4 ms·

Plea for help from HN community

11 points by VaedaStrike 12y ago

I've gotten so much out of coming to HN every day. My entire nascent programming career and capacity to sustain my family is among the greater things directly tied to life decisions that were strongly influenced by this. For this reason, and not to spam or cause clutter, I'm asking for help. My niece of 20 months has brain cancer. Her parents believe her best chance is a treatment they recently got FDA approval to try. The only problem is that simply lack money to even start the first round of treatment. Any help, either directly or indirectly provided, in any means, will help-- http://www.gofundme.com/7djqbw

VaedaStrike 12y ago
If anyone has any questions about legitimacy please feel free to contact me. about.me/ethanpearson supercriticalfluid is my email address at gmail
andregoiano 12y ago
Wishing you all the luck and good energy you can muster, Ethan.
- VaedaStrike 12y ago
  Thank you. It's very much appreciated!
striking 12y ago
Are "antineoplastons" the only treatment option left for her?
- VaedaStrike 12y ago
  After her parents looked at the statistics and probable quality of life and perceived lifespan of those who endure more traditional rounds of chemo and radiation they made the decision to go with what they felt would give her the best quality of life overall. They don't want to simply give her a cure that will make her suffer massively now and give her a legacy of health and mortal consequences more tied to the treatment than the actual cure.
michaelrhansen 12y ago
Wish you the best - brain cancer has ravaged my family.
benologist 12y ago
Does http://watsi.org http://watsi.org operate wherever you are?
- VaedaStrike 12y ago
  Now that you mention watsi I'm feeling foolish for not have made the connection (with all my time on HN) and looked into it (I think I'd just always related it more to impoverished people outside the US rather than extreme cases within the US). I will look into it and pass this along to my sister and her husband. Likely better than the high rates taken from gofundme.
VaedaStrike 12y ago
BTW here's an article in the local press that came out when they initially petitioned the FDA for the treatment. http://www.ksl.com/?nid=1009&sid=29959572 http://www.ksl.com/?nid=1009&sid=29959572

11 points by VaedaStrike 12y ago

VaedaStrike 12y ago

If anyone has any questions about legitimacy please feel free to contact me. about.me/ethanpearson supercriticalfluid is my email address at gmail

andregoiano 12y ago

Wishing you all the luck and good energy you can muster, Ethan.

VaedaStrike 12y ago
Thank you. It's very much appreciated!

striking 12y ago

Are "antineoplastons" the only treatment option left for her?

VaedaStrike 12y ago
After her parents looked at the statistics and probable quality of life and perceived lifespan of those who endure more traditional rounds of chemo and radiation they made the decision to go with what they felt would give her the best quality of life overall. They don't want to simply give her a cure that will make her suffer massively now and give her a legacy of health and mortal consequences more tied to the treatment than the actual cure.

michaelrhansen 12y ago

Wish you the best - brain cancer has ravaged my family.

benologist 12y ago

Does http://watsi.org http://watsi.org operate wherever you are?

VaedaStrike 12y ago
Now that you mention watsi I'm feeling foolish for not have made the connection (with all my time on HN) and looked into it (I think I'd just always related it more to impoverished people outside the US rather than extreme cases within the US). I will look into it and pass this along to my sister and her husband. Likely better than the high rates taken from gofundme.

VaedaStrike 12y ago

BTW here's an article in the local press that came out when they initially petitioned the FDA for the treatment. http://www.ksl.com/?nid=1009&sid=29959572 http://www.ksl.com/?nid=1009&sid=29959572