6 ms·

I'm sorry. I got Omicron in January '22 despite being double vaxx'd, and I felt totally fine until 3-4 mo. later when I started to get recurrent dizzy spells,

I'm sorry. I got Omicron in January '22 despite being double vaxx'd, and I felt totally fine until 3-4 mo. later when I started to get recurrent dizzy spells, major fatigue, and bouts of anxiety, which are all very unusual for me. Checkup / bloodwork showed nothing. I am 41 y.o. who exercise regularly, does not smoke, rarely drinks, etc. So far I can still function and maintain a job, but it makes me wonder what's going on inside of me that 11 months later it's still causing these issues regularly. Our 4 y.o. son got it as well and although he was asymptomatic I am still very concerned about what the long-term effects on him may be. I am not a doctor and this is not medical advice, but I read a paper saying that hyperbaric oxygen therapy helped some people, so I've been using Wim Hoff breathing as a poor man's version. It does seems to help with the fatigue but not the vertigo. Best of luck. Wim Hoff Breathing: https://www.youtube.com/watch?v=tybOi4hjZFQ https://www.youtube.com/watch?v=tybOi4hjZFQ

mmastrac 4y ago
Low dose aspirin worked for me, YMMV.
- stuntkite 4y ago
  There's a balance with that sort of thing though. Thinner blood to alleviate the constriction, if kept constant can cause other problems. Definitely not the worst band aid in the world though.
  - mmastrac 4y ago
    Definitely - it's mostly to clear out the cobwebs and get back to normal rather than a long-term thing.
- nradov 4y ago
  How do you know it worked?
stuntkite 4y ago
My sister recommended Wim Hoff. I'll scope it out. I had been considering buying an o2 concentrator since 2020 and I do have some voice/breath training and have found some exercises related to that that aren't dissimilar from Wim Hoff show some reduction in symptoms. Honestly, I feel very lucky to be as functional as I am. I do worry about how medical and political systems are responding to COVID and long COVID, but largely I think good care is going to come from the bottom up and not top down. I'm comfortable(ish) with a reality that I might just suddenly drop dead tomorrow, but this experience has given me a new appreciation for the health I have that I could not have fathomed before. Because I can alleviate symptoms with diet and directed exercise and it does appear to have a cumulative effect on their reduction, I think recovery is possible without intense intervention. I don't even mind being more spacey and a bit dumber. It suits me a bit and has changed the pace of my life in a way that once I embraced has been good. My biggest worry is that if I suddenly die and how devastating that would be for people that depend on me, but I think without an infection of a new virus or several viruses I might live a shorter, but alright life. My chance of suddenly dying because I got light headed in an elevator now being slightly higher than my chance of being crushed by a vending machine.
- nradov 4y ago
  There is no proven health benefit to using an oxygen concentrator for patients without lung disease (such as emphysema). The limiting factor in delivering oxygen to tissues is hemoglobin, not inhaled PPO2. Extended exposure to elevated PPO2 can cause oxidative damage to lungs and nerves, especially above about 0.5 bar, so you don't necessarily want to use it unless you need it.
  - stuntkite 4y ago
    This is solid info constructed in a form that includes so much that I needed. I did not have any designs, really, to go into this and experiment on myself, but you know... the wikis do pile up. Thank so so much for this. Very useful information.
CobaltFire 4y ago
I had a vertigo issue crop up recently and was able to get it diagnosed (working in military aviation they take this stuff pretty seriously); I don't know that it will help but it's one avenue to look down: One of my inner ear canal output signals dropped by about 75%. There is a diagnostic test they can do; more basic tests showed nothing but this more sensitive one showed it clear as day. No-one can tall me WHY the nerves are outputting a weaker signal and I couldn't tell you if it's related but it's something that doesn't get checked much.
- stuntkite 4y ago
  Very interesting. My homunculus is very ears forward. A lot of my work and fun revolves around my relationship with sound. I did a hearing test last year. It was fine. I have not directly noticed any issues with my hearing, but I recognize that the types of things I might be experiencing might not be so much perceived as hearing but more as orientation, balance, or even be queues to memory that could be altered. If you had the information available, I'd be very interested to know the names of the diagnostic tests you took. Analysis of how I'm hearing is something I'm uniquely able to analyze over time and compare to medically conducted tests. While I think I know how the second test might have worked, I don't know what I'd call such a test to look for it. I think analysis of hearing on newly infected to post care of people with COVID and Long COVID could provide useful hints that most other methods might not be able to detect.
  - CobaltFire 4y ago
    The actual name of the test I had is Videonystagmography. It identified not just the issue but the actual specific structure that was giving me issues. This has no impact on hearing, so wouldn't be caught by those tests.
    - stuntkite 4y ago
      Hell yes. This is the exact info I wanted. Thank you.
dm03514 4y ago
I had an 8 week dizzy spell in fall of 2020. Never had anything like it before, didn’t have any other symptoms. Went to ENT and ears were completely fine. I have no idea if it was anxiety or Covid, but the dizziness was disorienting, at the worst I couldn’t walk , it felt like I was on a boat. During this time I had anxiety attacks almost non stop-triggered by the vertigo. As soon as I started to notice the vertigo I would begin to spiral because it was so unprecedented and disorienting. It just cleared up on its own after 8 weeks. Part of the vertigo was dizzy spells every time I stood up. I had ~ptsd from it for a full year, every time I stood up I would brace for the vertigo , Hope you find some relief soon
- bitL 4y ago
  NAD+ depletion might lead to problems with cerebellum which might cause dizziness unrelated to ENT.
- anonAndOn 4y ago
  Covid can do some strange stuff. FWIW, I've found the Epley maneuver helpful with BPPV.[0] [0]http://sanfordhealth.staywellhealthlibrary.com/Search/134,512 http://sanfordhealth.staywellhealthlibrary.com/Search/134,51...
bitL 4y ago
Get an NAD+ booster like Niagen or liposomal NMN; Covid (even mild) seems to deplete a month worth of NAD+ reserves in a few days. You might want to combine it with megadoses of B1 that improve enzymatic affinity after major viral infections. NAC might be helpful as well.
heavyset_go 4y ago
Viruses can persist in tissues after infection even if they aren't circulating throughout the body. One weird example of this is when Ebola was going around. Some patients who survived it had antibodies that fought the infection to the point where it was undetectable, but the virus had retreated to the patients' eyes[1], where it continued to replicate in cells and cause eye disease[2]. Same thing can happen with EBV, where it is responsible for some flare up of symptoms post-infection, and chicken pox becoming symptomatic years after infection as shingles. I wouldn't be surprised if long COVID symptoms are caused by latent COVID infections. [1] https://www.sciencedaily.com/releases/2017/07/170717091954.htm https://www.sciencedaily.com/releases/2017/07/170717091954.h... [2] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5988239/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5988239/
- nradov 4y ago
  There is no reliable evidence that coronaviruses can remain dormant in the body of a recovered patient. They don't work like herpesviruses.
  - stuntkite 4y ago
    Very true, but we know almost nothing about what it's doing in the body in the short or long term other than some very dramatic lethal pathologies. If you aren't experiencing something like this in your life than it's easy to wait to know what evidence is there, but if you are... Well, just because scientists that I don't know haven't published a paper doesn't mean that exploration of an idea or possibility can't have a positive effect on my outcome. Sometimes that effect might be because I've looked at that possibility so much over time that it just isn't relevant to me, even though later it might come out that the effect or subsequent compounding effect were relevant. Anyway, while what you said could be true, it presents as an absolute that is only relevant to people who aren't studying this or are afflicted with it.
  - croes 4y ago
    But there are clues that for some the virus stays for month after the infection https://www.nationalgeographic.com/science/article/persisting-coronavirus-could-drag-out-covid-19-symptoms https://www.nationalgeographic.com/science/article/persistin...
eurasiantiger 4y ago
That seems like textbook PTSD.

