4 ms·

While I understand the attitude of wanting to try as hard as possible while there's still a chance to, I hope she's not actually doing more damage while not bei

While I understand the attitude of wanting to try as hard as possible while there's still a chance to, I hope she's not actually doing more damage while not being able to really feel what's going on. How do you not destroy your ankles in cross-country while not being able to feel your feet? At the same time I respect the attempt to triumph over adversity. Took me ten years to get a sub-20 5k, and I'm about the same height and don't have MS.

andrewcooke 13y ago
i think she's track? as i said in my comment, every ms patient is different, but in my experience you need to be running on pretty flat ground because you're basically relying on rhythm (it says this in the article too - restarting after stopping is hard because you really need to think about what you're doing, but once you have a rhythm, repeating is easier). for me, kerbs are a nuisance. also, the damage can be very specific and subtle. i currently have pins+needles / little feeling in the ends of my toes on my left feet. but i can feel my ankles fine. my thighs, on the other hand, are a random patchwork of feeling and not. and what you can feel and what you can control are often not the same (it seems like nerves that control and nerves that feel are different, and damaged separately, in crude terms; on the other hand you loose the feedback loop). it's actually very interesting if you can get a little removed from it all (which you do after a year or so). it's amazing how much redundancy there is, for example. ps running (exercise in general) is encouraged. seems to help the immune system and the inflammation response. in fact, i "got" ms late, after running for most of my life, when i took a year off with a chronic injury. coincidence? who knows...?
- 001sky 13y ago
  This is quite insightful. Thanks for posting.
- andrewcooke 13y ago
  "left feet" :o) this is why i can't run fast! also "lose" not "loose", sigh...

andrewcooke 13y ago

i think she's track? as i said in my comment, every ms patient is different, but in my experience you need to be running on pretty flat ground because you're basically relying on rhythm (it says this in the article too - restarting after stopping is hard because you really need to think about what you're doing, but once you have a rhythm, repeating is easier). for me, kerbs are a nuisance. also, the damage can be very specific and subtle. i currently have pins+needles / little feeling in the ends of my toes on my left feet. but i can feel my ankles fine. my thighs, on the other hand, are a random patchwork of feeling and not. and what you can feel and what you can control are often not the same (it seems like nerves that control and nerves that feel are different, and damaged separately, in crude terms; on the other hand you loose the feedback loop). it's actually very interesting if you can get a little removed from it all (which you do after a year or so). it's amazing how much redundancy there is, for example. ps running (exercise in general) is encouraged. seems to help the immune system and the inflammation response. in fact, i "got" ms late, after running for most of my life, when i took a year off with a chronic injury. coincidence? who knows...?

001sky 13y ago
This is quite insightful. Thanks for posting.
andrewcooke 13y ago
"left feet" :o) this is why i can't run fast! also "lose" not "loose", sigh...