3 ms·

not op: but possibly ... The free exchange of information would make publicly funded data-driven discoveries more feasible. (?)

• SkyPuncher 3y ago
  That's what standards like FIHR and HL7 do. While interchange is a problem, permissible use is a significantly higher bar.
  • nradov 3y ago
    FHIR is an HL7 standard. While conforming to FHIR makes interchange easier, it doesn't guarantee that the clinical data is accurate, complete, or properly coded. Researchers typically still have to put a huge amount of effort into data cleansing, especially if they need to merge data sets from multiple provider organizations.
• ethanbond 3y ago
  HIPAA is not the impediment, incentives are.
• dekhn 3y ago
  Yes, this is almost certainly true. However, so far we've underutilized the data, for a number of mostly social/incentivization reasons, rather than scientific ones.