rj9000

6 ms·

1. 1.▲
   by rj9000 4y ago

   I wish you many more years of good health. Many people with MS have a normal life with little to no disability.
2. 2.▲
   by rj9000 4y ago

   In my opinion living with this disease for a long time I think there's probably a link to lifestyle. I developed symptoms in graduate school during a very stressful time in my life. Years later I had another stressful event and had a
3. 3.▲
   by rj9000 4y ago

   Some countries prescribe Rituximab as quasi off-label for MS. Basically same drug for all intents and purposes as Ocrevus. I think Sweden uses Rituximab openly for MS. In the US I've heard some neuros prescribe Rituximab if insurance
4. 4.▲
   by rj9000 4y ago

   I had to get the shingles vax just before I got on O due to reactivation risk despite being way too young. I got COVID vaccine and while I had a symptomatic reaction, the results of my antibody tests were concerning. I had my antibodies ch
5. 5.▲
   by rj9000 4y ago

   I've been living with MS for almost 15 years and still doing very well. However about three years ago everything went wrong and I got on O as soon as I could. It's been amazing. Wish they had it a long time ago.
6. 6.▲
   by rj9000 4y ago

   I'm on Ocrelizumab for MS, which wipes out memory B Cells. EBV lives in these cells. Ironically I'm sitting here at the cancer center now getting my semiannual infusion. Anecdotally this drug has made my day-to-day much easier