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>Who knows what kind of discriminatory practices will be undertaken by service providers, insurers, or even employers in the future? FYI, This is illegal in th
by aestra 13y ago
>Who knows what kind of discriminatory practices will be undertaken by service providers, insurers, or even employers in the future?
FYI, This is illegal in the United States. It is prohibited by the Genetic Information Nondiscrimination Act of 2008.
http://en.wikipedia.org/wiki/Genetic_Information_Nondiscrimination_Act http://en.wikipedia.org/wiki/Genetic_Information_Nondiscrimi...
You can thank Rep. Louise Slaughter for that one, she tried to get the bill passed for 12.5 years, and never gave up. She declared it "the greatest thing she has done in her time in Congress." She is the only scientist in Congress.
- dagw 13y agoIt's also illegal to discriminate due to age, gender, race, sexuality and disability, but it still happens all the time.
- ceejayoz 13y agoGood luck proving that was the reason, though. How are you going to refute "he bombed the technical interview so we moved onto another candidate"?
- vinceguidry 13y agoIf 23AM ever starts handing it out to anyone who asks, then it would become a concern. In which case you could make it illegal to disclose the information to anyone but the principal.
- mbreese 13y agoIt probably is illegal to disclose it, that data should fall under HIPAA as protected health information. If the data in anonymized, then they could release it (as long as the person gave them permission). However, they couldn't release it with any identifying information attached. At least, I assume 23andMe would fall under HIPAA regulations, but I'm not so sure. Does anyone know if 23andMe has an IRB?
- Amadou 13y agoNo mention of HIPAA in their privacy statement. A perfunctory google search found mumblings online about them not being covered by HIPAA. https://www.23andme.com/about/privacy/#Full https://www.23andme.com/about/privacy/#Full
- sneak 13y agoWhat about leaks? Insider threats? Acquisitions?
- vinceguidry 13y agoWhat about them? The GP was wondering about companies using the information to make hiring decisions. In order to do that, a company would need some kind of way of searching the data easily. If the only place it's available is on torrent sites and the like, then that would make it prohibitively difficult for most companies to use. If someone takes all that data and turns it into a service, then that's something that can be taken down/regulated.
- sneak 13y agoI was the GP - I don't want to work at "most companies" - in fact, most of the companies with which I wish to work have many people who can easily obtain data via bittorrent.
- xxpor 13y ago> She is the only scientist in Congress Not true, fortunately. http://en.wikipedia.org/wiki/Rush_Holt http://en.wikipedia.org/wiki/Rush_Holt
- aestra 13y agoSorry for spreading misinformation. When I heard her speak some years ago, I could have sworn I heard the person who introduced her say she was the only scientist in congress. Perhaps they were wrong, perhaps I heard or remembered wrong.