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Over 80% has checked that their DNA can be used for these kind of cases. So what is the problem, except for people not reading or caring?
by tiku 3y ago
Over 80% has checked that their DNA can be used for these kind of cases. So what is the problem, except for people not reading or caring?
- diggan 3y agoHow was that agreement collected? Was in similar to how OpenAI gets consent to use your data for further training, in that they disable certain unrelated features if you don't give consent, or was it unconditional?
- maronato 3y agoIt’s very explicit and can be revoked
- diggan 3y agoYou happen to know the exact wording and the location of the checkbox?
- ezfe 3y ago23andMe website > settings > Research & Product Consents. There are three options: - Research Consent Document: Allow 23andMe researchers to use your genetic information to study a variety of topics, stripped of name and contact information and aggregated. May involve 3rd party collaborations including non-profits, pharmaceutical companies, and academic institutions. Results of research may be shared publicly. - Health Records Project: Connect your data to your healthcare providers using "Human API" - Individual Data Sharing: This is a supplement of the first one and includes additional data points, most of which come from interacting with the website. This information is available directly on the page I referenced, not hidden in a ToS document.
- diggan 3y agoThanks! So none of those are checked by default and the user has to manually go to "Settings" and then "Consents"? If that's the case, I don't see what the issue is, people really gave them the consent to do what they're doing now.
- ezfe 3y agoRight, these require active consent from the user. The system will prompt the user to decide at enrollment time - they don't have to seek it out, but it certainly is not opt-out.
- deleted 3y ago[deleted]
- ranting-moth 3y agoWas is a pre-checked checkbox by any chance? There's also a few dark patterns to confuse the user to check the box. Put it next to a "Accept T&C" and people think they have to check it. Or word in a vague way. I doubt it said "We can sell your DNA to 3rd party who can then patent it".
- Clamchop 3y agoNo, none of this is true. They aren't playing games with consent. They even mention the potential for data breaches.