6 ms·
My relative is almost homeless three years after a TBI in an accident he drove home from. Prior to that he was a talented contractor who supported a family and
by sys32768 12y ago
My relative is almost homeless three years after a TBI in an accident he drove home from. Prior to that he was a talented contractor who supported a family and had many friends.
Despite herculean efforts by friends and family and even strangers, he is fundamentally broken in ways nobody seems to understand. He still largely thinks of himself as the person he was prior to the TBI.
My guess at this grim stage is the mechanisms are broken that allow him to self-correct his behavior and make accurate, up-to-date "I am" statements. Clues to this are when you confront him about his behavior or how he never bathes. He is not offended or worried but rather agitated, as if his brain short-circuits. At best you get cognitive distortions and at worst he storms away in a rage he won't remember five minutes later. Interventions and threats have no postive effect.
He will talk your ear off all day about hobbies he had prior to his TBI, and if you didn't smell him or notice his pan handling sign, you might not know there is any problem. But make no mistake, invite this man to live with you and you will be tearing your hair out after two weeks and kicking him out in three, if not sooner.
Every TBI is unique just as every person is. My relative does not accurately remember what parts of his brain was injured, so interviewing him would not yield much. Besides that, after this happened I read that something like 80% of TBIs do not even show on common medical imaging devices. In my relative's case there was evidence "suggestive" of DAI (diffuse axonal injury) which may explain why his deficits are so profound, but nobody can say. During therapy there was clear evidence that his deductive reasoning skills were seriously compromised, so imagine practical consequences if you cannot do simple deductive reasoning but also cannot realize it.
Then of course TBI survivors are many times more likely to suffer additional TBIs. Add substance abuse and limited to no impulse control and you have a person who is a danger to himself and often society, but who also may refuse to get the level of help they truly need. In his case, he needs assisted living including someone to manage all of his money, but in his mind he does not and he appears ready to fight it until his last breath.
I hope studies like this lead to more humane and informed programs to help people like him. I was just thinking this morning how unjust it is that murderers and other criminals can get room and board for life yet the best we can manage for this once talented and caring member of society is a room in a drug-infested flop house that costs half of his disability income.
- r00fus 12y agoIt is sad we don't have a safety net any longer - we used to have asylums now we have homeless people who are mostly mentally ill in some fashion or another. I'm not sure how I'd cope if I had a relative with a similar situation. Thanks for sharing your story.
- cpa 12y agoAsylums are better than homelessness, but to go as far as saying they are "safety net" is a stretch. They were usually not designed to help, but to put away. Then again, I'm not american and whenever I come to the US I'm amazed by how many homeless people one see in the streets.
- pavel_lishin 12y agoThere are people that we cannot help with current medical technology. Letting them live somewhere safe, with people who can care for them, is probably better than most of the alternatives - homelessness and prison.
- gohrt 12y agoSadly, asylums have a long history of abusing patients. Very few societies are willing to pay the cost of caring for the severely irreversibly ill.
- illuminate 12y agoExactly the problem. Long term care would be ideal for some persons. There's no "mental health lobby" like the prison industrials to encourage mass expenditures. And we certainly wouldn't want the prison megacorps to run our inpatient facilities.
- skierscott 12y ago> TBI survivors are many times more likely to suffer additional TBIs. Source? I ask because I'm a severe TBI victim and want to gauge how acceptable risks are.