4 ms·

Really? Can you point to a source? Many people with epilepsy and migraines have discovered different food triggers. In my case Aspartame was the leading trigg

Really? Can you point to a source? Many people with epilepsy and migraines have discovered different food triggers. In my case Aspartame was the leading trigger. Anyone who has seizures should seek out and eliminate potential triggers to see if it helps. I suppose a high carb diet could be a trigger for someone... I didn't have a high carb diet... but I know eliminating aspartame helped me. I am still amazed how Donald Rumsfeld was able to influence its approval by the FDA.

AnkhMorporkian 11y ago
They're likely referring to a ketogenic diet. They were quite common in the past before anticonvulsant meds were created, and are still used in intractable cases today, particularly in pediatric care. There's lots of information out there about their use in epilepsy. Some to get you started: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2898565/ http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2898565/ http://www.epilepsy.com/learn/treating-seizures-and-epilepsy/dietary-therapies/ketogenic-diet http://www.epilepsy.com/learn/treating-seizures-and-epilepsy... http://www.mayoclinic.org/medical-professionals/clinical-updates/neurosciences/pediatric-epilepsy-mayo-clinic-managing-seizures-related-comorbidities http://www.mayoclinic.org/medical-professionals/clinical-upd...
- darcyparker 11y ago
  Interesting - thanks. [Edit] - The ketogenic diet is interesting. And I can see how some would want to substitute sugar for an artificial sweetener to help achieve a low carb diet. But given Aspartame is a known trigger for many types of seizures, it should be introduced carefully.
  - AnkhMorporkian 11y ago
    Do you have a source re: aspartame and seizures? I did a cursory search and the only non-anecdotal thing I could find was a study[1] that showed there was no link in people who described themselves as sensitive. [1] http://www.ncbi.nlm.nih.gov/pubmed/7614911 http://www.ncbi.nlm.nih.gov/pubmed/7614911
    - darcyparker 11y ago
      Unfortunately I can't point to an official study - just many anecdotal claims from people like me. When you google, I am sure you will see many such claims - including the 'internet hoax'. (The internet hoax is unfortunate because it takes away credibility from the many anecdotal claims like mine that sincerely feel real. More carefully constructed studies should occur.)
      - tptacek 11y ago
        That's tricky to evaluate, because you get the exact same narratives from people who claim sensitivity to glutamates, where we can be somewhat certain that there isn't a health connection.
        darcyparker 11y ago
        It's easy to evaluate if you have seizures. You don't need to wait for it to be definitively proven to make use of the anecdotal evidence. If you learned that aspartame could trigger a seizure, wouldn't you be cautious and want to see if a change to your diet would reduce your seizures?
        tptacek 11y ago
        It is not at all hard to find people who believe MSG triggers seizures.
    - edwinespinosa09 11y ago
      To add, most of the studies done on rats had "normal dosages" of aspartame for Humans not Rats. In other words the dosage was not relative to the rats mass it was relative to ours. http://www.efsa.europa.eu/en/efsajournal/pub/2089.htm http://www.efsa.europa.eu/en/efsajournal/pub/2089.htm
Kerrick 11y ago
The key thing to search for is "keto" or "ketogenic," the name for the high-fat, low-carbohydrate diet that puts you in a fat-burning state called ketosis. - http://en.wikipedia.org/wiki/Ketogenic_diet http://en.wikipedia.org/wiki/Ketogenic_diet - http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2898565/ http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2898565/ - http://www.drperlmutter.com/study/dietary-treatment-adults-refractory-epilepsy/ http://www.drperlmutter.com/study/dietary-treatment-adults-r...
- mistermann 11y ago
  https://www.reddit.com/r/ketoscience https://www.reddit.com/r/ketoscience

AnkhMorporkian 11y ago

They're likely referring to a ketogenic diet. They were quite common in the past before anticonvulsant meds were created, and are still used in intractable cases today, particularly in pediatric care. There's lots of information out there about their use in epilepsy. Some to get you started: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2898565/ http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2898565/ http://www.epilepsy.com/learn/treating-seizures-and-epilepsy/dietary-therapies/ketogenic-diet http://www.epilepsy.com/learn/treating-seizures-and-epilepsy... http://www.mayoclinic.org/medical-professionals/clinical-updates/neurosciences/pediatric-epilepsy-mayo-clinic-managing-seizures-related-comorbidities http://www.mayoclinic.org/medical-professionals/clinical-upd...

darcyparker 11y ago
Interesting - thanks. [Edit] - The ketogenic diet is interesting. And I can see how some would want to substitute sugar for an artificial sweetener to help achieve a low carb diet. But given Aspartame is a known trigger for many types of seizures, it should be introduced carefully.
- AnkhMorporkian 11y ago
  Do you have a source re: aspartame and seizures? I did a cursory search and the only non-anecdotal thing I could find was a study[1] that showed there was no link in people who described themselves as sensitive. [1] http://www.ncbi.nlm.nih.gov/pubmed/7614911 http://www.ncbi.nlm.nih.gov/pubmed/7614911
  - darcyparker 11y ago
    Unfortunately I can't point to an official study - just many anecdotal claims from people like me. When you google, I am sure you will see many such claims - including the 'internet hoax'. (The internet hoax is unfortunate because it takes away credibility from the many anecdotal claims like mine that sincerely feel real. More carefully constructed studies should occur.)
    - tptacek 11y ago
      That's tricky to evaluate, because you get the exact same narratives from people who claim sensitivity to glutamates, where we can be somewhat certain that there isn't a health connection.
      - darcyparker 11y ago
        It's easy to evaluate if you have seizures. You don't need to wait for it to be definitively proven to make use of the anecdotal evidence. If you learned that aspartame could trigger a seizure, wouldn't you be cautious and want to see if a change to your diet would reduce your seizures?
        tptacek 11y ago
        It is not at all hard to find people who believe MSG triggers seizures.
  - edwinespinosa09 11y ago
    To add, most of the studies done on rats had "normal dosages" of aspartame for Humans not Rats. In other words the dosage was not relative to the rats mass it was relative to ours. http://www.efsa.europa.eu/en/efsajournal/pub/2089.htm http://www.efsa.europa.eu/en/efsajournal/pub/2089.htm

Kerrick 11y ago

The key thing to search for is "keto" or "ketogenic," the name for the high-fat, low-carbohydrate diet that puts you in a fat-burning state called ketosis. - http://en.wikipedia.org/wiki/Ketogenic_diet http://en.wikipedia.org/wiki/Ketogenic_diet - http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2898565/ http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2898565/ - http://www.drperlmutter.com/study/dietary-treatment-adults-refractory-epilepsy/ http://www.drperlmutter.com/study/dietary-treatment-adults-r...

mistermann 11y ago
https://www.reddit.com/r/ketoscience https://www.reddit.com/r/ketoscience