My mom is an RN at Lucille Packard Children's Hospital at Stanford (LPCH) and she's been working with kids who have EB and other rare genetic skin conditions fo

My mom is an RN at Lucille Packard Children's Hospital at Stanford (LPCH) and she's been working with kids who have EB and other rare genetic skin conditions for many years now. About 5 years ago I had the chance to meet one of her patients, a young man with EB. The brutality of living/existing with this condition is striking and severe. Imagine the driest and itchiest your skin has ever felt and multiply it by a few orders of magnitude, then apply that sensation across your entire body. That is what it is like all the time having EB. Except even worse because of the scarring that builds up over time. Mihai sounds like an incredible individual who didn't let ANYTHING stop him from doing what he loved. What remarkable inspiration for the rest of us!