5 ms·

Brandon Gilles Dies from Long-Covid, Electrical Engineer and Spatial AI Pioneer

30 points by ck2 3y ago

ck2 3y ago
Found this old interview with him, it's sad to see someone with so much energy taken down. https://www.youtube.com/watch?v=-DG2LOj8Upw https://www.youtube.com/watch?v=-DG2LOj8Upw His long-covid google doc survives him, which I guess is what happens these days https://docs.google.com/document/d/1X3dNPgEuQ2j8x7w8OqLEDP7l2z8_SSgMN-XdM8Uk58Q/ https://docs.google.com/document/d/1X3dNPgEuQ2j8x7w8OqLEDP7l... (PDF) https://docs.google.com/document/export?format=pdf&id=1X3dNPgEuQ2j8x7w8OqLEDP7l2z8_SSgMN-XdM8Uk58Q https://docs.google.com/document/export?format=pdf&id=1X3dNP...
- DrFlipper 3y ago
  That vaccination timeline is... interesting. But it would be a wild conspiracy to say more.
  - gyzmau 3y ago
    if you come with facts, without generalisation on one case, we might listen and discuss. But with this kind of speech of 5 words, yup! That won't go far.
  - pfannkuchen 3y ago
    That document is incredibly long and I didn’t find any mention of vaccination in the sections I skimmed. What is the timeline you’re referring to?
    - gyzmau 3y ago
      in the document the author said: Moderna Vaccine as soon as I could get it First dose MODERNA COVID-19 VACCINE April 8th, 2021 ... Second dose MODERNA COVID-19 VACCINE May 6th, 2021 ... Interestingly as well, his family seems to have a very strong genetic propensity for ME/CFS. After I wont comment on the timeline, very hard to make a conclusion on a single case, and need to read all the document too. overall, that document is very interesting, It wont be possible to really conclude anything from it, I think. But surely it could be integrated to other study case to look for correlation or others stuff.
    - haldujai 3y ago
      It starts on page 102 on the PDF. I am not sure what's interesting about his vaccination timeline. What is interesting is on page 105: As of April 5, 2023 ... And overall, it’s clear from the data of what I can do in a day that I’m starting to recover, now already surpassing average walking from October of 2022. I only read the timeline and he doesn't describe being anywhere near organ failure over the 2 years described. He also states he had been cleared from multiple specialist physicians which suggests he did not have signs of end-organ dysfunction. It's hard to understand how this seemingly positive timeline ended in rapid decline and untimely death from multiple organ failure over 3.5 months unless something significant happened.
    - DrFlipper 3y ago
      From the Google doc, he had COVID in 2020 and made a quick and full recovery. On May 6th 2021 he had his second vaccination and, almost immediately, all of his bizarre health issues began. Search "COVID-19 January 11th 2020" to jump to this section.
      - bigtex 3y ago
        This gets ignored alot in the discussion about long covid.
  - RagnarD 3y ago
    Curious where you're seeing that?
  - jerlam 3y ago
    The PDF document starting on page 102 has the timeline including vaccination and symptoms. It also contains: - A family history of ME/CFS and schizophrenia - The author's own experience with ME/CFS - Successful self-treatment of ME/CFS and pre-schizophrenia It puts the rest of the document in context.
- RandomWorker 3y ago
  So sad, we were born in the same year. Interview was great
- zingababba 3y ago
