3 ms·
I have seen many studies where they say that qualified investigators can have access to the data if they sign lots of forms, agree to collaborate with (not just
by radford-neal 5y ago
I have seen many studies where they say that qualified investigators can have access to the data if they sign lots of forms, agree to collaborate with (not just acknowledge) the original authors, and wait six months for this all to be approved. I expect that I would be approved if I did all this, but it's not worth it. In some cases I suspect the study is flawed, but debunking it months later would be a lot of work for little return. In other cases, the study looks OK, but without ready access to the data to confirm this (and perhaps get more information with a more sophisticated analysis), it's really pretty much worthless.
Yes, worthless. As in no one should put any weight on such unconfirmable "evidence". It's just wasted effort by the investigators, who piddled away their time (and their funding agency's money) because they're not willing to release the data.
These are not studies where one would need 3 months to just understand what the variable names mean - perhaps the data was extracted from such a huge database, and perhaps there are issues with how that was done, but there are also quite possibly issues with what they did afterwards, which can be examined separately.
Comments by unqualified people on twitter are a fact of life. You can't get rid of them without also eliminating comments that reveal mistakes (even fraud) in what superficially seems like authoritative research. Your judgement that such uninformed comments are intentional lies is probably untrue in most cases.
- DarkmSparks 5y ago>Yes, worthless. As in no one should put any weight on such unconfirmable "evidence". It's just wasted effort by the investigators, who piddled away their time (and their funding agency's money) because they're not willing to release the data. And UK regulators definately do not. If they dont have sufficient data to be confident in the decision they make collecting more a requirement of reimbursement. Here is an example of the guidelines https://www.nice.org.uk/process/pmg20/chapter/reviewing-research-evidence https://www.nice.org.uk/process/pmg20/chapter/reviewing-rese... Taking only a single trial is worthless. Or rather about as useful as taking a murder suspects mothers testimony. Evidence based medicine is simply not broken by not handing out complex, expensive and commercially valuable data to everyone who would like a copy. Any more than the court system is not broken by keeping certain evidence from a jury. >Your judgement that such uninformed comments are intentional lies is probably untrue in most cases. Oh they definately are. Just look at the recent data on covid vaccines published by public health wales to see how bad that situation currently is.