4 ms·

23andme doesn’t delete your data. By law, they have to keep it for several more years before deletion

ezfe 3y ago
So you're saying they are lying? > Delete your 23andMe account and personal data, including your personal information, genetic data, and other information collected through your use of the Service. > Upon receiving your confirmation we will process your request to delete your data, and you will no longer be able to sign-in to your account. Please keep in mind it may take up to 30 days to fulfill your request. What's your basis for your claim?
- chaostheory 3y ago
  https://www.bnnbloomberg.ca/deleting-your-online-dna-data-is-brutally-difficult-1.1093531.amp.html https://www.bnnbloomberg.ca/deleting-your-online-dna-data-is... “The federal Clinical Laboratory Improvement Amendments (CLIA) of 1988 and California laboratory regulations require the lab store your de-identified genotyping test results and to keep a minimal amount of test result or analysis information,” an email from 23andMe said. “Our laboratory will retain your genetic information and a randomized identifier on their secure servers for a limited period of time, 10 years pursuant to CLIA regulations.” I was friends with a former exec. At a party I remember him callously mentioning that you can’t delete data off their platform. I inquired a bit more and he pointed me to one of the laws referenced above 23andme is not lying in a legal sense. They seem to be deceptive though
  - ezfe 3y ago
    Thank you for filling in the gaps, So they delete everything they have under your name and the lab retains a copy of your sample and the sample results? On paper, this is sufficient because a sample + results is no more useful to someone nefarious then a piece of hair found on the ground... It only becomes a problem if they fail to delete any identifying information that could connect it to you...

ezfe 3y ago

So you're saying they are lying? > Delete your 23andMe account and personal data, including your personal information, genetic data, and other information collected through your use of the Service. > Upon receiving your confirmation we will process your request to delete your data, and you will no longer be able to sign-in to your account. Please keep in mind it may take up to 30 days to fulfill your request. What's your basis for your claim?

chaostheory 3y ago
https://www.bnnbloomberg.ca/deleting-your-online-dna-data-is-brutally-difficult-1.1093531.amp.html https://www.bnnbloomberg.ca/deleting-your-online-dna-data-is... “The federal Clinical Laboratory Improvement Amendments (CLIA) of 1988 and California laboratory regulations require the lab store your de-identified genotyping test results and to keep a minimal amount of test result or analysis information,” an email from 23andMe said. “Our laboratory will retain your genetic information and a randomized identifier on their secure servers for a limited period of time, 10 years pursuant to CLIA regulations.” I was friends with a former exec. At a party I remember him callously mentioning that you can’t delete data off their platform. I inquired a bit more and he pointed me to one of the laws referenced above 23andme is not lying in a legal sense. They seem to be deceptive though
- ezfe 3y ago
  Thank you for filling in the gaps, So they delete everything they have under your name and the lab retains a copy of your sample and the sample results? On paper, this is sufficient because a sample + results is no more useful to someone nefarious then a piece of hair found on the ground... It only becomes a problem if they fail to delete any identifying information that could connect it to you...