3 ms·

I’m in a very similar condition. Who helped you set your dietary goals? Do you have some specific resources?

by henry2023 3y ago

paul7986 3y ago
My kidney doc says i was born with small kidneys and that might be why i have mild CKD and or i took a medication that damaged my kidneys. Initially in 2019 she didnt advocate for changing diet .. seemed on the fence but to me it makes perfect sense what you put in your body matters a 100%. I read stuff on the Internet that day she diagnosed me and went to the store. Threw away all foods in my house that had preservatives and started to read labels at the store finding foods made with simple to a few natural ingredients. I increased my daily water intake to almost nothing to 3 liters a day, stopped eating all beef, pork and only eat grilled chicken, fruits, salads, rice, almond milk, breads (grains), avoid fried foods, cut down on dairy, do some type of exercise & or go to the gym daily (though ive always done that but stopped lifting heavy weights .. lots of cardio (running, swimming, lite weights) as kidney cant break down creatine as it use to when you lifted weights) and as mentioned i do my best to avoid taking all/any medications. It took 4 to 6 months for my function to rise from 55 to around 70 and in the coming years i got and maintained it from 75 to 85. I go for monthly to bi-monthly renal lab testing to ensure it's all good. I also strive to eat 1500 to 2000 calories a day (5'10 173 pounds). Unfortunately recently i decided to take a high dose of doxyclcyine (throughout past few years ive taken two smaller/longer doses of it without issue for flu) and it brought my function down :-( Working hard now to get it back. This is my journey .. i am not a doctor but from my experience and doctor worth their salt they should be advocating revolutionizing your diet ... some will say that's how it goes get ready to go on dialysis in a few years or so. Those doctors need to be ignored and find one who believes in nutrition and see how revolutionizing your diet most likely will heal your kidney some or by a lot too. **I eat out a lot throughout each week ... chic fil a (grilled nuggets, fruit cup, salad, water or unsweet tea & lemonade), Cava (chicken & rice bowls), Chipolte (chicken and rice bowls), Panera (Apple fuji salad or half of one of their chicken sandwiches.. sometimes do eat turkey) or at home cook spaghetti, air fried chicken tenders, pasta and still eat sweets but i calorie count daily and weigh myself daily too. Ha too most i sound obsessed but i am obsessed about my health and ive seen / see results from being such!
washadjeffmad 3y ago
I'm managing CRF, and while diet matters, your personal immunology matters more. For instance, I have IgA nephropathy, so: "No evidence to point toward hypersensitivity to food antigens ..." https://www.ncbi.nlm.nih.gov/books/NBK538214/ https://www.ncbi.nlm.nih.gov/books/NBK538214/ However, I feel best when intermittent fasting or doing keto. (Don't do keto unless you can stay in ketosis.) I don't take anything for "inflammation reduction", and I tend to have fewer CRF-related responses when I'm not in an environment where I'm having any hypersensitivity responses to allergens. Getting a bad respiratory illness will 100% of the time trigger a flare up, as well as certain GI conditions. Immunity is characterized by cascade responses, and stopping your internal police force from getting the wrong idea and starting a riot that turns into a police state is a lifelong challenge. I've tried amino acid restriction, been on Prednisone, and am otherwise "healthy" by my routine panels.
- paul7986 3y ago
  I wish i could eat steak and cheeseburgers like i use to, but for me it all started with my first gout attack right before my kidney issue was spotted. I have had 5 to 6 gout attacks in the last 8 years. Last being a bad one in Sept 2022. My previous diet was going to steakhouses a few times a week with mac n cheese and mashed potatoes with country gravy as side dishes. Shared dessert with my dining partner(s). My body to enjoy the same full life of hiking up mountains, skiing, biking, swimming, enjoying lots of intimacy for years to come without drugs can no longer take my previous diet. I'd be on dialysis most likely now or in the next few years if I chose a bad diet over continuing to live the same full life ive always enjoyed by revolutionizing my diet.
  - nradov 3y ago
    Fructose is involved in the metabolic pathway that leads to gout. You might want to try eliminating fructose from your diet for a while. https://peterattiamd.com/rickjohnson/ https://peterattiamd.com/rickjohnson/
    - paul7986 3y ago

I’m in a very similar condition. Who helped you set your dietary goals? Do you have some specific resources?

