6 ms·
I was diagnosed 3.5 years ago, the week after I turned 37. It's really interesting to see/hear/interpret the range of responses from people. Some people aren't
by benwills 5y ago
I was diagnosed 3.5 years ago, the week after I turned 37.
It's really interesting to see/hear/interpret the range of responses from people. Some people aren't surprised by it at all. Others completely disagree with the diagnosis and will say something. And others will obviously disagree and not say anything. And some even responded in ways that don't make much sense at all. (One of my best, long-term friends responded with "well, you've always been a great friend to me!" when I texted him the diagnosis). And others will just not say anything and will avoid the conversation.
I'll say that the myriad of responses is insanely confusing and, for me, definitely contributed to my confusion/isolation after the diagnosis. It took a long time for me to counter other people's completely-uninformed opinions, but what I've found to really help is to remind myself of the facts:
1 - I received this diagnosis from a trained professional. The process was long and thorough, and I believe I did an equally sufficient job of representing how I may fit on the spectrum as well as how I may not.
2 - The ADHD assessment I took (two years later and, again, with a trained professional) also identifies ASD and the results of the assessment skew in exactly the way it most commonly skews for those on the spectrum.
3 - The people who knew me before I really leared to mask are the ones who see my diagnosis as obvious. The ones who knew me after I started drinking (I quit drinking 8 years ago) and while/after I learned to mask are the ones who doubt it most.
4 - The ones who doubt it have absolutely zero training and have done zero research into what it actually means to be on the spectrum.
5 - Exes (and my girlfriend at the time of the diagnosis) who I have actually lived with, the ones I still talk to, are the least surprised by the diagnosis. One, who is a therapist, even suspected it.
6 - The "most autistic" things I do, I keep out of the view of others. So, of course their perception will be skewed.
7 - Alcohol can really dampen the social aspects of ASD. I used to be a frequent and heavy-ish drinker in social situations. Which led me to quit, years before my diagnosis. As soon as I quit drinking, my social life and friend circle tanked. Anecdotally, this seems very common with folks on the spectrum who also drink socially.
I don't know if that helps, but it helped me tremendously to lay all of that out in a way that reduces the impact on my psyche as a result of others' doubt. And it also took me _years_ to really see that objectively in a way that's only beginning to put up an emotional/psychological boundary between what my uninformed friends believe and what I know to be true.
On top of that, if anyone wants to doubt me again, I have a solid list of things I can present. And they can choose to believe them or not. But I am now far more clear on where I stand and can be far less swayed/affected by another person's doubts.
I hope you're able to find a similar steadiness in it. It can be really hard, but if you can work through the process, it might be pretty rewarding and validating.
* Edited for clarity.
- psnatch 5y agoHi Ben, I hope you don't find this inappropriate (apologies in advance if you do). My son was diagnosed with ASD a couple of years back. More recently, it was suggested that he likely has ADHD too. Essentially, the school he'll be starting at next year wanted him to have a cognitive assessment and it came back with a gulf between the things he's good at (reason, logic etc - top 2%) and the things he's not so good at (working memory etc, bottom 7%). Nothing in between. I had always suspected that I had ADHD, but it was dismissed by therapists who wanted to focus on SAD (very limited success). It felt a little self-involved, but like a lot of newish parents, this was the push I needed to ask for an assessment for myself. The specialist said it was clear as day and at 36yo Vyvanse was immediately (and remains) life changing :) I'm getting to the question (sorry) - my GP, wife and my a few others suspect that I'm autistic too. Having done a few quick quizzes, it seems that they might be correct (explains a lot, TBH). I was told that there's limited benefit in being diagnosed as an adult though, so I've left it alone. I'm left wondering if that gels with yourself or anyone else that was diagnosed in adulthood? Have you found diagnosis to be beneficial? If it wasn't so expensive, I'd probably do it for curiosity's sake... Thanks!!
- glacials 5y agoThere are two types of diagnoses: the kind where your psychologist tells you you have it and puts it on your chart, and the kind where you take the national test (at least in the US), which has a year-long wait list. I think what most people mean when they say it's not worth getting diagnosed as an adult is the second type, because the only thing it really does is force schools to provide adequate care for students. I recommend seeking the first type though; I was diagnosed at 30 and it was worth it just to know. I only slightly suspected it though, and the diagnosis is what put me on the path to finding the communities, research, etc., which is ultimately what I got out of it -- so YMMV. EDIT: Oh and meds! There aren't autism meds, but autism is often linked with anxiety or ADHD, and those can be helped with meds. Diagnosis is a first step to that.
- alisonkisk 5y ago> the national test (at least in the US), which has a year-long wait list. what is this? I can find no evidence that this exists. There is no precise test for autism.