rohanseth

4 ms·

1. 1.▲
   by rohanseth 7y ago

   Lydia's father here. If I wasn't fighting this fight, my fight would be to push for prenatal exome sequencing. I acknowledge it's not as black and white -- there are some ethical concerns about how to process the data, but gi
2. 2.▲
   by rohanseth 7y ago

   Yup, that's fair. We took some creative license here, but couldn't quite figure out how to succinctly explain that we want to go beyond just academic publication and share everything .
3. 3.▲
   by rohanseth 7y ago

   This is our bad. When we had shared at Google, we thought the cost would be $2 million. We didn't include the money we had put in or received, so we shared our goal as $1.5million. Before sharing more publicly, we decided to update to
4. 4.▲
   by rohanseth 7y ago

   I'm really sorry to hear about your son. I'm Lydia's father (the author of the medium post). What you shared is my biggest concern about going forward with Lydia's treatment. We are confident that the treatment will help
5. 5.▲
   by rohanseth 16y ago

   +1
6. 6.▲
   by rohanseth 17y ago

   Great idea! Looking forward to seeing your predictions.