4 ms·

It was my understanding that the existence of “long covid” is still debated as there hasn’t been any real evidence for it other than patient anecdotes.

nradov 5y ago
Most any serious viral infection can potentially cause post-viral fatigue syndrome. We've known that for decades and COVID-19 is nothing special in that regard. https://pubmed.ncbi.nlm.nih.gov/3063394/ https://pubmed.ncbi.nlm.nih.gov/3063394/ But many cases of "long covid" appear to be psychosomatic. https://jamanetwork.com/journals/jamainternalmedicine/fullarticle/2785832 https://jamanetwork.com/journals/jamainternalmedicine/fullar...
- ciphol 5y ago
  And that's why this result is exciting - not only is it promising for long covid, but also for post-viral fatigue syndrome and chronic fatigue syndrome.
- henrikschroder 5y ago
  An old friend of mine has long covid, the real deal, but she was also sick in covid for months in 2020. What she has matches post-viral fatigue syndrome perfectly, and she's getting care for it, from realistic doctors who've been saying that recovery is gonna be slow but steady. She's better now, a year later. And then, just as you say, there's "long covid", which is a large number of people who have very generic ailments, and if you start digging into the numbers, you realize it's all self-reported bullshit, where a good chunk of the sufferers haven't even been diagnosed with covid in the first place! Their symptoms match depression very well, though. It's extremely frustrating watching people like my friend getting ridiculed for having an imaginary disease. She doesn't. And at the same time it's even more frustrating watching a relatively huge number of psychosomatic hypochondriacs getting all the attention and using up the wrong kind of healthcare resources, just because a lot of people are using long covid for generating fear porn and want it to be worse than it is.
deleted 5y ago
[deleted]
vnchr 5y ago
It has a strong following on HN. Personally, I haven’t heard about it anywhere else.
- sj4nz 5y ago
  The news media is kind of fickle about coverage about anything that doesn't get more ad revenue/impressions. Everyone's filter-bubble affects what they see. At least last July it got a minor boost of awareness from the White House: https://www.washingtonpost.com/politics/biden-ada-long-covid-disability/2021/07/26/972f2a04-ee20-11eb-a452-4da5fe48582d_story.html https://www.washingtonpost.com/politics/biden-ada-long-covid... Medically it just seems to fall outside the flowcharts of modern medicine where an "easy fix" or "procedure" is not prescribed. Going outside of the "acceptable medicine" of what insurance will cover is practically a unicorn event. So you'll see a lot of doctors just calling it "anxiety." Functionally, Long Haul Covid has become a huge cash bonus to medicine as sufferers get referred (passed around) from specialist to specialist for more testing and diagnostics that nearly always comes up as "normal." About the only good news about this situation is very likely once they really get the studies done (and they're going to have to do it, because there will be millions of people suffering from this) they are likely also going to find how to help people with chronic fatigue syndrome (CFS) since all the long hauling symptoms appear to over lap. CFS sufferers already have had the feeling of being ignored/ridiculed by medicine for decades.
- Brave-Steak 5y ago
codingdave 5y ago
> https://www.cdc.gov/coronavirus/2019-ncov/long-term-effects/index.html https://www.cdc.gov/coronavirus/2019-ncov/long-term-effects/... Highlighted on the page: "As of July 2021, 'long COVID,' also known as post-COVID conditions, can be considered a disability under the Americans with Disabilities Act (ADA). "

nradov 5y ago

Most any serious viral infection can potentially cause post-viral fatigue syndrome. We've known that for decades and COVID-19 is nothing special in that regard. https://pubmed.ncbi.nlm.nih.gov/3063394/ https://pubmed.ncbi.nlm.nih.gov/3063394/ But many cases of "long covid" appear to be psychosomatic. https://jamanetwork.com/journals/jamainternalmedicine/fullarticle/2785832 https://jamanetwork.com/journals/jamainternalmedicine/fullar...

ciphol 5y ago
And that's why this result is exciting - not only is it promising for long covid, but also for post-viral fatigue syndrome and chronic fatigue syndrome.
henrikschroder 5y ago
An old friend of mine has long covid, the real deal, but she was also sick in covid for months in 2020. What she has matches post-viral fatigue syndrome perfectly, and she's getting care for it, from realistic doctors who've been saying that recovery is gonna be slow but steady. She's better now, a year later. And then, just as you say, there's "long covid", which is a large number of people who have very generic ailments, and if you start digging into the numbers, you realize it's all self-reported bullshit, where a good chunk of the sufferers haven't even been diagnosed with covid in the first place! Their symptoms match depression very well, though. It's extremely frustrating watching people like my friend getting ridiculed for having an imaginary disease. She doesn't. And at the same time it's even more frustrating watching a relatively huge number of psychosomatic hypochondriacs getting all the attention and using up the wrong kind of healthcare resources, just because a lot of people are using long covid for generating fear porn and want it to be worse than it is.

deleted 5y ago

[deleted]

vnchr 5y ago

It has a strong following on HN. Personally, I haven’t heard about it anywhere else.

sj4nz 5y ago
The news media is kind of fickle about coverage about anything that doesn't get more ad revenue/impressions. Everyone's filter-bubble affects what they see. At least last July it got a minor boost of awareness from the White House: https://www.washingtonpost.com/politics/biden-ada-long-covid-disability/2021/07/26/972f2a04-ee20-11eb-a452-4da5fe48582d_story.html https://www.washingtonpost.com/politics/biden-ada-long-covid... Medically it just seems to fall outside the flowcharts of modern medicine where an "easy fix" or "procedure" is not prescribed. Going outside of the "acceptable medicine" of what insurance will cover is practically a unicorn event. So you'll see a lot of doctors just calling it "anxiety." Functionally, Long Haul Covid has become a huge cash bonus to medicine as sufferers get referred (passed around) from specialist to specialist for more testing and diagnostics that nearly always comes up as "normal." About the only good news about this situation is very likely once they really get the studies done (and they're going to have to do it, because there will be millions of people suffering from this) they are likely also going to find how to help people with chronic fatigue syndrome (CFS) since all the long hauling symptoms appear to over lap. CFS sufferers already have had the feeling of being ignored/ridiculed by medicine for decades.
Brave-Steak 5y ago

codingdave 5y ago

> https://www.cdc.gov/coronavirus/2019-ncov/long-term-effects/index.html https://www.cdc.gov/coronavirus/2019-ncov/long-term-effects/... Highlighted on the page: "As of July 2021, 'long COVID,' also known as post-COVID conditions, can be considered a disability under the Americans with Disabilities Act (ADA). "