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Interesting. Is that an absolute position, or would you be more willing if the benefits (longevity, better health) were more apparent?
by akozak 12y ago
Interesting. Is that an absolute position, or would you be more willing if the benefits (longevity, better health) were more apparent?
- duaneb 12y agoI highly doubt any data about my health could give me enough benefit to warrant such an intimate invasion of my privacy.
- _croz 12y agoWould you consider it an invasion of your privacy if the data was anonymized?
- gus_massa 12y agoIt’s very difficult to anonymize data, and prevent that someone deanonymize it. The bigger cases that I remember are the AOL searchs and Netfix data. More info: http://www.cnet.com/news/aol-netflix-and-the-end-of-open-access-to-research-data/ http://www.cnet.com/news/aol-netflix-and-the-end-of-open-acc...
- duaneb 12y agoAnonymized data is a myth.
- seanflyon 12y agoAnonymization is hard, not mythical
- totoroisalive 12y agoAbsolute position. The benefits are not that appealing to me.
- a3n 12y agoThere are only two changes that would make it very easy for me to accept revealing my medical data, for science, research or just about anything else. 1. No insurance companies involved as health care gatekeepers. At the moment, they are very much an adversary to me. 2. Strong, enforced laws against employers discriminating for health. I'm sure the letter of the law currently sounds strong, but I'm assuming you have to sue to right any wrongs. Advantage employer. Neither one of these will happen in my life time, because insurance companies make huge profits on throttling our healthcare, employers will always like flexibility to do what they want with the law, and both camps fund Congress.