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23andMe website > settings > Research & Product Consents. There are three options: - Research Consent Document: Allow 23andMe researchers to use your genetic
by ezfe 3y ago
23andMe website > settings > Research & Product Consents.
There are three options:
- Research Consent Document: Allow 23andMe researchers to use your genetic information to study a variety of topics, stripped of name and contact information and aggregated. May involve 3rd party collaborations including non-profits, pharmaceutical companies, and academic institutions. Results of research may be shared publicly.
- Health Records Project: Connect your data to your healthcare providers using "Human API"
- Individual Data Sharing: This is a supplement of the first one and includes additional data points, most of which come from interacting with the website.
This information is available directly on the page I referenced, not hidden in a ToS document.
- diggan 3y agoThanks! So none of those are checked by default and the user has to manually go to "Settings" and then "Consents"? If that's the case, I don't see what the issue is, people really gave them the consent to do what they're doing now.
- ezfe 3y agoRight, these require active consent from the user. The system will prompt the user to decide at enrollment time - they don't have to seek it out, but it certainly is not opt-out.