3 ms·

People like you are the reason I posted my story. If I can even help a small number of people to not endure the same pains, that would make me incredibly happy.

People like you are the reason I posted my story. If I can even help a small number of people to not endure the same pains, that would make me incredibly happy. The therapy is the last item in a very very long list of desperate things I've tried to cure PEM (metabolic typing, accupuncture, genetic testing, methylation, nutrition, crazy diets, and so much more). What was the cause cause of my PEM? Negative emotions alone, wasn't the direct cause. But the supression of those negative emotions. In general terms: supressed, charged emotions directed at myself caused my PEM. Or in HN terms: constant low-level burnout. Because it takes a lot of energy to hide those feelings from myself. A constant battle that I was generally unaware of that was happening at a deep level. I would deny the feelings of my body. I first had to build the support inside myself, with help of a therapist, before I could truly start to listen to the supressed emotions without being overwhelmed. This was the beginning of the end for my PEM. The book I would recommend would be: The Body Keeps the Score by Bessel van der Kolk M.D, which helped me a lot on the journey to recovery. I've found forums to be generally very unhelpful. Something I wrote down a while back which I hope explains why I don't think they are a good place to resolve problems: --- The unreasonable ineffectiveness of communities in solving a single problem. One person has a problem, if problem persists for any length of time, the more likely others will be experiencing that problem at the same time. If there are enough people with that problem, a community will form around solving it. If the community is ineffective in solving that problem, then the community will grow and begin to sustain itself as new members join with that problem and the existing members continue to work on solving that problem. For the community to survive, the problem must not be solved or the solution has to be close to unobtainable. Ineffective solutions will be devised to solve the problem. The complexity or discipline involved in solving the problem will exceed the ability of the individuals to implement it. The blame of solving the problem will lay in not in the community itself, but the individual not being able to implement the solution. An example of this may be a nearly impossible diet, regime or routine. If an effective solution is found to the problem. There are two possible outcomes: either the community will dissipate and active membership dwindles or it will protect itself from the existential threat and block the ideas. This is especially true if the identities or financials of individuals in the community rely upon the problem existing. Therefore, no community that sustains itself will form around the right solution. It is unsustainable. The communities with the most active members are also the most popular, propogating the problem. --- Please do let me know how you get on, I wish you the best.

mtalantikite 6y ago
Came here to emphasize reading “The Body Keeps the Score” as well. It helped me tremendously and played a large role in getting me through the door to therapy in the first place.
newsetmset 6y ago
Thank you so much for the answer. I have already begun The Body Keeps The Score and is actively looking for a therapist now. The perpetual cycle of overreach, then crash certainly deepens the negative self talk - the fact that you can't tame yourself through excessive discipline while ignoring "how you actually feel" (ie. often like complete trash because you ARE crashing) certainly doesn't help the "neurotic behaviour/emotional armour". But i somehow thought i could "plough through". The suppression of real emotions seems like a perfectly reasonable explanation for why you become so tired/worn out. Also you get used to ignoring the negative self talk because you feel like it makes no sense from the intellects perspective and you have to "perform professionally" or whatever. One thing that has kept me from really going in this direction has been the observation that 3-4 days in bed with only my laptop has been able to "heal" all of the pain and fatigue and tension in the body - if done before for example an important meeting i end up completely calm, extroverted, like another person or "the real me", but the "tension" and fatigue soon returns. Such a weird and labyrinthian process. I guess it has to do with the fact that the negative self talk quickly returns and i get burned out again very easily. Anyway, i guess the way forward is not ploughing through with a tense body and an "ignored" mind. Sounds almost stupid as i write it out like this, but here we are.
- deleted 6y ago
  [deleted]
- AdamCraven 6y ago
  I recognise your plight, because it has also been mine. Being hard on yourself and being frustrated by how hard it has been to fix yourself is something I've known well. However, no one gives us manuals for our body and we're all inside an incredibly complex system which we are not evolutionarily adapted for. I remember most vividly when I took 6 weeks off work, stayed at my Grandmas house with her feeding me good food and not having to do anything, then going back to work again. I was incredible. Level-headed, extroverted, energetic. I thought it was just rest, but then I began to understand (many years later) that all my cycles of energy started off in similar ways. For example, if I tried a new diet or regime, I would feel great for a week or two until I wouldn't. I eventually came to understand that it wasn't what I did, but how I felt. I discovered what the placebo effect was (for me) and why it seemed I'd get a buzz from doing something new or starting afresh. It was because I felt powerful and in control. This feeling of power was so helpful, so nourishing, because it countered what used to be the worst feeling in the world for me: a maldapted feeling of powerless. That feeling was connected to my trauma/past experiences at a deep level. As everyone can attest, being in the real world often creates feelings of powerlessness, because you are not in control of everything. That meant everyday life could quickly wear me down depending on how much nourishment I was getting from feeling powerful vs powerlessness. An analogy I use to describe this: it is a car with a leaky fuel tank. The hole in the fuel tank is the negative emotion. The bigger the hole or the less the fuel going in, the quicker you run out of energy. Eventually the requirement to counteract the maladapted feeling of powerless diminished, and thus I didn't need to feel powerful in the same way. For you, the feeling that wears you down, may not be powerlessness like mine was, but by looking at the things that make you feel good, you'll be able to figure out what you get from laying in bed for a few days on your laptop. Then perhaps you will come to understand the feelings that you avoid or are the inverse of what you get from sitting on your laptop. e.g. sitting on your laptop might make you feel in control, or might avoid the pressure you feel from having to do something that doesn't nourish you in some way. But before big life changes are made, I would say it's important to find out which of your negative feelings come from maladaptions (i.e. to past emotions/trauma) and then you'll be able to make more effective decisions once you've resolved those maladaptions.

