3 ms·

You quite correctly diagnosed my ailment and diet. I wasn't (and still am not) wild about being on Infliximab, but it's better than the alternative. I'm also qu

You quite correctly diagnosed my ailment and diet. I wasn't (and still am not) wild about being on Infliximab, but it's better than the alternative. I'm also quite thankful for my University position and the very good insurance that comes with it.

frio 12y ago
To take this completely off-topic: I was surprised when the SCD had a good effect. I found it wasn't 100% accurate; there were certain food groups I could tolerate, and others that I couldn't. Which the diet accounts for; everyone's physiology is different. However, for what it's worth, I (and a group of people in a local UC group) found the low FODMAP diet correlated well (which is more recently researched than the SCD, and a little easier to manage). Unfortunately for me, my illness also overcame the strengths of the diet. Here's the "one weird trick" part though. There's a documented negative correlation between appendectomies and occurrence of UC/Crohn's. There's early, but growing evidence that an appendectomy may work as a treatment for some types of UC (at least in the young). After my last flare, we tried an appendectomy -- the alternatives were a lifetime of Infliximab (which is expensive for our public health system), or a full colectomy (which, in all honesty, I was leaning towards anyway). It worked, and I'm now in full remission. I don't know whether it'll be lasting, but my related eye conditions (which persisted during a limited round of treatment with Infliximab during an earlier flare) have vanished too. I've since relaxed my diet, although I still have a lot of probiotic yoghurt. It's worth checking Google Scholar -- there are some openly available literature reviews. I believe there's some discussion on https://crohnology.com/ https://crohnology.com/ too :). Good luck with your illness. It's a hard road, no matter which path you take.

frio 12y ago

To take this completely off-topic: I was surprised when the SCD had a good effect. I found it wasn't 100% accurate; there were certain food groups I could tolerate, and others that I couldn't. Which the diet accounts for; everyone's physiology is different. However, for what it's worth, I (and a group of people in a local UC group) found the low FODMAP diet correlated well (which is more recently researched than the SCD, and a little easier to manage). Unfortunately for me, my illness also overcame the strengths of the diet. Here's the "one weird trick" part though. There's a documented negative correlation between appendectomies and occurrence of UC/Crohn's. There's early, but growing evidence that an appendectomy may work as a treatment for some types of UC (at least in the young). After my last flare, we tried an appendectomy -- the alternatives were a lifetime of Infliximab (which is expensive for our public health system), or a full colectomy (which, in all honesty, I was leaning towards anyway). It worked, and I'm now in full remission. I don't know whether it'll be lasting, but my related eye conditions (which persisted during a limited round of treatment with Infliximab during an earlier flare) have vanished too. I've since relaxed my diet, although I still have a lot of probiotic yoghurt. It's worth checking Google Scholar -- there are some openly available literature reviews. I believe there's some discussion on https://crohnology.com/ https://crohnology.com/ too :). Good luck with your illness. It's a hard road, no matter which path you take.