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I had really bad IBS from consuming water on a tropical island in Panama one time and suffered for a few years with even my doctor friend telling me "Damn that
by jamal-kumar 4y ago
I had really bad IBS from consuming water on a tropical island in Panama one time and suffered for a few years with even my doctor friend telling me "Damn that sucks, not much you can do except manage". Pretty horrible symptoms until I discovered L. Reuteri. [1] I read that it's been a bacteria that was more commonly found in samples until around the 1950s when people started consuming more garbage processed food and was sold. Simply stated, it changed my life. It emits a substance called Reuterin which inhibits the growth of other more harmful bacterial species. [2] I can't speak personally for suffering on the level of Crohn's disease, but there's positive research out there regarding it. [3] [4]
[1] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5917019/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5917019/
[2] https://en.wikipedia.org/wiki/Reuterin https://en.wikipedia.org/wiki/Reuterin
[3] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7270012/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7270012/
[4] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7468961/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7468961/
- ng12 4y ago> Damn that sucks, not much you can do except manage This has been my entire experience with gastroenterology as a field. Once they rule out cancer there's really not much they can do for you. Meanwhile, I'm waiting for the revolution in our understanding of the microbiome.
- kevinmchugh 4y agoI couldn't swallow pills before, my gastroenterologist performed surgery which corrected that. She also proscribed pills which address my GERD
- ng12 4y agoThat's fair. Guess I'm mostly talking about the other end of the system :)
- danachow 4y agoThere are actually biologic treatments for Crohn's/UC, not everyone responds but they produce remission which can spare or prolong time to surgery for many.
- aszantu 4y agoit's perfectly okay to cut out everything that triggers GERD, see fiber menace
- kevinmchugh 4y agoMy life would be significantly less enjoyable without the foods that trigger my GERD. I'll stick with the small, cheap pill that lets me continue to enjoy carbonation, hot drinks, spice, chocolate, acidity, dairy, fried foods
- Mayzie 4y agoIf that pill is esomeprazole / Nexium or other proton-pump inhibitor, do note that repeated use is correlated with early onset osteoporosis.
- kevinmchugh 4y agoMy doctor informed me of the side effects when she gave me the prescription.
- Mildlypolite 4y agoMy advice is to go to microbiome experts like Dr Borody, he has a lot more tools to help like fecal transplants and antibiotica for Crohn (long story, look at his videos). Borody is the one who invented the triple antibiotics therapy for the helicobacter pylori.
- wincy 4y agoI’ve been throwing up for a year straight. Recently it has gotten worse. The only thing that seems to help is weight loss. I just feel like there’s shit in the back of my throat multiple times a day (which I mean, there is) but the only way to clear it to my body’s satisfaction is throwing up. Gastroenterologist took a look and said everything looked fine. Thanks, doc, very helpful.
- smilliken 4y agoConsider getting tested for lyme disease if you haven't already.
- kkknvcf 4y agoIf you smoke a lot of pot it could be that cannabis hyperemesis thing people are getting
- FunnyLookinHat 4y agoYou should get a gastric-emptying study done. I had similar symptoms and was diagnosed with gastroparesis. Unfortunately, it's one of those "not much we can do" situations, but knowing what the underlying issue was allowed me to find a diet that got me back to a semi-normal life.
- wincy 4y agoNot sure why people flagged the guy who said if I smoked a lot of pot it could be causing this. He’s totally right, my doctor did in fact ask me if I smoke a lot of marijuana or anything, as it can cause excessive vomiting. But no, that’s not why in my case at least. If someone could unflag him that’d be cool but I apparently can’t.
- amluto 4y agoI’m not a doctor, and I don’t like to be that person pretending they know anything about other people’s problems, but two things come to mind, both long shots, that may plausibly help with the sensation of something in your throat: Gaviscon and Chloraseptic. Gaviscon (supposedly) reduces reflux by changing the physical properties of the contents of your stomach. Chloraseptic literally numbs your throat. They’re both available OTC. Read the labels before using :). You could also try seeing an ENT.
- cozos 4y agohad the same experience. spent a couple thousand on colonoscopy and when the results were benign and it was "just" IBS, the gastroenterologist basically told me to go fuck myself. And eat more fiber.
- folli 4y agoReuterin which is a broad spectrum antibiotic... Ironic.
- DantesKite 4y agoAlong those same lines, Visbiome and homemade kefir (the kind at the store isn't technically kefir) helped me out immensely.
- metadat 4y agoWhich tropical island, specifically? It sounds horrible, I'm sorry that happened to you.
- jamal-kumar 4y agoIsla Bastimentos. It's in an archipelago that was like a pirate enclave back in the day where they speak a mixture of Spanish, English and French. Very cool place, I go to that region at least once a year actually - But that first one I was pretty naive and did what you shouldn't do, which is consume tap water (even if boiled) on a tropical island. What's fun to do in that region is waking up early to take one of the speedboats that drops you off on cayes zapatillas, which are these small islands you can walk around in around 20 minutes. Make sure to bring water and wear sunscreen of course, but you get to feel like you're on a treasure island for a day and there's good snorkeling/diving reefs around there as well.
- metadat 4y agoAre you saying you always boiled it and still ended up sick? If so, terrifying.
- jamal-kumar 4y agoJust once. Drink bottled water when you go to these places. They are tropical islands covered in jungle trees where pumas swim between these islands, it's not that hard to realize why when you think about how water flows in a place where everything is trying to kill. It's terrifying until you realize all nature isn't disney.