mtalantikite 6y ago

Came here to emphasize reading “The Body Keeps the Score” as well. It helped me tremendously and played a large role in getting me through the door to therapy in the first place.

newsetmset 6y ago

Thank you so much for the answer. I have already begun The Body Keeps The Score and is actively looking for a therapist now. The perpetual cycle of overreach, then crash certainly deepens the negative self talk - the fact that you can't tame yourself through excessive discipline while ignoring "how you actually feel" (ie. often like complete trash because you ARE crashing) certainly doesn't help the "neurotic behaviour/emotional armour". But i somehow thought i could "plough through". The suppression of real emotions seems like a perfectly reasonable explanation for why you become so tired/worn out. Also you get used to ignoring the negative self talk because you feel like it makes no sense from the intellects perspective and you have to "perform professionally" or whatever. One thing that has kept me from really going in this direction has been the observation that 3-4 days in bed with only my laptop has been able to "heal" all of the pain and fatigue and tension in the body - if done before for example an important meeting i end up completely calm, extroverted, like another person or "the real me", but the "tension" and fatigue soon returns. Such a weird and labyrinthian process. I guess it has to do with the fact that the negative self talk quickly returns and i get burned out again very easily. Anyway, i guess the way forward is not ploughing through with a tense body and an "ignored" mind. Sounds almost stupid as i write it out like this, but here we are.

deleted 6y ago
[deleted]
AdamCraven 6y ago
I recognise your plight, because it has also been mine. Being hard on yourself and being frustrated by how hard it has been to fix yourself is something I've known well. However, no one gives us manuals for our body and we're all inside an incredibly complex system which we are not evolutionarily adapted for. I remember most vividly when I took 6 weeks off work, stayed at my Grandmas house with her feeding me good food and not having to do anything, then going back to work again. I was incredible. Level-headed, extroverted, energetic. I thought it was just rest, but then I began to understand (many years later) that all my cycles of energy started off in similar ways. For example, if I tried a new diet or regime, I would feel great for a week or two until I wouldn't. I eventually came to understand that it wasn't what I did, but how I felt. I discovered what the placebo effect was (for me) and why it seemed I'd get a buzz from doing something new or starting afresh. It was because I felt powerful and in control. This feeling of power was so helpful, so nourishing, because it countered what used to be the worst feeling in the world for me: a maldapted feeling of powerless. That feeling was connected to my trauma/past experiences at a deep level. As everyone can attest, being in the real world often creates feelings of powerlessness, because you are not in control of everything. That meant everyday life could quickly wear me down depending on how much nourishment I was getting from feeling powerful vs powerlessness. An analogy I use to describe this: it is a car with a leaky fuel tank. The hole in the fuel tank is the negative emotion. The bigger the hole or the less the fuel going in, the quicker you run out of energy. Eventually the requirement to counteract the maladapted feeling of powerless diminished, and thus I didn't need to feel powerful in the same way. For you, the feeling that wears you down, may not be powerlessness like mine was, but by looking at the things that make you feel good, you'll be able to figure out what you get from laying in bed for a few days on your laptop. Then perhaps you will come to understand the feelings that you avoid or are the inverse of what you get from sitting on your laptop. e.g. sitting on your laptop might make you feel in control, or might avoid the pressure you feel from having to do something that doesn't nourish you in some way. But before big life changes are made, I would say it's important to find out which of your negative feelings come from maladaptions (i.e. to past emotions/trauma) and then you'll be able to make more effective decisions once you've resolved those maladaptions.