4 ms·
Why shouldn’t people be able to submit themselves to experimentation?
by op00to 2y ago
Why shouldn’t people be able to submit themselves to experimentation?
- jplona 2y agoI could imagine that in practice you end up with a bunch of vulnerable people submitting themselves to experimentation by powerful companies, which is an unhealthy dynamic.
- Hammershaft 2y agoI agree that it could be an unhealthy dynamic but who should ultimately have the power to make that decision? The patient who wants to participate in a trial because it may offer a chance of improving his quality of life, or us? Beyond that, allowing for these experimental trials, regardless of their success or failure, can accelerate medical progress that can enable better care for many more people in the future.
- DoesntMatter22 2y agoThat's what I see a lot with Cancer drugs. People are dying and want to take a chance on really experimental stuff but the FDA will deny it. They want to try it because it could help them, or if not, at least help others by eliminating useless paths. It's so strange that people feel it's wrong for patients to make their own choice on this, but they are okay forcing others to not have treatment. It's a "My decision is better than yours, I can decide what is better for you.
- op00to 2y agoThere are regulations in the us to protect human subjects from undue influence.
- jauntywundrkind 2y agoAgreed. People should have a strong right to repair that gives them liberty over hardware and software in their property especially in their body. Anti-cirumvention ought be illegal by default. The law should protect people from being prayed up on by controlling interests. Would that.
- hehdhdjehehegwv 2y agoBecause desperate people will be taken advantage of by people trying to make a quick buck. That includes pharmaceutical or medical device manufacturers who are answering to investors. This is why universities have institutional review boards and it’s broadly forbidden to conduct experiments on prisoners.
- jryle70 2y agoThat's FDA's role, to be the gatekeeper to make sure trials and experiments meet acceptable safety standards. Worth noting that FDA has allowed Neuralink to have the 2nd patient in the coming month.
- Hammershaft 2y agoExperiments on prisoners are nonconsensual, so it doesn't map to cases like this.
- bastawhiz 2y agoWhy shouldn't people be able to submit themselves to ride on an experimental rocket ship that has known issues and is not expected complete its mission?
- voldacar 2y agoIf they're aware of that, I don't see the problem?
- bastawhiz 2y agoIt's not so much allowing people to sign up for it, it's preventing companies from killing and maiming people in the interest of profit. Because that's literally what it is. There's not a big asterisk in our laws next to murder that says "oh, unless they're cool about it".
- Dig1t 2y agoThat is a good question, people should absolutely be allowed to do that if they want to. Sign a consent form, why not?
- bastawhiz 2y agoYou can consent to be murdered but that doesn't make the company murdering you free and clear to murder you.
- maxerickson 2y agoDo you think broader society should be able to impose any limits? Is there any experiment too stupid to countenance?
- op00to 2y agoThere are limits in place. All human testing in the US is reviewed by an Institutional Review Board and covered by numerous regulations.