3 ms·
Thank you for the submission, I hadn't seen this yet. I absolutely love how the original brochure (which is also linked on that website) tells you (always in bo
by rmk2 13y ago
Thank you for the submission, I hadn't seen this yet. I absolutely love how the original brochure (which is also linked on that website) tells you (always in bold) that nothing needs to be done if sharing is alright, yet they don't give you a direct way to opt-out, no form and all it says is "talk to your GP practice". This leaves a really funny aftertaste, because it suggests that, really, you shouldn't be opting out, according to the people who think it is actually a good idea to share identifiable medical data...
- DanBC 13y agoDifferent GP practices will have different methods for opting out. I'm generally in favour of this, but i wish it had been linked to some kind of "must publish" rule. Firms can use the data but they must publish any research. I am a bit worried about the netflix effect - deanonymization of data. It's also frustrating that this is easy to make opt out, but MPs refuse to make organ donation opt out.