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Rather than defaulting to drugs for CFS, I would much rather find the core cause of it? Oftentimes it is an infection, stress or even the food we put into our b
by gosmart4u 11y ago
Rather than defaulting to drugs for CFS, I would much rather find the core cause of it? Oftentimes it is an infection, stress or even the food we put into our bodies. You would be amazed at how better you can feel and how much more energy you have by simply changing your diet and lifestyle.
- deleted 11y ago[deleted]
- __z 11y agoDo you honestly believe that people who are suffering with CFS for decades don't try diet and lifestyle interventions? Jackass.
- gosmart4u 11y agoI have personally reversed CFS & an auto-immune disease with crazy high anti-bodies by sticking with a very strict diet and changing my life-style. Only after being directed into many black-holes by multiple doctors telling me nothing was wrong or trying to prescribe me anti-anxiety drugs. So yeah I guess I am a jackass!
- __z 11y agoYou can share your experiences in a helpful way without being condescending. You were condescending.
- gosmart4u 11y agoSorry you feel that way. That was not my intention.
- dang 11y agoPeople do sometimes post comments that seem condescending, but that doesn't make it ok to be mean. Instead, please follow the HN guidelines. The rule here is to post civilly and substantively, or not at all. https://news.ycombinator.com/newsguidelines.html https://news.ycombinator.com/newsguidelines.html
- msandford 11y agoWell, probably you did. Or you might have just been sick for a year or two and coincidentally gotten better at the same time as the diet and lifestyle changes. The odds are small, but given that you're a sample size of one it might well prove it to you, but not to others.
- gosmart4u 11y agoI was sick for a long-time and was getting progressively worse. I understand that what works for me may not work for others. I am simply suggesting we look for the root cause and possibly look for alternatives other than drugs. For some people there may be no alternatives and I understand that.
- deleted 11y ago[deleted]
- tadlan 11y agoWhat was the diet?
- jpravetz 11y agoYes, I am curious too. The reason for my curiosity is I have been successful via diet as well, so it's to see if we're doing the same thing.
- gosmart4u 11y agoSee my comment above. I would love to hear about what you have done too.
- jpravetz 11y agoIn a nutshell, non-fat (or very low fat) vegan. A good resource for this is drmcdougall.com. Though I find McDougall a bit off-putting with his style, IMHO he's on the money, and the diet is what my doctor recommends. See, this is what makes diet suggestions so difficult. I think this is practically the opposite of what you did.
- gosmart4u 11y agoInteresting. I agree, different diets work for different situations & people. I think sometimes its a lot of trial and error. I am happy your diet is working for you. I plan to do some reading up on it.
- gosmart4u 11y agoI was on the autoimmune protocol for about a year and slowly introduced things after that. The first month on the diet sucked. I felt worse. After that though, things really started to turn around. I was also on vit supplements due to a lot of my levels being extremely low (Vit D & Iron) and am still supplementing because my body has a hard time holding onto these things. I also take a 20 min fast walk each morning when I wake up and do my best to eliminate stress (I know easier said than done). I had very high antibodies and now have none. I wasn't able to make it past 1pm without crashing and now have no problems making it through the day. 3 years later I am still on a strict diet but not nearly as strict as it once was. There are certain foods that still make me crash (sugar, beer, etc) but overall I got my life back :) I am not saying this will work for everyone but it has worked for me and others like me.
- cpncrunch 11y agoPlease don't be rude. I think the issue is figuring out the correct "lifestyle" treatment, as that word is quite broad. Research shows that an abnormally low HPA axis is associated with CFS, and in my case what worked was doing things to reverse this. This appears to be the case for other patients who have recovered.
- __z 11y agoI responded to rudeness with rudeness. Perhaps not constructive but my knee jerk reaction. I don't have CFS but I can imagine they get an endless barrage of unsolicited comments such as "you need to eat more/less protein/carbs/fat/meat/vegetables/gluten/preserves/alcohol/fad-of-the-month and you'll be cured." I'm sure that people suffering from something as terrible and debilitating as CFS has tried all of that and more. Its the holier-than-thou attitude that gets under my skin. We know (in general) humans can both survive and thrive on a wide variety of diets. Sharing your personal experiences and what worked for you is helpful. Writing off research in medication with "why? you just need to change your diet" is not. Especially to those still suffering. It discounts real people who are really suffering and are still looking for answers.
- gosmart4u 11y agoI was by no means intending to be rude. Simply suggesting an alternative solution. I apologize that you took it as me being rude.
- watersb 11y agoSounds like you found something that works for you. Excellent! Diet and exercise were certainly where I started. That was seven years ago. Still no joy. Infections eventually go away. Maybe. Or we treat them with drugs, diet etc. Stress can be reduced, managed, eliminated. We can change the food we put in our bodies. When nothing works, then what? Keep looking.
- gosmart4u 11y agoI hope you find some answers. I understand the struggle.
- sosuke 11y agoI can sympathize, my wife is asleep next to me and I'm sure she will be excited to hear some progress is being made on CFS. CFS isn't a sexy thing to research, it doesn't get a lot of funding, same thing with a lot of other conditions and syndromes. No idea what causes it, but taking x/y/x unrelated medication seems to alleviate the symptoms.
- rfrey 11y agoIf you reckon you know what the core cause of CFS is and have done some experiments that provide evidence, you should publish that stuff.
- gosmart4u 11y agoI have personally reversed CFS & an auto-immune disease with crazy high anti-bodies by sticking with a very strict diet and changing life-style.
- lucaspiller 11y agoWhat is your diet?
- gosmart4u 11y agoSee my comment at https://news.ycombinator.com/item?id=9843715 https://news.ycombinator.com/item?id=9843715
- cbd1984 11y agoSounds like you did something and then you got better. Sadly, post hoc ergo propter hoc is not a treatment modality.