5 ms·

Is your point 'I have no major health conditions, so nobody could be hurt by releasing health data'? If so, I don't think I need to point out the gap in this lo

Is your point 'I have no major health conditions, so nobody could be hurt by releasing health data'? If so, I don't think I need to point out the gap in this logic.

cyberpunk 10mo ago
Actually you maybe do. I am extremely privacy conscious; so i’m on your side on this one but health data is a bit different from handing over all your email and purchase information to google — in that scenario the danger is that the political or religious or whatever attributes i may have could be exposed to a future regime who considers what is acceptable today to no longer be so, uses them to profile and … whatever me, right? What actual danger is there from a government or a us tech company having my blood work details when i actually have nothing to hide like drug abuse or alcohol etc? health data seems much less risky than my political views, religion, sexuality, minor crimes committed and so on.
- azan_ 10mo ago
  Depends on the data - if you had genetic data they might run PGS and infer that even though you are healthy now, your genes might predispose you to something bad and deny insurance based on that. If you truly do not see dangers of health data access remember that they could genotype you even when you came just for ordinary bloodwork.
  - cyberpunk 10mo ago
    Fortunately I live in a country where one cannot be denied insurance, but yeah I didnt think of these really, was a bit of a “typed before i really thought” moment maybe i should put the keyboard down ;). It seems like an easy fix with legislation, at least outside the US, though. Mandatory insurance for all with reasonable banded rates, and maximum profit margins for insurers?
  - HPsquared 10mo ago
    Isn't it more productive to regulate health insurance and make health a protected attribute of a person like disability etc?
- georgebcrawford 10mo ago
  Not danger as in being kidnapped by government agents, danger in terms of being denied a job or insurance or anything else. Your comment is extraordinarily naive.
  - cyberpunk 10mo ago
    I wasn’t saying there is no danger — just that I didn’t really think about it or see the problem, your sibling comments have changed that. Maybe i am naive but i was asking genuinely not stating i think otherwise.. Unfortunately i have family members in the us and pretty much all of them happily sent their dna off to various services so im fucked either way at this point…
    - georgebcrawford 10mo ago
      Good point, you did ask in good faith for an explanation and just fired off a quick comment that didn’t serve to further the discussion!
- fleeting900 10mo ago
  Something that is not yet known to be an indicator that you’re at risk of a condition. Perhaps you were given some medication that is later proven harmful. Maybe there’s a sign in your blood test results that in future will strongly correlate with a condition that emerges in your 50s. Maybe a study will show that having no appendix correlates with later issues. How confident are you that the data will never be used against you by future insurance, work screening, dating apps, immigration processes, etc
  - cyberpunk 10mo ago
    Absolutely not confident at all; thanks, i hadn’t considered some of those.
- watercolorblind 10mo ago
  When your health data can say you are trans, and the government decides to persecute you, then yes, it important to maintain privacy.
  - moralestapia 10mo ago
    I find it really really really hard to believe that there exists a person in this planet who: 1. Is transexual but does not tell anybody they are and it is also not blatantly obvious 2. Writes down in a health record they are transexual (instead of whatever sex they are now) 3. Someone doxxes they/them medical records 4. Because of 3, and only because of 3, people find out that said person is transexual 5. And then ... the government decides to persecute they/them Let's be real, you're really stretching it here. You're talking about a 0.1% of a 0.1% of a 0.1% of a 0.1% of a 0.1% situation here.
    - magicalist 10mo ago
      If they're an athlete this situation could literally be happening right now.
moralestapia 10mo ago
@cyberpunk's question is pretty clear. You could try to answer that instead of making up a strawman. Dialogue 101 but some people still ignore it.

Is your point 'I have no major health conditions, so nobody could be hurt by releasing health data'? If so, I don't think I need to point out the gap in this logic.

cyberpunk 10mo ago

Actually you maybe do. I am extremely privacy conscious; so i’m on your side on this one but health data is a bit different from handing over all your email and purchase information to google — in that scenario the danger is that the political or religious or whatever attributes i may have could be exposed to a future regime who considers what is acceptable today to no longer be so, uses them to profile and … whatever me, right? What actual danger is there from a government or a us tech company having my blood work details when i actually have nothing to hide like drug abuse or alcohol etc? health data seems much less risky than my political views, religion, sexuality, minor crimes committed and so on.

azan_ 10mo ago
Depends on the data - if you had genetic data they might run PGS and infer that even though you are healthy now, your genes might predispose you to something bad and deny insurance based on that. If you truly do not see dangers of health data access remember that they could genotype you even when you came just for ordinary bloodwork.
- cyberpunk 10mo ago
  Fortunately I live in a country where one cannot be denied insurance, but yeah I didnt think of these really, was a bit of a “typed before i really thought” moment maybe i should put the keyboard down ;). It seems like an easy fix with legislation, at least outside the US, though. Mandatory insurance for all with reasonable banded rates, and maximum profit margins for insurers?
- HPsquared 10mo ago
  Isn't it more productive to regulate health insurance and make health a protected attribute of a person like disability etc?
georgebcrawford 10mo ago
Not danger as in being kidnapped by government agents, danger in terms of being denied a job or insurance or anything else. Your comment is extraordinarily naive.
- cyberpunk 10mo ago
  I wasn’t saying there is no danger — just that I didn’t really think about it or see the problem, your sibling comments have changed that. Maybe i am naive but i was asking genuinely not stating i think otherwise.. Unfortunately i have family members in the us and pretty much all of them happily sent their dna off to various services so im fucked either way at this point…
  - georgebcrawford 10mo ago
    Good point, you did ask in good faith for an explanation and just fired off a quick comment that didn’t serve to further the discussion!
fleeting900 10mo ago
Something that is not yet known to be an indicator that you’re at risk of a condition. Perhaps you were given some medication that is later proven harmful. Maybe there’s a sign in your blood test results that in future will strongly correlate with a condition that emerges in your 50s. Maybe a study will show that having no appendix correlates with later issues. How confident are you that the data will never be used against you by future insurance, work screening, dating apps, immigration processes, etc
- cyberpunk 10mo ago
  Absolutely not confident at all; thanks, i hadn’t considered some of those.
watercolorblind 10mo ago
When your health data can say you are trans, and the government decides to persecute you, then yes, it important to maintain privacy.
- moralestapia 10mo ago
  I find it really really really hard to believe that there exists a person in this planet who: 1. Is transexual but does not tell anybody they are and it is also not blatantly obvious 2. Writes down in a health record they are transexual (instead of whatever sex they are now) 3. Someone doxxes they/them medical records 4. Because of 3, and only because of 3, people find out that said person is transexual 5. And then ... the government decides to persecute they/them Let's be real, you're really stretching it here. You're talking about a 0.1% of a 0.1% of a 0.1% of a 0.1% of a 0.1% situation here.
  - magicalist 10mo ago
    If they're an athlete this situation could literally be happening right now.

moralestapia 10mo ago

@cyberpunk's question is pretty clear. You could try to answer that instead of making up a strawman. Dialogue 101 but some people still ignore it.