3 ms·
Hacker News was incredibly kind to me two years ago when I was diagnosed with Leukemia (AML). Many friends' posts made it to the front page here: - https://new
by superamit 13y ago
Hacker News was incredibly kind to me two years ago when I was diagnosed with Leukemia (AML). Many friends' posts made it to the front page here:
- https://news.ycombinator.com/item?id=3083770 https://news.ycombinator.com/item?id=3083770
- https://news.ycombinator.com/item?id=3149337 https://news.ycombinator.com/item?id=3149337
- https://news.ycombinator.com/item?id=3297091 https://news.ycombinator.com/item?id=3297091
After about a hundred days of friends registering & campaigning, chemo, drives, press appearances, Twitter, Facebook, and Tumblr posts, I found a donor:
- https://news.ycombinator.com/item?id=3482119 https://news.ycombinator.com/item?id=3482119
HN played a huge part in making that happen. I want to say thanks not just for me, but for all the others that gotten helped through our efforts in the past two years alone.
Reminder: It's easy to register, and easy to save someone:
- http://bethematch.org/Support-the-Cause/Donate-bone-marrow/Join-the-marrow-registry/ http://bethematch.org/Support-the-Cause/Donate-bone-marrow/J...
- revorad 13y agoAmit, great to see you're doing well. Your drive made me register as well, and I'm hoping to help someone someday. Thank you for being so awesome!
- superamit 13y agoThanks for registering!
- johnnyg 13y agoGlad to hear you are well Amit! I am registered because of your posts and story.
- superamit 13y agoThanks, Johnny!
- bglusman 13y agoAwesome, be neat to know how many lives were saved this way overall! I also registered because of you! I still have this great idea that NBMR/marrow.org should partner with 23andme.com, but I didn't get anywhere trying to contact someone at marrow.org about it (though I wrote you to ask for your contact there and sent an email, thanks for quick reply!). Still think it could be awesome and save a ton more lives (gist of the idea was they both need to run DNA sequencing, and 23andme could offer a discount or something to anyone who also agrees to register for marrow donors list), but someone told me the sequencing needs may be different for each of their needs, and perhaps they already considered the idea themselves... but in case you know anyone else to talk to about it, would be awesome to get more people off the sidelines with a small 'bribe' :-)
- superamit 13y agoThanks so much for registering! Agreed it'd be awesome to get them working together. Anne Wojcicki had reached out and I had a call with her and a couple other folks at 23andme during my 100 days isolation period after the transplant. They seemed interested, I'm not sure how far it got. I'm guessing privacy issues/conflicting priorities got in the way, but I'll drop her a line to see if they're still thinking about it.