3 ms·
This touches a personal chord. My dad recently died of IPF and while its not in the same category as cancer I'd say its a terrible journey to have a disease tha
by ashray 13y ago
This touches a personal chord. My dad recently died of IPF and while its not in the same category as cancer I'd say its a terrible journey to have a disease that literally takes your breath away, and not in a good way.
I personally understood how support systems fail, how folks would rather always hear that you are getting better but with IPF - you only get worse. IPF is as common in the US as breast cancer, the difference being that it is 100% fatal in 2-5 years on average. (Lung transplants can improve longevity but eventually fail)
This person's story is deeply meaningful and told in a profoundly beautiful way. I wish I could tell my dad's story with IPF in a similar way. I'm trying to spread awareness with a blog on IPF and by donating to the pulmonary fibrosis foundation, just wondering about what else I could do. Awareness is super important!
IPF - Idiopathic Pulmonary Fibrosis - http://en.m.wikipedia.org/wiki/Idiopathic_pulmonary_fibrosis http://en.m.wikipedia.org/wiki/Idiopathic_pulmonary_fibrosis