4 ms·
As an American with 2 rare immune-mediated neurological diseases, that affect my peripheral nervous system, I can almost guarantee you that decent health care r
by disabled 7y ago
As an American with 2 rare immune-mediated neurological diseases, that affect my peripheral nervous system, I can almost guarantee you that decent health care reform will not happen in the foreseeable future.
By the way, both of these diseases are in pharmaceutical remission, due to taking a blood product that has immunomodulatory properties. I will have to take it for life. My medical insurance literally pays hundreds of thousands of dollars per year, under contract, for it.
The Affordable Care Act is practically guaranteed to be either partially or completely overturned next year (Summer 2020), based on previous rare cases in modern history where the Solicitor General did not defend a case at the Supreme Court.
My whole life is literally riding on whatever the Supreme Court churns out next year, due to the complexity of my care. In the case of a partial or complete overturn, I will most likely have to leave the US. But, I am fortunate to be an EU citizen.
I have been making plans for leaving the US for a couple of years now. The matter is extremely complicated with my health care needs, and I literally cannot afford to make a mistake.
Frankly, I do not feel welcome anymore in my homeland (the United States) either.
- Scoundreller 7y agoDo be sure to check that any new country will pay for the same thing. Single-payer/socialized healthcare can mean “Just Saying No” to expensive interventions.
- disabled 7y agoYes, and this is one of the main issues. Overall it is a logistical disaster. But, I have to say that engineering school helps you tackle logistical nightmares like this.