7 ms·

That kid is a really good writer for a 12 year old. Very clear and to the point.

by hrnnnnnn 11y ago

drrob 11y ago
Indeed, I wasn't writing that solidly until into my 20s.
- masterminding 11y ago
  Writing also wasn't your only means of communication...
b3lvedere 11y ago
The source it came from (http://faithhopeloveautism.blogspot.nl/2015/04/world-autism-awareness-day-2015.html http://faithhopeloveautism.blogspot.nl/2015/04/world-autism-...) is even better.
lambda 11y ago
Note that this was most likely written by his facilitator, not by him. It was written via a technique called "Rapid Prompting Method", which appears to be a variant of facilitated communication, a method that has been debunked as simply being the facilitator guiding the child, either consciously or subconsciously, to type things that the facilitator is thinking, not that the child is thinking. See https://en.wikipedia.org/wiki/Facilitated_communication https://en.wikipedia.org/wiki/Facilitated_communication for more information. I also recommend the PBS Frontline documentary "Prisoners of Silence" (transcript: http://www.pbs.org/wgbh/pages/frontline/programs/transcripts/1202.html http://www.pbs.org/wgbh/pages/frontline/programs/transcripts..., video: https://www.youtube.com/watch?v=HXw8Ksvyt5Y https://www.youtube.com/watch?v=HXw8Ksvyt5Y), which does a good job both debunking it, and demonstrating why facilitated communication can be quite harmful; there was a rash of incidents in which facilitators imagined sexual abuse allegations from children, leading to substantial repercussions for innocent parents.
- DanBC 11y ago
  And there is a comment in the source article that claims it was written using RPM, so we know the exploitative RPM. Method was used. http://faithhopeloveautism.blogspot.co.uk/2015/04/world-autism-awareness-day-2015.html http://faithhopeloveautism.blogspot.co.uk/2015/04/world-auti...
  - mapt 11y ago
    And another comment on the blog that they're not focused on getting RPM working without the mother aiding.
- smhg 11y ago
  Thank you for the explanation. I didn't know about FC. This should have been made very clear at the beginning of the article.
  - lambda 11y ago
    A lot of people who believe in FC and it's variants believe that there's a big conspiracy to silence the voices of their children. They don't think it's relevant that there was a facilitator who was just "supporting his arm" or "providing contact" or something of the sort. So they are unlikely to do this; they want to promote a notion that the child is producing the text, not the facilitator.
- ZeroGravitas 11y ago
  I didn't realise this kind of thing applied to people with enough motion control to hold a cup of coffee as seen in the photo. Surely they can type on an iPad themselves at that point, without the need for an interpreter or go-between?
  - Rhapso 11y ago
    it is actually not about motion control. It is a fundamental inability to communicate. I don't know much about this specific case, but it is quite possible he could accurately hit arbitrary buttons, but cannot map those actions to a meaning to be communicated.
mapt 11y ago
This is likely above the 95th percentile writing skills for neurotypical twelve-year-olds, and uses anachronistic language to boot. When's the last time you heard a twelve-year-olds using words like "I am weary", or" for causing so much hardship.", or idiomatic abstracts like "another way of being". If you took a neurotypical kid and duct-taped their mouth shut up to age 12, you would be robbing them of the vast majority of reinforcement learning on grammar and wording that we receive as children, and it would knock them down several standard deviations in skill level relative to their peers in constructing sentences, paragraphs, and essays. On top of all this is the blatant wish-fulfillment. Socialized kids, at least, have a some degree of ego, and don't often express sincere thanks for their parents, their disorders, that their "school values them", or describe their behavior as "Then I would have meltdowns.". These are forced reflections that just don't occur naturally. On top of all this is the core of autism: Deficits in the theory of mind. Normal kids start to master deception, pretending, prediction of behavior, and empathizing somewhere between 2 and 5, and get gradually better at it as they get older. Autistics have marked problems in these areas. What they don't do is clearly model their audience, model their audience's ignorance of their own mind, then tell their audience to walk a mile in their own shoes, and describe the novel aspects of their mind from the perspective of a neurotypical outsider. There are recursive layers of social intrigue in this paragraph that people with autism would have a great deal of trouble understanding, much less writing: "Let’s pretend you are like me. You can’t talk, but you have a well-functioning mind and can understand people. Imagine you answer everyone who says something to you, but only you can hear it. Others hear your voice saying things you don’t necessarily mean. They think that’s all you are capable of thinking. People see your repetitive flapping or tapping and they think it serves no purpose. They don’t understand that the minute you stop, the moment is flooded with lights that hum, loud sounds that echo, kids moving too fast for you to keep up with and people trying to engage with you. It is hard on me to put my stimming away, but I try."
- mapt 11y ago
  Take this passage from the blog and consider the tone and language, and ask yourself whether it could come from a twelve year old, much less an autistic twelve year old who'd only been communicating for three years, and presumably had never done things like read novels for fun (which I consider central to my own language skills relative to my peers): "I love to flap my hands. I flap to feel my body in space. No one goes through the trouble I have to feel my body well. Dare to feel each moment floating weightless in space. I am light and my movement is erratic without gravity making my movement steady. Each day I go crazy not knowing how my body will act. Most people have portly muscle mass to feel their own weight. I do not. I often feel like a bird about to take flight and it makes me flap. I love the sensation of my hands flapping. My hands flap when I am happy. They flap when I am momentarily stressed. They also flap to music. Flapping is important to me. I flap like a bird to feel free from my body. My body is naughty. It acts on impulse too much. No one can discipline it. It has a mind of its own. It makes messes. It acts like a jerk. My body feels tension from stress. Many times I can't feel my body. I am unable to do many things people do without thinking. Lastly, my weary lament for my Autistic friends who can’t communicate kills my soul. Living with autism is hard. I sometimes would like to try living without it but I can't. Living peacefully requires me to accept myself, autism included. I mean to make the most of what I have been given. I have been given a strong mind. I have a mission from God. I am trying to educate the world about autism. No meaning comes from being negative about autism. My slavery to negative stereotypes is over. I am free peacefully pursuing my dreams. Moments are still very challenging but I know I can persevere and someday peacefully make a beautiful life for myself." "My weary lament" "I have a mission from God. I am trying to educate the world about autism." "My slavery to negative stereotypes is over." I have trouble understanding how anyone could convince themselves this was legitimately a child communicating. It reads a bit like someone trying to make poetic reflections from the point of view of their dog, imagining what it must be thinking and inserting their own florid prose for laughs. If this woman really believes she's speaking with her son, rather than speaking for her son, that's heartbreaking. It reads more like a cruel satire of people who've found themselves in this situation, but to what end I could not guess. I would have been happy enough having my sister be able to explain that she was screaming because she heard an irritating noise, or tell us what she was getting out of tearing her clothes off, or say she was feeling sad the cat died, or ask us for basic things like not to have to go to the dentist. If we found a way to communicate with her using a vocabulary of ~500 words with simple grammar rather than 5-50 nouns based on immediate wants("cookie", "bathroom", "cheese", "tickle"), all of our lives would have been improved immeasurably... but I wouldn't expect her to start spouting Shakespeare references or Bible verse, and seeing that would cast immediate doubt on whatever method was being used.