mmastrac 4y ago

Low dose aspirin worked for me, YMMV.

stuntkite 4y ago
There's a balance with that sort of thing though. Thinner blood to alleviate the constriction, if kept constant can cause other problems. Definitely not the worst band aid in the world though.
- mmastrac 4y ago
  Definitely - it's mostly to clear out the cobwebs and get back to normal rather than a long-term thing.
nradov 4y ago
How do you know it worked?

stuntkite 4y ago

My sister recommended Wim Hoff. I'll scope it out. I had been considering buying an o2 concentrator since 2020 and I do have some voice/breath training and have found some exercises related to that that aren't dissimilar from Wim Hoff show some reduction in symptoms. Honestly, I feel very lucky to be as functional as I am. I do worry about how medical and political systems are responding to COVID and long COVID, but largely I think good care is going to come from the bottom up and not top down. I'm comfortable(ish) with a reality that I might just suddenly drop dead tomorrow, but this experience has given me a new appreciation for the health I have that I could not have fathomed before. Because I can alleviate symptoms with diet and directed exercise and it does appear to have a cumulative effect on their reduction, I think recovery is possible without intense intervention. I don't even mind being more spacey and a bit dumber. It suits me a bit and has changed the pace of my life in a way that once I embraced has been good. My biggest worry is that if I suddenly die and how devastating that would be for people that depend on me, but I think without an infection of a new virus or several viruses I might live a shorter, but alright life. My chance of suddenly dying because I got light headed in an elevator now being slightly higher than my chance of being crushed by a vending machine.

nradov 4y ago
There is no proven health benefit to using an oxygen concentrator for patients without lung disease (such as emphysema). The limiting factor in delivering oxygen to tissues is hemoglobin, not inhaled PPO2. Extended exposure to elevated PPO2 can cause oxidative damage to lungs and nerves, especially above about 0.5 bar, so you don't necessarily want to use it unless you need it.
- stuntkite 4y ago
  This is solid info constructed in a form that includes so much that I needed. I did not have any designs, really, to go into this and experiment on myself, but you know... the wikis do pile up. Thank so so much for this. Very useful information.

