4 ms·

ResearchKit is a surprise, and open source too? Go Apple :)

• UweSchmidt 12y ago
  In Stallman's days it was about the code. Open source was a form of freedom. Now it's all about the data. Who cares if anyone self-hosts "OpenResearchKit" when a single entity has the health-related data of everyone else?
  • Osmium 12y ago
    From the keynote, it's my understanding that Apple doesn't have access to any of your health data. It seems that your data is ultimately stored with whatever organisation is doing the study. They also emphasised that you, yourself, have access to your own data too–which is as it should be.
    • UweSchmidt 12y ago
      Didn't mean to bash Apple, just comment on how the times seem to have changed. Who the hell knows what that other "organization doing the study" does with that data, though. When it will be leaked? How will the future be, will everything be transparent to everyone or will there be the data-haves and the data-have-nots? Instead of "access to my own data" (haha, thanks!), how about "control over my data"? Systems would be designed (on a super low level) so that: - There is a reliable way to delete data from all systems, including caches, backups etc. - People get notified and asked for permission if their data is part of the tupel that could be returned as part of a specific query. Working with personal data would feel like working in a chemical weapons factory. How about that?