That kid is a really good writer for a 12 year old. Very clear and to the point.

drrob 11y ago

Indeed, I wasn't writing that solidly until into my 20s.

masterminding 11y ago
Writing also wasn't your only means of communication...

b3lvedere 11y ago

The source it came from (http://faithhopeloveautism.blogspot.nl/2015/04/world-autism-awareness-day-2015.html http://faithhopeloveautism.blogspot.nl/2015/04/world-autism-...) is even better.

lambda 11y ago

Note that this was most likely written by his facilitator, not by him. It was written via a technique called "Rapid Prompting Method", which appears to be a variant of facilitated communication, a method that has been debunked as simply being the facilitator guiding the child, either consciously or subconsciously, to type things that the facilitator is thinking, not that the child is thinking. See https://en.wikipedia.org/wiki/Facilitated_communication https://en.wikipedia.org/wiki/Facilitated_communication for more information. I also recommend the PBS Frontline documentary "Prisoners of Silence" (transcript: http://www.pbs.org/wgbh/pages/frontline/programs/transcripts/1202.html http://www.pbs.org/wgbh/pages/frontline/programs/transcripts..., video: https://www.youtube.com/watch?v=HXw8Ksvyt5Y https://www.youtube.com/watch?v=HXw8Ksvyt5Y), which does a good job both debunking it, and demonstrating why facilitated communication can be quite harmful; there was a rash of incidents in which facilitators imagined sexual abuse allegations from children, leading to substantial repercussions for innocent parents.

DanBC 11y ago
And there is a comment in the source article that claims it was written using RPM, so we know the exploitative RPM. Method was used. http://faithhopeloveautism.blogspot.co.uk/2015/04/world-autism-awareness-day-2015.html http://faithhopeloveautism.blogspot.co.uk/2015/04/world-auti...
- mapt 11y ago
  And another comment on the blog that they're not focused on getting RPM working without the mother aiding.
smhg 11y ago
Thank you for the explanation. I didn't know about FC. This should have been made very clear at the beginning of the article.
- lambda 11y ago
  A lot of people who believe in FC and it's variants believe that there's a big conspiracy to silence the voices of their children. They don't think it's relevant that there was a facilitator who was just "supporting his arm" or "providing contact" or something of the sort. So they are unlikely to do this; they want to promote a notion that the child is producing the text, not the facilitator.
ZeroGravitas 11y ago
I didn't realise this kind of thing applied to people with enough motion control to hold a cup of coffee as seen in the photo. Surely they can type on an iPad themselves at that point, without the need for an interpreter or go-between?
- Rhapso 11y ago
  it is actually not about motion control. It is a fundamental inability to communicate. I don't know much about this specific case, but it is quite possible he could accurately hit arbitrary buttons, but cannot map those actions to a meaning to be communicated.

