4 ms·

I had lyme for a few months and it was just awful. My brother had it undetected for nearly a decade and had an incredible number of muscle and joint issues, inc

I had lyme for a few months and it was just awful. My brother had it undetected for nearly a decade and had an incredible number of muscle and joint issues, including surgery to burn nerves in his back because the pain was too much and he was on all kinds of drugs. After the 12th doctor he went to over the years, one finally tested him for lyme and he had more than 20 times the highest normal limit for lyme infection. It took 9 months on 8 simultaneous antibiotics (which destroyed him) to finally get rid of it. He's still doing follow up blood tests now a few months later. This is a real problem and it needs to be treated far better than it is now. I only had it for a short while and it completely changed how I thought about myself. My brain was so foggy that I couldn't even remember the names for certain things. I could tell you a steering wheel was round and it turned things, but you could have offered me a million dollars and I couldn't have told you what it was called. Lyme is relatively new in how widespread it is, and it's only going to get worse.

jrs235 10y ago
I've been treated for lyme twice. The first time the well known bullseye surrounding a bite mark appeared and is what triggered my first time getting treatment. I believe it was 10 days on a an oral antibiotic. The second time I was treated, I was treated more for preventative reasons. I found a deer tick embedded in by shoulder and took pictures so the doctor wouldn't been weary to possible treat a non-issue with antibiotics. I try not to take antibiotics unless I absolutely need too. Except lyme, if left untreated, can wreak havoc. Sometimes I worry that I either wasn't on the antibiotic long enough or perhaps I've been bitten again. I wish we would focus more time and resources into more easily diagnosing this disease.
curuinor 10y ago
'chronic lyme disease' does not necessarily equal 'sequelae from lyme disease': many people getting treated with fuck-off antibiotics for chronic lyme have never actually gotten a diagnosis of lyme (that is not good)

jrs235 10y ago

I've been treated for lyme twice. The first time the well known bullseye surrounding a bite mark appeared and is what triggered my first time getting treatment. I believe it was 10 days on a an oral antibiotic. The second time I was treated, I was treated more for preventative reasons. I found a deer tick embedded in by shoulder and took pictures so the doctor wouldn't been weary to possible treat a non-issue with antibiotics. I try not to take antibiotics unless I absolutely need too. Except lyme, if left untreated, can wreak havoc. Sometimes I worry that I either wasn't on the antibiotic long enough or perhaps I've been bitten again. I wish we would focus more time and resources into more easily diagnosing this disease.

curuinor 10y ago

'chronic lyme disease' does not necessarily equal 'sequelae from lyme disease': many people getting treated with fuck-off antibiotics for chronic lyme have never actually gotten a diagnosis of lyme (that is not good)