5 ms·

In the era of GitHub etc, if you're not giving out every single data point of your research, it should be assumed it's fake.

avs733 7mo ago
out of context that makes sense...but in the context of a case report how do you implement that? The patients have privacy rights and the authors/doctors have a responsibliity to protect them. That doesn't justify this but it does force a conversation about what 'every single data point' means. Does it mean the patient's real name and social security number? their complete medical chart? Case reports are descriptive not determinative and should be treated as such by other scholars. They are 'I saw this' not 'this is generalizably true'. They can (and often are) replicated or countered but they are not per se research as you are thinking about it. Whether it is fictitious or not, other scholars should be cautious in citing them as proof/evidence in papers that fit into the 'research' mold.
- nradov 7mo ago
  From a legal perspective, journal article authors can implement this by following the official HHS guidance for de-identification. This applies to any use of protected health information (PHI), not just case reports. https://www.hhs.gov/hipaa/for-professionals/special-topics/de-identification/index.html https://www.hhs.gov/hipaa/for-professionals/special-topics/d... The IRB for a particular organization can impose additional restrictions.
fsh 7mo ago
The article is about case reports, not about empirical studies. Putting a fake case report on GitHub wouldn't make it any less fake.
- qwertox 7mo ago
  > Putting a fake case report on GitHub wouldn't make it any less fake. Much easier to review for whomever wants to review it.
  - SiempreViernes 7mo ago
    Obviously just sending it via email to the reviewers works just fine in practice anyway, the problem is really that they published a summary piece about research that was later retracted, but didn't take down their own article.
  - NewsaHackO 7mo ago
    Do you know what a case report is?
  - drivingmenuts 7mo ago
    Would it be easier, though? Medical records (in the US) are covered by HIPAA and, to my knowledge, there is no anonymized canonical record, similar to what we have for legal decision. Without that, how difficult would it be to just "make shit up"?
deleted 7mo ago
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Towaway69 7mo ago
And then there be large amounts of fake data for the next generation of AIs to learn from. What is stopping anyone from faking the data they use in their research papers? Sure it might be verifiable but if the data was made to give the desired results, i.e. faked to be what is required for the paper.

avs733 7mo ago

out of context that makes sense...but in the context of a case report how do you implement that? The patients have privacy rights and the authors/doctors have a responsibliity to protect them. That doesn't justify this but it does force a conversation about what 'every single data point' means. Does it mean the patient's real name and social security number? their complete medical chart? Case reports are descriptive not determinative and should be treated as such by other scholars. They are 'I saw this' not 'this is generalizably true'. They can (and often are) replicated or countered but they are not per se research as you are thinking about it. Whether it is fictitious or not, other scholars should be cautious in citing them as proof/evidence in papers that fit into the 'research' mold.

nradov 7mo ago
From a legal perspective, journal article authors can implement this by following the official HHS guidance for de-identification. This applies to any use of protected health information (PHI), not just case reports. https://www.hhs.gov/hipaa/for-professionals/special-topics/de-identification/index.html https://www.hhs.gov/hipaa/for-professionals/special-topics/d... The IRB for a particular organization can impose additional restrictions.

fsh 7mo ago

The article is about case reports, not about empirical studies. Putting a fake case report on GitHub wouldn't make it any less fake.

qwertox 7mo ago
> Putting a fake case report on GitHub wouldn't make it any less fake. Much easier to review for whomever wants to review it.
- SiempreViernes 7mo ago
  Obviously just sending it via email to the reviewers works just fine in practice anyway, the problem is really that they published a summary piece about research that was later retracted, but didn't take down their own article.
- NewsaHackO 7mo ago
  Do you know what a case report is?
- drivingmenuts 7mo ago
  Would it be easier, though? Medical records (in the US) are covered by HIPAA and, to my knowledge, there is no anonymized canonical record, similar to what we have for legal decision. Without that, how difficult would it be to just "make shit up"?

deleted 7mo ago

[deleted]

Towaway69 7mo ago

And then there be large amounts of fake data for the next generation of AIs to learn from. What is stopping anyone from faking the data they use in their research papers? Sure it might be verifiable but if the data was made to give the desired results, i.e. faked to be what is required for the paper.