mapt 11y ago

This is likely above the 95th percentile writing skills for neurotypical twelve-year-olds, and uses anachronistic language to boot. When's the last time you heard a twelve-year-olds using words like "I am weary", or" for causing so much hardship.", or idiomatic abstracts like "another way of being". If you took a neurotypical kid and duct-taped their mouth shut up to age 12, you would be robbing them of the vast majority of reinforcement learning on grammar and wording that we receive as children, and it would knock them down several standard deviations in skill level relative to their peers in constructing sentences, paragraphs, and essays. On top of all this is the blatant wish-fulfillment. Socialized kids, at least, have a some degree of ego, and don't often express sincere thanks for their parents, their disorders, that their "school values them", or describe their behavior as "Then I would have meltdowns.". These are forced reflections that just don't occur naturally. On top of all this is the core of autism: Deficits in the theory of mind. Normal kids start to master deception, pretending, prediction of behavior, and empathizing somewhere between 2 and 5, and get gradually better at it as they get older. Autistics have marked problems in these areas. What they don't do is clearly model their audience, model their audience's ignorance of their own mind, then tell their audience to walk a mile in their own shoes, and describe the novel aspects of their mind from the perspective of a neurotypical outsider. There are recursive layers of social intrigue in this paragraph that people with autism would have a great deal of trouble understanding, much less writing: "Let’s pretend you are like me. You can’t talk, but you have a well-functioning mind and can understand people. Imagine you answer everyone who says something to you, but only you can hear it. Others hear your voice saying things you don’t necessarily mean. They think that’s all you are capable of thinking. People see your repetitive flapping or tapping and they think it serves no purpose. They don’t understand that the minute you stop, the moment is flooded with lights that hum, loud sounds that echo, kids moving too fast for you to keep up with and people trying to engage with you. It is hard on me to put my stimming away, but I try."

mapt 11y ago
Take this passage from the blog and consider the tone and language, and ask yourself whether it could come from a twelve year old, much less an autistic twelve year old who'd only been communicating for three years, and presumably had never done things like read novels for fun (which I consider central to my own language skills relative to my peers): "I love to flap my hands. I flap to feel my body in space. No one goes through the trouble I have to feel my body well. Dare to feel each moment floating weightless in space. I am light and my movement is erratic without gravity making my movement steady. Each day I go crazy not knowing how my body will act. Most people have portly muscle mass to feel their own weight. I do not. I often feel like a bird about to take flight and it makes me flap. I love the sensation of my hands flapping. My hands flap when I am happy. They flap when I am momentarily stressed. They also flap to music. Flapping is important to me. I flap like a bird to feel free from my body. My body is naughty. It acts on impulse too much. No one can discipline it. It has a mind of its own. It makes messes. It acts like a jerk. My body feels tension from stress. Many times I can't feel my body. I am unable to do many things people do without thinking. Lastly, my weary lament for my Autistic friends who can’t communicate kills my soul. Living with autism is hard. I sometimes would like to try living without it but I can't. Living peacefully requires me to accept myself, autism included. I mean to make the most of what I have been given. I have been given a strong mind. I have a mission from God. I am trying to educate the world about autism. No meaning comes from being negative about autism. My slavery to negative stereotypes is over. I am free peacefully pursuing my dreams. Moments are still very challenging but I know I can persevere and someday peacefully make a beautiful life for myself." "My weary lament" "I have a mission from God. I am trying to educate the world about autism." "My slavery to negative stereotypes is over." I have trouble understanding how anyone could convince themselves this was legitimately a child communicating. It reads a bit like someone trying to make poetic reflections from the point of view of their dog, imagining what it must be thinking and inserting their own florid prose for laughs. If this woman really believes she's speaking with her son, rather than speaking for her son, that's heartbreaking. It reads more like a cruel satire of people who've found themselves in this situation, but to what end I could not guess. I would have been happy enough having my sister be able to explain that she was screaming because she heard an irritating noise, or tell us what she was getting out of tearing her clothes off, or say she was feeling sad the cat died, or ask us for basic things like not to have to go to the dentist. If we found a way to communicate with her using a vocabulary of ~500 words with simple grammar rather than 5-50 nouns based on immediate wants("cookie", "bathroom", "cheese", "tickle"), all of our lives would have been improved immeasurably... but I wouldn't expect her to start spouting Shakespeare references or Bible verse, and seeing that would cast immediate doubt on whatever method was being used.