  I wonder how much of what he was taking added to his distressed state. There's a ton of supplements listed there. I understand wanting to get better as I'm also dealing with long covid symptoms (histamine issues, inflammation, etc.) and understand the extreme internal discordance it can cause - I just want to get back to normal! But it's necessary to be cautious with what you throw at yourself, I've personally experienced several negative reactions (sometimes catching them quite late) from supplements I have experimented with in efforts to get well.
ck2 3y ago
I started wondering about the source website I linked and despite the lack of another site with all the information in one place I am not so sure I should have linked it based on the other "articles" on that website. It's unprovable but feels like it was written by ChatGPT or assisted? If a better source is found, feel free to either replace the link or delist this thread?
bcatanzaro 3y ago
I didn't know Long COVID could cause multiple organ failure and death.
- ck2 3y ago
  There's isn't just one kind of long-covid but it can via several mechanisms. There's no scientific term for it but some call it premature aging or radical aging. It takes awhile to happen, but he caught covid in 2020 so it's been over three years. What spooks me is he was really intelligent and researched everything about it extensively but it was useless in the end. There are likely to be more and more people from 2020 and then later with this happening on a time-delay.
- NoZebra120vClip 3y ago
  Interesting how a crowd of people who rest their faith on "settled science" and "solid consensus" and "proven clinical trials" and "peer-reviewed research" start to pass rumors, exaggerations, and fake news about something that isn't even an ICD-10.
haldujai 3y ago
With all respect to Brandon Gilles, I have never heard of "dying from long covid" before and am trying to understand what this means. There is a huge discrepancy and a lot of detail missing between "developed Long-COVID symptoms such as brain fog, fatigue, muscle pain and shortness of breath" and "he suffered from multiple organ failures". I tried searching but have not found anything (yes I know some death certificates list long-covid as a contributory cause in CDC data, but one can list anything on a death certificate). Does anyone have a source/case report explaining this or detailing a case? (Please note I am not trying to start a political debate regarding COVID out of a man's obituary, I am genuinely curious if anyone has information about this as I've never heard a causative claim before)
- latchkey 3y ago
  It was an easy google search ("covid multiple organ failure") with a bunch of responses, including: https://medicine.wustl.edu/news/repeat-covid-19-infections-increase-risk-of-organ-failure-death/ https://medicine.wustl.edu/news/repeat-covid-19-infections-i... https://onlinelibrary.wiley.com/doi/10.1002/jmv.27627 https://onlinelibrary.wiley.com/doi/10.1002/jmv.27627 https://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-022-07402-6 https://bmcinfectdis.biomedcentral.com/articles/10.1186/s128...
  - haldujai 3y ago
    All of your sources are about acute or active covid infection. As a physician who worked in an ECMO center during the pandemic I am well aware of severe Covid-19 infections and as I stated in my post I tried searching, specifically looking on: UpToDate, Medscape and Google Scholar. I am asking about "long-covid", also called "post covid condition". From Brandon's own description he had what would be classified as "mild COVID-19 illness" and was never hospitalized. He had some persistent symptoms that may be attributable to "long-covid", this is very different from your sources. I have never heard of a death from long-term sequelae in someone who has never been hospitalized.
    - deleted 3y ago
      [deleted]