CobaltFire 4y ago

I had a vertigo issue crop up recently and was able to get it diagnosed (working in military aviation they take this stuff pretty seriously); I don't know that it will help but it's one avenue to look down: One of my inner ear canal output signals dropped by about 75%. There is a diagnostic test they can do; more basic tests showed nothing but this more sensitive one showed it clear as day. No-one can tall me WHY the nerves are outputting a weaker signal and I couldn't tell you if it's related but it's something that doesn't get checked much.

stuntkite 4y ago
Very interesting. My homunculus is very ears forward. A lot of my work and fun revolves around my relationship with sound. I did a hearing test last year. It was fine. I have not directly noticed any issues with my hearing, but I recognize that the types of things I might be experiencing might not be so much perceived as hearing but more as orientation, balance, or even be queues to memory that could be altered. If you had the information available, I'd be very interested to know the names of the diagnostic tests you took. Analysis of how I'm hearing is something I'm uniquely able to analyze over time and compare to medically conducted tests. While I think I know how the second test might have worked, I don't know what I'd call such a test to look for it. I think analysis of hearing on newly infected to post care of people with COVID and Long COVID could provide useful hints that most other methods might not be able to detect.
- CobaltFire 4y ago
  The actual name of the test I had is Videonystagmography. It identified not just the issue but the actual specific structure that was giving me issues. This has no impact on hearing, so wouldn't be caught by those tests.
  - stuntkite 4y ago
    Hell yes. This is the exact info I wanted. Thank you.

dm03514 4y ago

I had an 8 week dizzy spell in fall of 2020. Never had anything like it before, didn’t have any other symptoms. Went to ENT and ears were completely fine. I have no idea if it was anxiety or Covid, but the dizziness was disorienting, at the worst I couldn’t walk , it felt like I was on a boat. During this time I had anxiety attacks almost non stop-triggered by the vertigo. As soon as I started to notice the vertigo I would begin to spiral because it was so unprecedented and disorienting. It just cleared up on its own after 8 weeks. Part of the vertigo was dizzy spells every time I stood up. I had ~ptsd from it for a full year, every time I stood up I would brace for the vertigo , Hope you find some relief soon

bitL 4y ago
NAD+ depletion might lead to problems with cerebellum which might cause dizziness unrelated to ENT.
anonAndOn 4y ago
Covid can do some strange stuff. FWIW, I've found the Epley maneuver helpful with BPPV.[0] [0]http://sanfordhealth.staywellhealthlibrary.com/Search/134,512 http://sanfordhealth.staywellhealthlibrary.com/Search/134,51...

bitL 4y ago

Get an NAD+ booster like Niagen or liposomal NMN; Covid (even mild) seems to deplete a month worth of NAD+ reserves in a few days. You might want to combine it with megadoses of B1 that improve enzymatic affinity after major viral infections. NAC might be helpful as well.

heavyset_go 4y ago

Viruses can persist in tissues after infection even if they aren't circulating throughout the body. One weird example of this is when Ebola was going around. Some patients who survived it had antibodies that fought the infection to the point where it was undetectable, but the virus had retreated to the patients' eyes[1], where it continued to replicate in cells and cause eye disease[2]. Same thing can happen with EBV, where it is responsible for some flare up of symptoms post-infection, and chicken pox becoming symptomatic years after infection as shingles. I wouldn't be surprised if long COVID symptoms are caused by latent COVID infections. [1] https://www.sciencedaily.com/releases/2017/07/170717091954.htm https://www.sciencedaily.com/releases/2017/07/170717091954.h... [2] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5988239/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5988239/

nradov 4y ago
There is no reliable evidence that coronaviruses can remain dormant in the body of a recovered patient. They don't work like herpesviruses.
- stuntkite 4y ago
  Very true, but we know almost nothing about what it's doing in the body in the short or long term other than some very dramatic lethal pathologies. If you aren't experiencing something like this in your life than it's easy to wait to know what evidence is there, but if you are... Well, just because scientists that I don't know haven't published a paper doesn't mean that exploration of an idea or possibility can't have a positive effect on my outcome. Sometimes that effect might be because I've looked at that possibility so much over time that it just isn't relevant to me, even though later it might come out that the effect or subsequent compounding effect were relevant. Anyway, while what you said could be true, it presents as an absolute that is only relevant to people who aren't studying this or are afflicted with it.
- croes 4y ago
  But there are clues that for some the virus stays for month after the infection https://www.nationalgeographic.com/science/article/persisting-coronavirus-could-drag-out-covid-19-symptoms https://www.nationalgeographic.com/science/article/persistin...

eurasiantiger 4y ago

That seems like textbook PTSD.