3 ms·
A few final comments from me to clarify my position and seek to find common ground... 1) We're on the same side here. I've been through the same exasperating j
by tomhoward 12y ago
A few final comments from me to clarify my position and seek to find common ground...
1) We're on the same side here. I've been through the same exasperating journey as you, being infuriated at suggestions from doctors and armchair experts that I just needed to pull myself together and adopt a more positive attitude to life. I get it, it's horrible and patronising to be told that, and I totally understand you having the reactions your having in this thread.
2) You've inferred from the fact that some people recover from CFS via emotion-based treatments, that they weren't really very sick. This certainly hasn't been the case for me. My illness was very severe and debilitating, and is still not completely healed. My recovery has not been spontaneous or imagined (according to observations from those close to me), but has happened steadily over the 2-3 years I've been doing this very specific (but little-known) subconscious-emotion-based treatment, along with a sensible (not obsessive) diet, a small number of supplements, and gentle exercise. Sure, I would love it if there were just some pill I could take that would rapidly cure me, but as you point out, it doesn't exist, so I'm going with whatever I can find that helps, and what I'm doing now is remarkably effective.
3) But we (and many others) have read the books; tried the techniques; and are right where we started
I get it. I've done the same thing. Nothing worked. Until I discovered NET, then adapted it to be more effective for my own condition. I don't think it's the be-all-and-end-all, by any means. But I know it's promising, and it warrants research - yes, research that conforms to the scientific method - just as much as any pharmaceutical approach.
4) wanting real funding for real research for a real disease
It's not as if there hasn't already been a lot of research put into CFS over a long time. Could there be more? Sure. Would even an unlimited amount of pharmaceutical-focused research yield results? I strongly believe it wouldn't.
5) Physiological treatment will work alone, just like they have for stomach ulcers, and countless other illnesses that were previously attributed to vague, non-scientific explanations.
There's no reason to believe this is true. All the evidence I can see indicates that it fits more into the category of MS, MND, Alzheimer's, autism spectrum disorders and all the other illnesses (including many cancers) that have been extensively researched for years and show no signs of being any closer to being solved.
6) If I, or any other of the many sufferers out there, could heal ourselves through some emotional technique then we would be _over the moon_
If you're serious about this, you should get in touch. I don't expect you to blindly accept any of my claims and undertake the same treatment program as me. But I'm quite serious about getting some proper research done into the treatments that have been effective for me and others I know.
So if you'd like to know more, or contribute in some way, even as a well-meaning naysayer, feel free to drop me a line - tom.howard/gmail.