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Not directly, afaik they never transferred the data. However they sold access to the data to a bug pharma company (GSK). This was widely publicized. Not sure i
by marcell 2y ago
Not directly, afaik they never transferred the data.
However they sold access to the data to a bug pharma company (GSK). This was widely publicized. Not sure if that counts: GSK had some ability to look at the data but didn’t have an on premise copy of it.
Also, I worked on the GDPR deletion project. I can attest that they do best effort to delete your data when your request that. At least when I was there, this was the case. One caveat is for coding errors, oversights and bugs.
- LarsDu88 2y agoI had direct knowledge of this. To clarify I believe 23andMe did not give direct access to individual's DNA data. What 23andMe was selling to GSK was the results of GWAS (Genome Wide Association Study) results, which could be used to generate therapeutic candidates. GWAS is a sort of rudimentary machine learning algorithm that basically maps a phenotype (like propensity for a particular disease) to a region of DNA. From there the drug company can narrow down candidate genes to attempt to develop specific drugs for.
- filchermcurr 2y agoIs the data actually deleted in non-GDPR countries as well?
- cryptonector 2y agoHow do they confirm where the requestor is?
- marcell 2y agoYes, the same code runs for all customers
- TheKarateKid 2y agoWhat data is left behind even after GDPR deletion? For example, data that is merely disassociated with your account but will forever live in their system.