3 ms·
It's a good idea. In cases where there is a real diagnosis, but it isn't found there are probably these reasons, and CrowdMed addresses them to some degree: 1.
by Gatsky 12y ago
It's a good idea. In cases where there is a real diagnosis, but it isn't found there are probably these reasons, and CrowdMed addresses them to some degree:
1. It fits into the category of diseases which have amorphous and tricky symptomology eg Lyme disease, immunodeficiencies, Coeliac disease, temporal arteritis, rare inherited conditions. These are just cognitively difficult to diagnose. Having people from another perspective take a look (particular with the perspective of, hey, maybe this is something unusual) is helpful. Good primary care physicians usually have a list of 'easy to miss' conditions in their heads.
2. Patient related factors eg they don't communicate well, they can't afford to go to the doctor consistently, they have a huge anxiety overlay, they have many chronic conditions with overlapping symptoms etc. CrowdMed gives them another port of access to healthcare advice.
3. Doctor related factors eg just incompetence, over specialisation, too busy, too old, too young, too tired, too depressed, too male, too burnt out etc... Sometimes you just need to get a different type of person to look at the case.
But, I do have concerns about how it's marketed.
To say that you have 'solved' hundreds of the world's 'most difficult' medical cases is not a responsible thing to put on a front page that will be visited by patients.
Firstly, what does 'solved' mean? I think to prove that you solved a case, you would need to have detailed and long term follow up, and I don't see any evidence of that. Do you have any evidence beyond the patient testimonial at a single time point?
Also, how many cases are not solved?
Secondly, 'world's most difficult' is silly marketing speak, like a detergent that gets rid of the 'world's toughest stains'. Presumably you haven't surveyed all the world's medical cases and ranked them by difficulty. It really puts me off signing up as a detective.
Patients are vulnerable. They are scared and suffering. This sort of tagline just makes it look like you are trying to fleece them, despite all the goodwill elsewhere on the site.