4 ms·
https://www.bnnbloomberg.ca/deleting-your-online-dna-data-is-brutally-difficult-1.1093531.amp.html https://www.bnnbloomberg.ca/deleting-your-online-dna-data-is.
by chaostheory 3y ago
https://www.bnnbloomberg.ca/deleting-your-online-dna-data-is-brutally-difficult-1.1093531.amp.html https://www.bnnbloomberg.ca/deleting-your-online-dna-data-is...
“The federal Clinical Laboratory Improvement Amendments (CLIA) of 1988 and California laboratory regulations require the lab store your de-identified genotyping test results and to keep a minimal amount of test result or analysis information,” an email from 23andMe said. “Our laboratory will retain your genetic information and a randomized identifier on their secure servers for a limited period of time, 10 years pursuant to CLIA regulations.”
I was friends with a former exec. At a party I remember him callously mentioning that you can’t delete data off their platform. I inquired a bit more and he pointed me to one of the laws referenced above
23andme is not lying in a legal sense. They seem to be deceptive though
- ezfe 3y agoThank you for filling in the gaps, So they delete everything they have under your name and the lab retains a copy of your sample and the sample results? On paper, this is sufficient because a sample + results is no more useful to someone nefarious then a piece of hair found on the ground... It only becomes a problem if they fail to delete any identifying information that could connect it to you...