2 ms·

Yeah, kind of like "how I got my food for free" and the punchline is you went to a local food bank. If you're really that interested it getting it done for the

Yeah, kind of like "how I got my food for free" and the punchline is you went to a local food bank. If you're really that interested it getting it done for the sake of curiosity the you can pay a variety of services about $200 for it.

souradip 6y ago
I like to think that using this analogy, here you're going to the food bank and donating food (or your stem cells) while getting data on how many people liked it in return. I've seen too many kids with blood cancer who couldn't get a match, so please do consider signing up to your local charity :)
- ineedasername 6y ago
  That assumes this person is willing to donate-- from their statement on the organization I think they probably are, but the tone of the article beside their description of the organization seems to be "Yeah DKMS is good but look here's a cool loophole to get free stuff!". That's not exactly a message that will attract those interested more in helping people than free medical data about themselves.
  - 0xFF0123 6y ago
    The person you're replying to is the author of the article
    - ineedasername 6y ago
      That does not change anything about my comment. As I said in it, it did seem they were probably willing to donate if called upon. The real problem is what I said about the overall tone in my comment above. Heck, just look at the title of the post. It was not "Helping to Save Lives can Get You Free Genotyping!" No, instead it was just about how he got free genotyping, which just reinforced my impression of where the tone of the post's real focus was-- the free data, not helping people. I will fully give the author the benefit of the doubt that it was not their intention to set that tone. But that was nonetheless the tone I saw, and clearly others did as well.
chrisweekly 6y ago
Er, no. OP, in another thread: "I should probably say that my primary reason for signing up to a stem cell donor registry is to actually be a donor! This data is generated as a byproduct of signing up and is also quite interesting on a personal level. I was thinking that framing it in a way to also find out interesting things about yourself might be a good way to encourage people who might not have thought about it to sign up for the first time, and this would be far more cost-effective than a traditional in-person donor recruitment drive, but let me know what you think!
- ineedasername 6y ago
  Maybe he should have put that front & center in his blog post. Instead, the tone of most of it was "Hey I worked the system to get this cool free thing!"

souradip 6y ago

I like to think that using this analogy, here you're going to the food bank and donating food (or your stem cells) while getting data on how many people liked it in return. I've seen too many kids with blood cancer who couldn't get a match, so please do consider signing up to your local charity :)

ineedasername 6y ago
That assumes this person is willing to donate-- from their statement on the organization I think they probably are, but the tone of the article beside their description of the organization seems to be "Yeah DKMS is good but look here's a cool loophole to get free stuff!". That's not exactly a message that will attract those interested more in helping people than free medical data about themselves.
- 0xFF0123 6y ago
  The person you're replying to is the author of the article
  - ineedasername 6y ago
    That does not change anything about my comment. As I said in it, it did seem they were probably willing to donate if called upon. The real problem is what I said about the overall tone in my comment above. Heck, just look at the title of the post. It was not "Helping to Save Lives can Get You Free Genotyping!" No, instead it was just about how he got free genotyping, which just reinforced my impression of where the tone of the post's real focus was-- the free data, not helping people. I will fully give the author the benefit of the doubt that it was not their intention to set that tone. But that was nonetheless the tone I saw, and clearly others did as well.

chrisweekly 6y ago

Er, no. OP, in another thread: "I should probably say that my primary reason for signing up to a stem cell donor registry is to actually be a donor! This data is generated as a byproduct of signing up and is also quite interesting on a personal level. I was thinking that framing it in a way to also find out interesting things about yourself might be a good way to encourage people who might not have thought about it to sign up for the first time, and this would be far more cost-effective than a traditional in-person donor recruitment drive, but let me know what you think!

ineedasername 6y ago
Maybe he should have put that front & center in his blog post. Instead, the tone of most of it was "Hey I worked the system to get this cool free thing!"