4 ms·
ALS is terrifying and brutal. The three letters still give me the shivers. This guy has a very positive and brave outlook. I wish him the very best. I was m
by Shooter 17y ago
ALS is terrifying and brutal. The three letters still give me the shivers. This guy has a very positive and brave outlook. I wish him the very best.
I was misdiagnosed with ALS by four different doctors. I had essentially all of the symptoms, so for once I couldn't really fault the doctors. I was also misdiagnosed with Parkinsons, MS, and Alzheimers earlier in the whole process - based on brain lesions, tremors, memory loss, paralysis, etc. Misdiagnosis of complex, multi-systemic diseases is much more common than one would expect. I would encourage anyone diagnosed with any of these diseases to get a fast second (or even fifth ;-) opinion before you start any treatments. Not to be in total denial, of course, but because some treatments - if wrong - can exacerbate the underlying problems. Steroids, for example, were prescribed for me at one point and they nearly killed me.
- apu 17y agoIf you don't mind me asking, what was the final diagnosis? How was it discovered? And how are you coping?
- Shooter 17y agoIt's a long, complicated story...so even my abbreviated answer will be very long. I'm going to make a new post about it, because I don't want to hijack this thread. http://news.ycombinator.com/item?id=868325 http://news.ycombinator.com/item?id=868325
- alexgartrell 17y agoAgreed 100%. My grandma was "dying" for years before they decided that it wasn't actually ALS. Death Sentences are always worth repeal.