2 ms·
My brother was diagnosed with this awful disease about a year ago. He's 45 and has two children a few years older than Aaron's, so this definitely hits home. He
by webXL 13y ago
My brother was diagnosed with this awful disease about a year ago. He's 45 and has two children a few years older than Aaron's, so this definitely hits home. He already has a very hard time speaking, which means the disease started off by attacking his respiratory system. Aaron seems to be doing OK in that regard, but who knows how quickly that will go.
What's frustrating is that he can't qualify for experimental treatments unless his lung capacity is at a certain level (e.g. Min. Vital Capacity here: http://www.alsconsortium.org/trial.php?id=1 http://www.alsconsortium.org/trial.php?id=1). This is one reason why we need to get more money into ALS research and treatment. Please consider a donation to the ALS Association at http://www.alsa.org/ http://www.alsa.org/. Thank you.