck that he hasn't owned in four years . My Dad hasn't been to Chicago in a few years. The truck had never
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by Shooter 17y ago
I would like a wearable device that could record all of my interactions with police for $300. The device would ideally have shock-protection to withstand tasering and multiple nightstick beatings. You know...just in case ;) We could sell
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Google Sidewiki - "Google Steals the Web"(talkbiz.com)
2 points by Shooter 17y ago|0 comments
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by Shooter 17y ago
I totally agree, Thomas. I was just trying to take the bounds of the spectrum a bit further. I tend to work in areas with strong network effects, so tens of millions in funding or profits is really nothing. It doesn't affect our strategy
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by Shooter 17y ago
I think of 'gorillas' as having revenues in the B illions or customers in the millions... I guess everyone has a different concept of the boogeyman?
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by Shooter 17y ago
Cool. Tuviah helped me out with problems a couple of times when I was using MC/RR. Nice guy. What's he doing now? I tend to agree about the syntax, but I didn't have a strong HyperCard background before I discovered the products. I disli
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by Shooter 17y ago
Yeah...I actually had a fixation with it for a bit. Smalltalk in general. I bought about 30 Smalltalk books and spent loads of time messing with Squeak and Cincom Smalltalk. Seaside stuff, mostly. Unfortunately, I never really had a suit

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