4 ms·
My girlfriend died from human metapneumovirus at 30 years young. She had a weakened immune system from lymphangiomatosis, so something like metapneumovirus, whi
by NDlurker 4mo ago
My girlfriend died from human metapneumovirus at 30 years young. She had a weakened immune system from lymphangiomatosis, so something like metapneumovirus, which is a mild illness for most people, was a death sentence for her. I hope this fund is successful so nobody else ever has to go through what she did.
- oscarmcdougall 4mo agoSorry for your loss.
- NDlurker 4mo agoThank you. It's crazy how quickly life can change. She filled out a healthcare directive when she was 24. Either she never gave it to her clinic or it didn't get transferred with her other files or something when she started going to a different hospital system. Anyway, the hospital she was in didn't have it. She was hospitalized for like 5 days before she passed. I found that healthcare directive that morning, just a few hours before she died. It was stuffed in the back of a drawer. I was tearing up my apartment trying to find it. And when I found it I saw she had written on there Please celebrate my life, mourn for me, but know I am in a better place. God has a plan for me, and He has a plan for all of you.
- freetinker 4mo agoHeartbreaking. Sorry for your loss.
- veunes 4mo agoThis is the kind of thing people miss when they say "it's just a cold". I really hope this work goes somewhere.
- srean 4mo agoSo sorry to hear that. I know neither you nor her, but no one ought to go through that. I hope you are doing well. Best wishes
- O5vYtytb 4mo agoMy wife has LAM. Was your girlfriend on medication hence the weakened immune system?
- NDlurker 4mo agoShe frequently took cycles of rapamycin, steroids, and some other drugs I don't recall the names of. At one time she was taking thalidomide. I don't recall what medications she was on at the time she got sick. Most of the cysts were in her lungs so her lung capacity on a good day was halved. She had a stroke as a teen during what I think was a lung biopsy, before they had figured out that she had lymphangiomatosis, so she had medical issues from that as well.