3 ms·
What amazed me is that Jeanne Peeper was able to essentially do a pre-internet Kickstarter and raise funds for Kaplan to perform his research, hold a conference
by chiph 13y ago
What amazed me is that Jeanne Peeper was able to essentially do a pre-internet Kickstarter and raise funds for Kaplan to perform his research, hold a conference, and hire a geneticist.
With the power of the internet and how easy it is to set up a phpBB forum, sufferers of rare diseases don't have to live in isolation any more.
- dangoldin 13y agoYea - I had the same thoughts. Do you know if there are Kickstarter like nonprofits dedicated to raising money this way for rare diseases?
- caycep 13y agoI think there is a scientific "kickstarter"-like startup that made the rounds here on HN a while back, though - maybe that could fit the bill? the name escapes me at the moment though.
- caycep 13y agoAT the moment, not really, but the communities of rare diseases often have put together a nonprofit foundation for fundraising, etc. The grants are really not big and don't really fund serious research in that they are a fraction of a typical NIH R01, R23 or K grant, and typically do not cover indirect funding (i.e. the slice of the pie the university or hospital takes for "overhead").