I see a lot of controversial comments about race, etc. Well the big joke is is that there are huge ancestry biases in genetic databases. They are not represen

I see a lot of controversial comments about race, etc. Well the big joke is is that there are huge ancestry biases in genetic databases. They are not representative of much of humanity. The other thing I think people here are not considering is the issue of informed consent on the part of the patient. When patients agree to give biological samples, they generally do so with the understanding that that they will be used for a particular purpose or within some scope. It is unethical for researchers to use the bio samples or data outside the bounds of patient consent because it is disrespectful and violates their autonomy. For example, if I tell you that I am going to use your DNA to cure cancer, and then turn around and give it to someone who wants to develop a bio weapon (or targeted ads), that is not cool. You would probably feel duped, and never would have agreed had you known it could be used for such purposes. This is kind of an extreme example, but hopefully it makes the issue clear. My guess is that this is less about “censorship” and more about legal issues around patient consent.