- GoodJokes 4y ago
- AdmiralAsshat 4y agoFellow IBS-sufferer here. Runs in my family. So doing a search for "Reuteri" on Amazon, I immediately see several pages worth of supplements, with such helpful reviews as "HELPS DIGESTION. ENLARGES TESTICLES."[0] How do you separate the trustworthy supplements from the snake oil? [0] https://a.co/d/4Qa1iy1 https://a.co/d/4Qa1iy1
- vimy 4y agoIf reddit anecdotes are to be believed the enlarged testicles are true. https://www.reddit.com/r/Supplements/comments/9pdrg1/my_experience_using_lactobacillus_reuteri_atcc/ https://www.reddit.com/r/Supplements/comments/9pdrg1/my_expe... https://www.reddit.com/r/Supplements/comments/m3ywju/questions_about_lactobacillus_reuteri_l_reuteri/ https://www.reddit.com/r/Supplements/comments/m3ywju/questio... There are more but just linking these two.
- b112 4y agoIn places like this on reddit, so many posts are just influencer accounts. You'd probably be better off reading such reddit forums, and presuming the exact opposite happens. This is another area to clean up, in the digital age.
- xeromal 4y agoIt's pretty easy to suss out a lot of those accoutns just by looking at profile age and their comments. Sure, sometimes people sell their accounts but it'll be apparent eventually.
- heavyset_go 4y agoJust echoing this. I've worked with marketing agencies who use Reddit to post things like this for their clients. Both of those posts have the OP linking to specific products, with one of the OPs blatantly posting a referral link to a specific product. Even without the links or mentioning specific products or brands, marketers will post things like this to build up markets, audiences and anticipation for new products, in this case it is a specific species and variant of bacteria.
- webstrand 4y agoHow did it change your life? Did you take a supplement containing it, or was it some experimental treatment?
- jamal-kumar 4y agoI don't have the shits every day anymore. Got it at a pharmacy.
- ThrowawayTestr 4y agoWhere do you get it?
- jamal-kumar 4y agoPharmacy
- rhexs 4y agoGo to any health food store and they’ll have a refrigerated section of all the placebo bacteria supplements you could ever want.
- jamal-kumar 4y agoYou speak from a position of disparagement but I'm living proof ¯\_(ツ)_/¯
- danielheath 4y agoThe world has no shortage of “I don’t understand this so it couldn’t be important” in daily life, let alone online.
- oneoff786 4y agoYou can test if a probiotic is actually alive. They may not provide the effect you want but they’re probably not placebos. The good ones at least.
- anonporridge 4y agoTest I found if anyone else is wondering. https://drformulas.com/blogs/news/probiotic-milk-test-how-do-you-know-probiotics-are-working https://drformulas.com/blogs/news/probiotic-milk-test-how-do...
- numpad0 4y agoCan it be done with disposable syringes? They are available cheaply for kids's experiments and sometimes look more anaerobic than saran wraps.
- Aaargh20318 4y agoDo you need to keep taking this or is it enough to take it a while and repopulate your guts ? How long until you saw results ?
- jamal-kumar 4y agoI took a couple of 40$ boxes of it for a few weeks and ever since, I've had no problems. Pretty great! I buy a box every now and then since then just to keep it up. It's like the most expensive probiotic on the shelf, but it works. Oh yeah, and I also stopped consuming crap that goes in the fridge or freezer ready to eat a long long time ago. I think that might have something to do with it. They found that there's certain harmful bacterial species which proliferate in such environments [1] [1] https://ask.usda.gov/s/article/Can-bacteria-grow-in-the-refrigerator https://ask.usda.gov/s/article/Can-bacteria-grow-in-the-refr...
- sprokolopolis 4y agoAlso, people who are eating too many pre-made/processed/frozen foods might not be eating enough fresh, organic fruits and vegetables, which are a great source of helpful bacteria and the prebiotic fibers that keep them alive.
- xeromal 4y agoJumping on this, modern refrigeration has helped us, as humans, tremendously in a lot of ways but hurts us too. Your example is a good one, but there's also certain kinds of mold that grow in the fridge on berries that cause weird stomach problems if you don't wash your fruit when you take it out.
- yumraj 4y agoSince it’s a Lactobacillus, I wonder if you can take the supplements and introduce it in home made yogurt? Then just consume the yogurt regularly. Not sure if anyone has ever tried anything like that..
- bluechair 4y agoYes you can make yogurt out of it. Technically speaking, lactobacillus refers to the fact that this bacterium produces lactic acid not that it consumes lactose. It’s easy to confuse. I just finished making 2 liters of yogurt with this bacterium this morning.
- yumraj 4y agoIs your yogurt culture just this bacteria or did you start with regular yogurt culture and added this?
- bsilvereagle 4y agoIt looks like this strain will indeed culture a yogurt - https://www.luvele.com/blogs/recipe-blog/how-to-make-l-reuteri-yogurt https://www.luvele.com/blogs/recipe-blog/how-to-make-l-reute...
- brigandish 4y agoThe part titled "THE BEST MILK TO USE" is not good advice. UHT (ultra heat treated milk) is far better to use for yoghurt making than normal milk (I say "normal" for someone from the UK where most milk consumed is pasteurised at lower temperatures to avoid denaturing the milk). Denaturing is a plus for making a yoghurt, and the high temperature also further removes bacteria that may spoil the yoghurt. It also means you don't need to go through the initial heating portion of most recipes and go straight to the fermentation phase at a lower temperature.
- yumraj 4y agoThis is seriously awesome. We make yogurt at home anyway, so it is very easy to introduce this. I’m assuming we can just add this to our culture and not make yogurt using just this, but I guess that will require some experimentation.