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Since July 2012 I suffer something similar (not as bad as the guy in the article thankfully); named "fibromyalgia", I get along with a couple of drugs, one call

by ivanca 12y ago

Since July 2012 I suffer something similar (not as bad as the guy in the article thankfully); named "fibromyalgia", I get along with a couple of drugs, one called Duloxetine and the other one is Modafinil (that last one is for insomnia but one of the symptoms of my disease is being sleepy/tired all the time). I'm a strange case because I'm a 25 years old male but most people with the same illness are middle age women. I don't think a cure is between our reach (some doctors don't even believe its a real disease... just in case life doesn't suck enough with the disease itself) but I'm trying to lead the creation of better treatments, and topical pain-relieving in general.

byuu 12y ago
One of the most intensely frustrating things to me about doctors is the way they treat anyone explaining something not immediately diagnosable as though the patients are pathological liars or hypochondriacs. I don't care if there are a few people who fake conditions to get pain medicines. That's no excuse for ignoring people with real problems. If someone is coming to you who hasn't been to a doctor in five years, they're probably not an opioid addict that is doctor hopping. Even in the rare case it really is entirely psychosomatic, that's still something that should attempt to be isolated and addressed. I've had upper chest pains that feel like a 20lb weight is sitting on my chest for the past several months. They come and go, usually staying for a few hours at a time. Doesn't matter whether I am lying down, sitting or standing. Doesn't matter what I've eaten, where I've been, etc. The exact spot always seems to move around, sometimes it's two spots on each side of my chest at once. Tried changing everything I reasonably could to no effect. Can't get any doctors to acknowledge there's an issue. I'm just really hopeful that whatever it is goes away, and isn't something serious like blocked arteries or some form of cancer. I can't even imagine being in as much pain as you and Justin and having doctors dismiss me as a liar. I'd absolutely lose it.
- kansface 12y ago
  There are penalties for giving out drugs to everyone who asks (potentially jail); there are no penalties for not giving out drugs apart from feeling like an asshole.
lukestevens 12y ago
I'm in the same boat (though I've been in said boat for a while), and while it certainly could be worse (as per the OP), it's not much fun either! Glad you've found a couple of things that are at least mildly helpful.

by ivanca 12y ago

byuu 12y ago

One of the most intensely frustrating things to me about doctors is the way they treat anyone explaining something not immediately diagnosable as though the patients are pathological liars or hypochondriacs. I don't care if there are a few people who fake conditions to get pain medicines. That's no excuse for ignoring people with real problems. If someone is coming to you who hasn't been to a doctor in five years, they're probably not an opioid addict that is doctor hopping. Even in the rare case it really is entirely psychosomatic, that's still something that should attempt to be isolated and addressed. I've had upper chest pains that feel like a 20lb weight is sitting on my chest for the past several months. They come and go, usually staying for a few hours at a time. Doesn't matter whether I am lying down, sitting or standing. Doesn't matter what I've eaten, where I've been, etc. The exact spot always seems to move around, sometimes it's two spots on each side of my chest at once. Tried changing everything I reasonably could to no effect. Can't get any doctors to acknowledge there's an issue. I'm just really hopeful that whatever it is goes away, and isn't something serious like blocked arteries or some form of cancer. I can't even imagine being in as much pain as you and Justin and having doctors dismiss me as a liar. I'd absolutely lose it.

kansface 12y ago
There are penalties for giving out drugs to everyone who asks (potentially jail); there are no penalties for not giving out drugs apart from feeling like an asshole.

lukestevens 12y ago

I'm in the same boat (though I've been in said boat for a while), and while it certainly could be worse (as per the OP), it's not much fun either! Glad you've found a couple of things that are at least mildly helpful.