3 ms·

CFS isn’t psychosomatic though. Enough research out there that disproves the ‘it’s all in your head’ theory. Long Covid _is_ CFS. Viruses and bacteria are alwa

by vimy 5y ago

CFS isn’t psychosomatic though. Enough research out there that disproves the ‘it’s all in your head’ theory. Long Covid _is_ CFS. Viruses and bacteria are always the trigger for CFS.

whimsicalism 5y ago
> Enough research out there that disproves the ‘it’s all in your head’ theory. That is definitely not even close to the consensus opinion of the field. there have been a number of attempts to try to show viruses as causing cfs, they have been discredited, whereas the pace study has not. [0] post-aids patient advocacy, in clinical practice it has become incredibly unwise and unpopular to say that something is psychological in nature. even researchers who don't do anything in the clinic will still get death threats for suggesting otherwise. [0]: https://www.nature.com/articles/471282a https://www.nature.com/articles/471282a
- vimy 5y ago
  Pace has been debunked. The idea that is has become unpopular to say something is psychological in nature couldn’t be more wrong. Talk to CFS patients before you make statements like that. There is not a single CFS patient who hasn’t been accused of making it all up. Not. A. Single. One. Whenever a doctor doesn’t know the answer, it’s always psychological. It’s the easy way out. People like you piss me off to no end so I’m gonna stop replying.
  - whimsicalism 5y ago
    you clearly have massive internal stigma against people with psychologically-based illness. this is not the same as "making it all up." this is exactly what i mean when i say this stuff is politicized. i disagree fundamentally with the epistemic theory of "trust people to know what is causing their illness, not doctors or researchers." e: for evidence of what this particular strain of "patient advocacy" looks like, just peruse through this person's previous comments (https://news.ycombinator.com/item?id=29398210 https://news.ycombinator.com/item?id=29398210), such as: > Alzheimer isn’t a disease but a symptom of chronic viruses and bacteria. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6066504/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6066504/ > People with Alzheimer have been cured after taking antibiotics.
nradov 5y ago
Post viral fatigue syndrome has been known for decades, although the exact mechanism of action remains unclear. There's nothing special about COVID-19 in that regard. https://pubmed.ncbi.nlm.nih.gov/3063394/ https://pubmed.ncbi.nlm.nih.gov/3063394/ We don't know that viruses and bacteria are always the trigger for CFS. That's a reasonable hypothesis but remains unproven. There could be other root causes for some cases.

by vimy 5y ago

CFS isn’t psychosomatic though. Enough research out there that disproves the ‘it’s all in your head’ theory. Long Covid _is_ CFS. Viruses and bacteria are always the trigger for CFS.

whimsicalism 5y ago

> Enough research out there that disproves the ‘it’s all in your head’ theory. That is definitely not even close to the consensus opinion of the field. there have been a number of attempts to try to show viruses as causing cfs, they have been discredited, whereas the pace study has not. [0] post-aids patient advocacy, in clinical practice it has become incredibly unwise and unpopular to say that something is psychological in nature. even researchers who don't do anything in the clinic will still get death threats for suggesting otherwise. [0]: https://www.nature.com/articles/471282a https://www.nature.com/articles/471282a

vimy 5y ago
Pace has been debunked. The idea that is has become unpopular to say something is psychological in nature couldn’t be more wrong. Talk to CFS patients before you make statements like that. There is not a single CFS patient who hasn’t been accused of making it all up. Not. A. Single. One. Whenever a doctor doesn’t know the answer, it’s always psychological. It’s the easy way out. People like you piss me off to no end so I’m gonna stop replying.
- whimsicalism 5y ago
  you clearly have massive internal stigma against people with psychologically-based illness. this is not the same as "making it all up." this is exactly what i mean when i say this stuff is politicized. i disagree fundamentally with the epistemic theory of "trust people to know what is causing their illness, not doctors or researchers." e: for evidence of what this particular strain of "patient advocacy" looks like, just peruse through this person's previous comments (https://news.ycombinator.com/item?id=29398210 https://news.ycombinator.com/item?id=29398210), such as: > Alzheimer isn’t a disease but a symptom of chronic viruses and bacteria. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6066504/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6066504/ > People with Alzheimer have been cured after taking antibiotics.

nradov 5y ago

Post viral fatigue syndrome has been known for decades, although the exact mechanism of action remains unclear. There's nothing special about COVID-19 in that regard. https://pubmed.ncbi.nlm.nih.gov/3063394/ https://pubmed.ncbi.nlm.nih.gov/3063394/ We don't know that viruses and bacteria are always the trigger for CFS. That's a reasonable hypothesis but remains unproven. There could be other root causes for some cases.