4 ms·

Frankly, I am finding the doctors to be the quakers. "the internet" helped me there loads more than any medic, this became painfully clear when I started to bo

by speeder 12y ago

Frankly, I am finding the doctors to be the quakers. "the internet" helped me there loads more than any medic, this became painfully clear when I started to bother to read official documents that medics should have been reading, for example I saw on internet a study that was about specifically my case, all doctors I went refused to trust the study and said they only trusted the association and the lab numbers... I asked the lab their source, they pointed me a association-made document, I read the document, and behold, the official association document that the lab and doctors claim to follow, cite the study I was citing, and for precisely the same reasons... I could only conclude that doctors are lazy, and like to take whatever number someone (their teacher, lab, whatever) spoon fed them, instead of reading the source of that number (including the endocrine association guidelines... seriously, I went to 8 or 9 different doctors in the last 12 years, some of them absurdly expensive, and not a single one read the guidelines, despite all of them claiming to follow them!) What is CBT and IAPT? Google keep throwing me stuff on my own language, despite me using english as default (for example for Google CBT is the brazillian tennis confederation).

DanBC 12y ago
Hi, sorry for using initialisms. CBT is "cognitive behaviour therapy" - this is an evidence based talking therapy that is used for a wide variety of problems, from mild mood disorders through to pain management for cancer patients. The Australian site "MoodGym" is a respected website that will teach you about CBT. https://moodgym.anu.edu.au/welcome https://moodgym.anu.edu.au/welcome It's important to realise that CBT is not just about psychological problems. CBT can give you the skills to talk to clinicians about thyroid problems, for example. IAPT is only relevant to the UK. It is a program to fund talking therapies for mental health problems. It stands for "improving access to psychological therapies". Some really small changes to your life will build up over time to make significant differences. Small changes in diet and exercise will help improve mood and motivation; that will help you research the thyroid stuff and prepare documents to challenge clinicians; and so on. I wish you best of luck.
fyrabanks 12y ago
How certain are you that you understand those documents better than medical professionals?
- speeder 12y ago
  The problem is not of conflicting interpretations, it is of medics claiming that I am saying bullshit, and that the correct thing is the document, when I am quoting said document... So either the medic is a liar (unlikely) or he never read the document.
  - fyrabanks 12y ago
    There are most certainly conflicting interpretations: your interpretation of the document and the medical professional's interpretation of the document. It's just like how if both you and, say, a journalist or a firefighter read the same piece of code; you would have two wildly different interpretations. Look, while I can't claim to know your situation, 9 times out of 10 it is a very bad idea to do self-diagnosis over the internet vs. taking professional advice. Even if you have a pretty good idea of what might be ailing you, there are subtle nuances to all kinds of diseases and conditions that doctors tend to understand. If you've already got second (maybe even third) opinions already, and you've come to the conclusion that none of the doctors in your area know what they're talking about, you should probably move. I don't see what other options you have here, particularly if you require prescribed medications. You might even be able to find other employment that way. As for the startup, yes, it's unfortunate that it will tank without you, but the way you've described it, you're literally killing yourself slowly. It will end the same way regardless. You are doing NOBODY a favor by continuing on, least of all yourself. PS Exactly how expensive are your Vitamin D supplements? They're ridiculously cheap in the US, maybe $15 for 90 capsules. International shipping might still come out cheaper.
- DanBC 12y ago
  To be fair: some clinicians are hopeless at reading research documents. See, for example, Gerd Gigerenzer's book "Reckoning With Risk" where clinicians are asked to interpret some stats and they fail hard. Having said tuat I tend to agree with you. Some health problems (and thyroidism is one) have large communities on the Internet and some of those communities are full of cranks.

by speeder 12y ago

DanBC 12y ago

Hi, sorry for using initialisms. CBT is "cognitive behaviour therapy" - this is an evidence based talking therapy that is used for a wide variety of problems, from mild mood disorders through to pain management for cancer patients. The Australian site "MoodGym" is a respected website that will teach you about CBT. https://moodgym.anu.edu.au/welcome https://moodgym.anu.edu.au/welcome It's important to realise that CBT is not just about psychological problems. CBT can give you the skills to talk to clinicians about thyroid problems, for example. IAPT is only relevant to the UK. It is a program to fund talking therapies for mental health problems. It stands for "improving access to psychological therapies". Some really small changes to your life will build up over time to make significant differences. Small changes in diet and exercise will help improve mood and motivation; that will help you research the thyroid stuff and prepare documents to challenge clinicians; and so on. I wish you best of luck.

fyrabanks 12y ago

How certain are you that you understand those documents better than medical professionals?

speeder 12y ago
The problem is not of conflicting interpretations, it is of medics claiming that I am saying bullshit, and that the correct thing is the document, when I am quoting said document... So either the medic is a liar (unlikely) or he never read the document.
- fyrabanks 12y ago
  There are most certainly conflicting interpretations: your interpretation of the document and the medical professional's interpretation of the document. It's just like how if both you and, say, a journalist or a firefighter read the same piece of code; you would have two wildly different interpretations. Look, while I can't claim to know your situation, 9 times out of 10 it is a very bad idea to do self-diagnosis over the internet vs. taking professional advice. Even if you have a pretty good idea of what might be ailing you, there are subtle nuances to all kinds of diseases and conditions that doctors tend to understand. If you've already got second (maybe even third) opinions already, and you've come to the conclusion that none of the doctors in your area know what they're talking about, you should probably move. I don't see what other options you have here, particularly if you require prescribed medications. You might even be able to find other employment that way. As for the startup, yes, it's unfortunate that it will tank without you, but the way you've described it, you're literally killing yourself slowly. It will end the same way regardless. You are doing NOBODY a favor by continuing on, least of all yourself. PS Exactly how expensive are your Vitamin D supplements? They're ridiculously cheap in the US, maybe $15 for 90 capsules. International shipping might still come out cheaper.
DanBC 12y ago
To be fair: some clinicians are hopeless at reading research documents. See, for example, Gerd Gigerenzer's book "Reckoning With Risk" where clinicians are asked to interpret some stats and they fail hard. Having said tuat I tend to agree with you. Some health problems (and thyroidism is one) have large communities on the Internet and some of those communities are full of cranks.