30 points by ck2 3y ago

ck2 3y ago

Found this old interview with him, it's sad to see someone with so much energy taken down. https://www.youtube.com/watch?v=-DG2LOj8Upw https://www.youtube.com/watch?v=-DG2LOj8Upw His long-covid google doc survives him, which I guess is what happens these days https://docs.google.com/document/d/1X3dNPgEuQ2j8x7w8OqLEDP7l2z8_SSgMN-XdM8Uk58Q/ https://docs.google.com/document/d/1X3dNPgEuQ2j8x7w8OqLEDP7l... (PDF) https://docs.google.com/document/export?format=pdf&id=1X3dNPgEuQ2j8x7w8OqLEDP7l2z8_SSgMN-XdM8Uk58Q https://docs.google.com/document/export?format=pdf&id=1X3dNP...

DrFlipper 3y ago
That vaccination timeline is... interesting. But it would be a wild conspiracy to say more.
- gyzmau 3y ago
  if you come with facts, without generalisation on one case, we might listen and discuss. But with this kind of speech of 5 words, yup! That won't go far.
- pfannkuchen 3y ago
  That document is incredibly long and I didn’t find any mention of vaccination in the sections I skimmed. What is the timeline you’re referring to?
  - gyzmau 3y ago
    in the document the author said: Moderna Vaccine as soon as I could get it First dose MODERNA COVID-19 VACCINE April 8th, 2021 ... Second dose MODERNA COVID-19 VACCINE May 6th, 2021 ... Interestingly as well, his family seems to have a very strong genetic propensity for ME/CFS. After I wont comment on the timeline, very hard to make a conclusion on a single case, and need to read all the document too. overall, that document is very interesting, It wont be possible to really conclude anything from it, I think. But surely it could be integrated to other study case to look for correlation or others stuff.
  - haldujai 3y ago
    It starts on page 102 on the PDF. I am not sure what's interesting about his vaccination timeline. What is interesting is on page 105: As of April 5, 2023 ... And overall, it’s clear from the data of what I can do in a day that I’m starting to recover, now already surpassing average walking from October of 2022. I only read the timeline and he doesn't describe being anywhere near organ failure over the 2 years described. He also states he had been cleared from multiple specialist physicians which suggests he did not have signs of end-organ dysfunction. It's hard to understand how this seemingly positive timeline ended in rapid decline and untimely death from multiple organ failure over 3.5 months unless something significant happened.
  - DrFlipper 3y ago
    From the Google doc, he had COVID in 2020 and made a quick and full recovery. On May 6th 2021 he had his second vaccination and, almost immediately, all of his bizarre health issues began. Search "COVID-19 January 11th 2020" to jump to this section.
    - bigtex 3y ago
      This gets ignored alot in the discussion about long covid.
- RagnarD 3y ago
  Curious where you're seeing that?
- jerlam 3y ago
  The PDF document starting on page 102 has the timeline including vaccination and symptoms. It also contains: - A family history of ME/CFS and schizophrenia - The author's own experience with ME/CFS - Successful self-treatment of ME/CFS and pre-schizophrenia It puts the rest of the document in context.
RandomWorker 3y ago
So sad, we were born in the same year. Interview was great
zingababba 3y ago
I wonder how much of what he was taking added to his distressed state. There's a ton of supplements listed there. I understand wanting to get better as I'm also dealing with long covid symptoms (histamine issues, inflammation, etc.) and understand the extreme internal discordance it can cause - I just want to get back to normal! But it's necessary to be cautious with what you throw at yourself, I've personally experienced several negative reactions (sometimes catching them quite late) from supplements I have experimented with in efforts to get well.

ck2 3y ago

I started wondering about the source website I linked and despite the lack of another site with all the information in one place I am not so sure I should have linked it based on the other "articles" on that website. It's unprovable but feels like it was written by ChatGPT or assisted? If a better source is found, feel free to either replace the link or delist this thread?

bcatanzaro 3y ago

I didn't know Long COVID could cause multiple organ failure and death.

ck2 3y ago
There's isn't just one kind of long-covid but it can via several mechanisms. There's no scientific term for it but some call it premature aging or radical aging. It takes awhile to happen, but he caught covid in 2020 so it's been over three years. What spooks me is he was really intelligent and researched everything about it extensively but it was useless in the end. There are likely to be more and more people from 2020 and then later with this happening on a time-delay.
NoZebra120vClip 3y ago
Interesting how a crowd of people who rest their faith on "settled science" and "solid consensus" and "proven clinical trials" and "peer-reviewed research" start to pass rumors, exaggerations, and fake news about something that isn't even an ICD-10.

haldujai 3y ago

With all respect to Brandon Gilles, I have never heard of "dying from long covid" before and am trying to understand what this means. There is a huge discrepancy and a lot of detail missing between "developed Long-COVID symptoms such as brain fog, fatigue, muscle pain and shortness of breath" and "he suffered from multiple organ failures". I tried searching but have not found anything (yes I know some death certificates list long-covid as a contributory cause in CDC data, but one can list anything on a death certificate). Does anyone have a source/case report explaining this or detailing a case? (Please note I am not trying to start a political debate regarding COVID out of a man's obituary, I am genuinely curious if anyone has information about this as I've never heard a causative claim before)

latchkey 3y ago
It was an easy google search ("covid multiple organ failure") with a bunch of responses, including: https://medicine.wustl.edu/news/repeat-covid-19-infections-increase-risk-of-organ-failure-death/ https://medicine.wustl.edu/news/repeat-covid-19-infections-i... https://onlinelibrary.wiley.com/doi/10.1002/jmv.27627 https://onlinelibrary.wiley.com/doi/10.1002/jmv.27627 https://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-022-07402-6 https://bmcinfectdis.biomedcentral.com/articles/10.1186/s128...
- haldujai 3y ago
  All of your sources are about acute or active covid infection. As a physician who worked in an ECMO center during the pandemic I am well aware of severe Covid-19 infections and as I stated in my post I tried searching, specifically looking on: UpToDate, Medscape and Google Scholar. I am asking about "long-covid", also called "post covid condition". From Brandon's own description he had what would be classified as "mild COVID-19 illness" and was never hospitalized. He had some persistent symptoms that may be attributable to "long-covid", this is very different from your sources. I have never heard of a death from long-term sequelae in someone who has never been hospitalized.
  - deleted 3y ago
    [deleted]