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souradip
searching PlanetScale…
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by
souradip
5y ago
Much appreciated, I'm glad you agree! :)
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by
souradip
5y ago
I should probably say that my primary reason for signing up to a stem cell donor registry is to actually be a donor! This data is generated as a byproduct of signing up and is also quite interesting on a personal level. I was thinking that
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by
souradip
5y ago
I do, and I donate to these charities because it's a cause quite close to my heart. At present it's clearly not scalable to be sending GDPR requests one person at a time. I think perhaps if this kind of incentive brings more peopl
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by
souradip
5y ago
I like to think that using this analogy, here you're going to the food bank and donating food (or your stem cells) while getting data on how many people liked it in return. I've seen too many kids with blood cancer who couldn'
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by
souradip
5y ago
This is very true, and genotyping just the HLA/KIR loci won't tell you much about all the other genes that are important for health. However, the HLA typing is at least a start (and a free byproduct of signing up to donate stem ce
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by
souradip
5y ago
You can sequence yourself properly (and it's more information that way), but this way you can get called upon to donate if you're a match for someone somewhere in the world!
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by
souradip
5y ago
Hiya, author here! I wrote the article to mostly encourage others to sign up to these charities to help accomplish their mission, the data generated as a by-product is just a cool side-effect!
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A new era of personalised medicine: or how I got myself sequenced for free
(souradip.mookerj.ee)
90 points
by
souradip
5y ago
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72 comments