My kidney doc says i was born with small kidneys and that might be why i have mild CKD and or i took a medication that damaged my kidneys. Initially in 2019 she didnt advocate for changing diet .. seemed on the fence but to me it makes perfect sense what you put in your body matters a 100%. I read stuff on the Internet that day she diagnosed me and went to the store. Threw away all foods in my house that had preservatives and started to read labels at the store finding foods made with simple to a few natural ingredients. I increased my daily water intake to almost nothing to 3 liters a day, stopped eating all beef, pork and only eat grilled chicken, fruits, salads, rice, almond milk, breads (grains), avoid fried foods, cut down on dairy, do some type of exercise & or go to the gym daily (though ive always done that but stopped lifting heavy weights .. lots of cardio (running, swimming, lite weights) as kidney cant break down creatine as it use to when you lifted weights) and as mentioned i do my best to avoid taking all/any medications. It took 4 to 6 months for my function to rise from 55 to around 70 and in the coming years i got and maintained it from 75 to 85. I go for monthly to bi-monthly renal lab testing to ensure it's all good. I also strive to eat 1500 to 2000 calories a day (5'10 173 pounds). Unfortunately recently i decided to take a high dose of doxyclcyine (throughout past few years ive taken two smaller/longer doses of it without issue for flu) and it brought my function down :-( Working hard now to get it back. This is my journey .. i am not a doctor but from my experience and doctor worth their salt they should be advocating revolutionizing your diet ... some will say that's how it goes get ready to go on dialysis in a few years or so. Those doctors need to be ignored and find one who believes in nutrition and see how revolutionizing your diet most likely will heal your kidney some or by a lot too. **I eat out a lot throughout each week ... chic fil a (grilled nuggets, fruit cup, salad, water or unsweet tea & lemonade), Cava (chicken & rice bowls), Chipolte (chicken and rice bowls), Panera (Apple fuji salad or half of one of their chicken sandwiches.. sometimes do eat turkey) or at home cook spaghetti, air fried chicken tenders, pasta and still eat sweets but i calorie count daily and weigh myself daily too. Ha too most i sound obsessed but i am obsessed about my health and ive seen / see results from being such!

washadjeffmad 3y ago

I'm managing CRF, and while diet matters, your personal immunology matters more. For instance, I have IgA nephropathy, so: "No evidence to point toward hypersensitivity to food antigens ..." https://www.ncbi.nlm.nih.gov/books/NBK538214/ https://www.ncbi.nlm.nih.gov/books/NBK538214/ However, I feel best when intermittent fasting or doing keto. (Don't do keto unless you can stay in ketosis.) I don't take anything for "inflammation reduction", and I tend to have fewer CRF-related responses when I'm not in an environment where I'm having any hypersensitivity responses to allergens. Getting a bad respiratory illness will 100% of the time trigger a flare up, as well as certain GI conditions. Immunity is characterized by cascade responses, and stopping your internal police force from getting the wrong idea and starting a riot that turns into a police state is a lifelong challenge. I've tried amino acid restriction, been on Prednisone, and am otherwise "healthy" by my routine panels.

paul7986 3y ago
I wish i could eat steak and cheeseburgers like i use to, but for me it all started with my first gout attack right before my kidney issue was spotted. I have had 5 to 6 gout attacks in the last 8 years. Last being a bad one in Sept 2022. My previous diet was going to steakhouses a few times a week with mac n cheese and mashed potatoes with country gravy as side dishes. Shared dessert with my dining partner(s). My body to enjoy the same full life of hiking up mountains, skiing, biking, swimming, enjoying lots of intimacy for years to come without drugs can no longer take my previous diet. I'd be on dialysis most likely now or in the next few years if I chose a bad diet over continuing to live the same full life ive always enjoyed by revolutionizing my diet.
- nradov 3y ago
  Fructose is involved in the metabolic pathway that leads to gout. You might want to try eliminating fructose from your diet for a while. https://peterattiamd.com/rickjohnson/ https://peterattiamd.com/rickjohnson/
  - paul7986 3y ago