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It started in a limb (right forearm where he had trauma from a routine surgery). For many people with RSD/CRPS it doesn't spread. Interestingly people used to g
by bitsweet 12y ago
It started in a limb (right forearm where he had trauma from a routine surgery). For many people with RSD/CRPS it doesn't spread. Interestingly people used to go as far as amputating the painful limb but phantom pain remained. For a small percentage of people, it spreads over the entire body. They call this Full Body RSD. My father has this so his pain is everywhere but most often it is in his extremities. At it's lowest pain levels he says it feels like the worse sunburn he ever had. At his most painful moments he describes it like being stabbed with knives.
This TEDx talk by Dr. Krane (he works with children with RSD/CRPS) describes the disorder and where the pain comes about half-way through http://www.ted.com/talks/elliot_krane_the_mystery_of_chronic_pain?language=en http://www.ted.com/talks/elliot_krane_the_mystery_of_chronic...
- arjie 12y agoThank you for the description and the link.